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Comparing fears about paediatric HIV disclosure to the lived experiences of parents and guardians: a prospective cohort study.

Publication ,  Journal Article
Puffer, ES; Finnegan, A; Schenk, K; Langhaug, L; Rusakaniko, S; Choi, Y; Mahaso, S; Simmons, R; Green, EP
Published in: Psychology & health
November 2023

We aimed to: (1) follow parents and guardians through the process of paediatric HIV disclosure to understand how often pre-disclosure worries are realised; and (2) estimate the effects of disclosure on child, caregiver, and family well-being.We conducted a 12-month prospective cohort study in Zimbabwe with 123 primary caregivers of children ages 9 to 15 years who were HIV positive but did not know their serostatus at baseline. By the end of the study period 65 caregivers reported that their child learned his or her HIV-positive status.We used three waves of data to compare caregivers' pre-disclosure worries to post-disclosure reports and to characterise associations between disclosure and well-being of the child (Strengths and Difficulties Questionnaire), caregiver (Patient Health Questionnaire-9), and family (Family Relationship Quality) over time.Caregivers' pre-disclosure worries and fears about how their child would react to disclosure of their HIV status largely went unrealised. Furthermore, we did not find strong evidence of clinically-important increases in problems on average following disclosure.Findings support the call to identify supportive intervention strategies that address caregiver fears at the beginning of the disclosure process.

Duke Scholars

Published In

Psychology & health

DOI

EISSN

1476-8321

ISSN

0887-0446

Publication Date

November 2023

Volume

38

Issue

12

Start / End Page

1587 / 1605

Related Subject Headings

  • Clinical Psychology
  • 5205 Social and personality psychology
  • 5203 Clinical and health psychology
  • 4206 Public health
  • 1701 Psychology
  • 1302 Curriculum and Pedagogy
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Puffer, E. S., Finnegan, A., Schenk, K., Langhaug, L., Rusakaniko, S., Choi, Y., … Green, E. P. (2023). Comparing fears about paediatric HIV disclosure to the lived experiences of parents and guardians: a prospective cohort study. Psychology & Health, 38(12), 1587–1605. https://doi.org/10.1080/08870446.2022.2041637
Puffer, Eve S., Amy Finnegan, Katie Schenk, Lisa Langhaug, Simbarashe Rusakaniko, Yujung Choi, Simbarashe Mahaso, Ryan Simmons, and Eric P. Green. “Comparing fears about paediatric HIV disclosure to the lived experiences of parents and guardians: a prospective cohort study.Psychology & Health 38, no. 12 (November 2023): 1587–1605. https://doi.org/10.1080/08870446.2022.2041637.
Puffer ES, Finnegan A, Schenk K, Langhaug L, Rusakaniko S, Choi Y, et al. Comparing fears about paediatric HIV disclosure to the lived experiences of parents and guardians: a prospective cohort study. Psychology & health. 2023 Nov;38(12):1587–605.
Puffer, Eve S., et al. “Comparing fears about paediatric HIV disclosure to the lived experiences of parents and guardians: a prospective cohort study.Psychology & Health, vol. 38, no. 12, Nov. 2023, pp. 1587–605. Epmc, doi:10.1080/08870446.2022.2041637.
Puffer ES, Finnegan A, Schenk K, Langhaug L, Rusakaniko S, Choi Y, Mahaso S, Simmons R, Green EP. Comparing fears about paediatric HIV disclosure to the lived experiences of parents and guardians: a prospective cohort study. Psychology & health. 2023 Nov;38(12):1587–1605.

Published In

Psychology & health

DOI

EISSN

1476-8321

ISSN

0887-0446

Publication Date

November 2023

Volume

38

Issue

12

Start / End Page

1587 / 1605

Related Subject Headings

  • Clinical Psychology
  • 5205 Social and personality psychology
  • 5203 Clinical and health psychology
  • 4206 Public health
  • 1701 Psychology
  • 1302 Curriculum and Pedagogy