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Decision Aid Interventions for Family Caregivers of Persons With Advanced Dementia in Decision-Making About Feeding Options: A Scoping Review.

Publication ,  Journal Article
Pei, Y; Qi, X; Schulman-Green, D; Hu, M; Wang, K; Wu, B
Published in: Journal of the American Medical Directors Association
December 2022

We provided an overview of the literature on decision aid interventions for family caregivers of older adults with advanced dementia regarding decision making about tube feeding. We synthesized (1) the use of theory during the development, implementation, and evaluation of decision aids; (2) the development, content, and delivery of decision aid interventions; (3) caregivers' experience with decision aid interventions; and (4) the effect of decision aid interventions on caregivers' quality of decision-making about feeding options.Scoping review.We conducted a scoping review of peer-reviewed studies published January 1, 2000-June 30, 2022, in MEDLINE, EMBASE, The Cochrane Library, CINAHL, and Web of Science databases. The process was guided by Arksey and O'Malley's methodological framework, which includes identifying the research question, choosing related studies, charting the data, and summarizing results. Empirical articles concerning the decision aid interventions about feeding options were selected.Six publications reporting 4 unique decision aid interventions were included. All the interventions targeted caregivers of older adults with advanced dementia. Three decision aids were culturally adapted from existing decision aids. The Ottawa Decision Support Framework and the International Patient Decision Aid Standards Framework were used in these 6 publications. Interventions aimed to improve decision making regarding tube feeding for caregivers through static delivery methods. Caregivers rated these decision aids as helpful and acceptable. Decisional conflict and knowledge of feeding options were the most common outcomes evaluated. Reduction in decisional conflict and increase in knowledge were consistently found among dementia caregivers, but no intervention effects were found on preferences for the use of tube feeding.Decision aid interventions effectively improve decision-making regarding tube feeding among the target population. Cultural adaptation of an existing decision aid intervention is the main strategy. However, the lack of guidance of a cultural adaptation framework in this process may lead to difficulties explaining caregivers' behavioral changes. Moreover, merely providing information is not enough to change caregivers' preferences or behavior of use of tube feeding. A systematic approach to cultural adaptation and interactive intervention is needed in future studies.

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Published In

Journal of the American Medical Directors Association

DOI

EISSN

1538-9375

ISSN

1525-8610

Publication Date

December 2022

Volume

23

Issue

12

Start / End Page

1927.e1 / 1927.e6

Related Subject Headings

  • Humans
  • Geriatrics
  • Dementia
  • Decision Support Techniques
  • Caregivers
  • Aged
  • 1117 Public Health and Health Services
  • 1110 Nursing
  • 1103 Clinical Sciences
 

Citation

APA
Chicago
ICMJE
MLA
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Pei, Y., Qi, X., Schulman-Green, D., Hu, M., Wang, K., & Wu, B. (2022). Decision Aid Interventions for Family Caregivers of Persons With Advanced Dementia in Decision-Making About Feeding Options: A Scoping Review. Journal of the American Medical Directors Association, 23(12), 1927.e1-1927.e6. https://doi.org/10.1016/j.jamda.2022.08.014
Pei, Yaolin, Xiang Qi, Dena Schulman-Green, Mengyao Hu, Kaipeng Wang, and Bei Wu. “Decision Aid Interventions for Family Caregivers of Persons With Advanced Dementia in Decision-Making About Feeding Options: A Scoping Review.Journal of the American Medical Directors Association 23, no. 12 (December 2022): 1927.e1-1927.e6. https://doi.org/10.1016/j.jamda.2022.08.014.
Pei Y, Qi X, Schulman-Green D, Hu M, Wang K, Wu B. Decision Aid Interventions for Family Caregivers of Persons With Advanced Dementia in Decision-Making About Feeding Options: A Scoping Review. Journal of the American Medical Directors Association. 2022 Dec;23(12):1927.e1-1927.e6.
Pei, Yaolin, et al. “Decision Aid Interventions for Family Caregivers of Persons With Advanced Dementia in Decision-Making About Feeding Options: A Scoping Review.Journal of the American Medical Directors Association, vol. 23, no. 12, Dec. 2022, pp. 1927.e1-1927.e6. Epmc, doi:10.1016/j.jamda.2022.08.014.
Pei Y, Qi X, Schulman-Green D, Hu M, Wang K, Wu B. Decision Aid Interventions for Family Caregivers of Persons With Advanced Dementia in Decision-Making About Feeding Options: A Scoping Review. Journal of the American Medical Directors Association. 2022 Dec;23(12):1927.e1-1927.e6.
Journal cover image

Published In

Journal of the American Medical Directors Association

DOI

EISSN

1538-9375

ISSN

1525-8610

Publication Date

December 2022

Volume

23

Issue

12

Start / End Page

1927.e1 / 1927.e6

Related Subject Headings

  • Humans
  • Geriatrics
  • Dementia
  • Decision Support Techniques
  • Caregivers
  • Aged
  • 1117 Public Health and Health Services
  • 1110 Nursing
  • 1103 Clinical Sciences