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Most Efficient and Meaningful Patient-Reported Appearance Assessment in Different Cleft Types and Age Groups with CLEFT-Q.

Publication ,  Journal Article
Ombashi, S; Kurniawan, MSIC; Koudstaal, MJ; Allori, AC; Jansson, K; Rogers-Vizena, CR; Mathijssen, IMJ; Klassen, AF; Versnel, SL
Published in: Plast Reconstr Surg
January 1, 2024

BACKGROUND: The CLEFT-Q, a questionnaire developed and validated specifically for cleft patients, contains seven appearance scales. The International Consortium of Health Outcomes Measurement (ICHOM) has incorporated only some CLEFT-Q appearance scales in the Standard Set to minimize burden. This study evaluates which appearance scales provide the most meaningful information in the different cleft types at specific ages, for the most efficient cleft appearance outcome assessment. METHODS: Within this international multicenter study, outcomes of the seven appearance scales were collected, either as part of the ICHOM Standard Set, or as part of the field test study performed to validate the CLEFT-Q. Analyses were performed in separate age groups and cleft types, and involved univariate regression analyses, trend analyses, t tests, correlations, and floor and ceiling effects. RESULTS: A total of 3116 patients were included. Scores for most appearance scales showed a downward trend by age group, with the exception of the Teeth and Jaw scales. In all cleft types, several scales correlated strongly with each other. No floor effects were observed, but ceiling effects were found in several scales in different age groups, most often in the CLEFT-Q Jaw scale. CONCLUSIONS: A proposition for the most meaningful and efficient appearance outcome assessment in cleft patients is made. It was composed so that recommendations are of value for different cleft protocols and initiatives. Suggestions for the use of scales in the ICHOM Standard Set at different ages are given, and also from a clinical perspective. Use of the CLEFT-Q Scar, Lips, and Nose scales will provide additional relevant information.

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Published In

Plast Reconstr Surg

DOI

EISSN

1529-4242

Publication Date

January 1, 2024

Volume

153

Issue

1

Start / End Page

120e / 129e

Location

United States

Related Subject Headings

  • Surgery
  • Quality of Life
  • Patient Reported Outcome Measures
  • Outcome Assessment, Health Care
  • Lip
  • Humans
  • Cleft Palate
  • Cleft Lip
  • 3203 Dentistry
  • 3202 Clinical sciences
 

Citation

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Ombashi, S., Kurniawan, M. S. I. C., Koudstaal, M. J., Allori, A. C., Jansson, K., Rogers-Vizena, C. R., … Versnel, S. L. (2024). Most Efficient and Meaningful Patient-Reported Appearance Assessment in Different Cleft Types and Age Groups with CLEFT-Q. Plast Reconstr Surg, 153(1), 120e-129e. https://doi.org/10.1097/PRS.0000000000010523
Ombashi, Saranda, Melissa S. I. C. Kurniawan, Maarten J. Koudstaal, Alexander C. Allori, Kristina Jansson, Carolyn R. Rogers-Vizena, Irene M. J. Mathijssen, Anne F. Klassen, and Sarah L. Versnel. “Most Efficient and Meaningful Patient-Reported Appearance Assessment in Different Cleft Types and Age Groups with CLEFT-Q.Plast Reconstr Surg 153, no. 1 (January 1, 2024): 120e-129e. https://doi.org/10.1097/PRS.0000000000010523.
Ombashi S, Kurniawan MSIC, Koudstaal MJ, Allori AC, Jansson K, Rogers-Vizena CR, et al. Most Efficient and Meaningful Patient-Reported Appearance Assessment in Different Cleft Types and Age Groups with CLEFT-Q. Plast Reconstr Surg. 2024 Jan 1;153(1):120e-129e.
Ombashi, Saranda, et al. “Most Efficient and Meaningful Patient-Reported Appearance Assessment in Different Cleft Types and Age Groups with CLEFT-Q.Plast Reconstr Surg, vol. 153, no. 1, Jan. 2024, pp. 120e-129e. Pubmed, doi:10.1097/PRS.0000000000010523.
Ombashi S, Kurniawan MSIC, Koudstaal MJ, Allori AC, Jansson K, Rogers-Vizena CR, Mathijssen IMJ, Klassen AF, Versnel SL. Most Efficient and Meaningful Patient-Reported Appearance Assessment in Different Cleft Types and Age Groups with CLEFT-Q. Plast Reconstr Surg. 2024 Jan 1;153(1):120e-129e.

Published In

Plast Reconstr Surg

DOI

EISSN

1529-4242

Publication Date

January 1, 2024

Volume

153

Issue

1

Start / End Page

120e / 129e

Location

United States

Related Subject Headings

  • Surgery
  • Quality of Life
  • Patient Reported Outcome Measures
  • Outcome Assessment, Health Care
  • Lip
  • Humans
  • Cleft Palate
  • Cleft Lip
  • 3203 Dentistry
  • 3202 Clinical sciences