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Patient-Reported Outcomes in Pediatric Patients With Cancer.

Publication ,  Journal Article
Reeve, BB; Greenzang, KA; Sung, L
Published in: Am Soc Clin Oncol Educ Book
May 2023

Patient-reported outcomes (PROs) are reported directly by the patients about their own health. The objective of this article was to provide an overview of PROs in pediatric cancer, to describe how PROs can be incorporated into pediatric cancer clinical trials, and to discuss how PROs can guide symptom management treatment choices in pediatric oncology. Pediatric patient self-report provides a distinct voice in describing their experience compared with family caregiver or clinician report. Thus, every effort should be made to allow children to self-report symptoms, functioning, and other quality-of-life impacts and to use that data to inform treatment decision making. In addition to its incorporation into routine clinical care, it is also important to incorporate PROs into clinical trials to understand the patient experience of treatment toxicities and their impact on quality of life. Key considerations include clearly articulated PRO aims, selection of outcomes, choice of PRO measures, and frequency of PRO assessments. Once PROs are integrated into routine clinical care, it will be important to enable evidence-based symptom management. Strategies should be based on clinical practice guidelines (CPGs). Development and adaptation of care pathways on the basis of CPGs is one approach to standardize evidence-based symptom management at individual institutions. PROs are important to pediatric patients with cancer and their families. Self-report should be emphasized wherever possible. Approaches to enable PRO reporting into routine clinical care and enable preventative and therapeutic actions for symptom management are important. These efforts will optimize quality of life for pediatric patients with cancer.

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Published In

Am Soc Clin Oncol Educ Book

DOI

EISSN

1548-8756

Publication Date

May 2023

Volume

43

Start / End Page

e390272

Location

United States

Related Subject Headings

  • Quality of Life
  • Patient Reported Outcome Measures
  • Palliative Care
  • Neoplasms
  • Medical Oncology
  • Humans
  • Child
  • 3211 Oncology and carcinogenesis
 

Citation

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ICMJE
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Reeve, B. B., Greenzang, K. A., & Sung, L. (2023). Patient-Reported Outcomes in Pediatric Patients With Cancer. Am Soc Clin Oncol Educ Book, 43, e390272. https://doi.org/10.1200/EDBK_390272
Reeve, Bryce B., Katie A. Greenzang, and Lillian Sung. “Patient-Reported Outcomes in Pediatric Patients With Cancer.Am Soc Clin Oncol Educ Book 43 (May 2023): e390272. https://doi.org/10.1200/EDBK_390272.
Reeve BB, Greenzang KA, Sung L. Patient-Reported Outcomes in Pediatric Patients With Cancer. Am Soc Clin Oncol Educ Book. 2023 May;43:e390272.
Reeve, Bryce B., et al. “Patient-Reported Outcomes in Pediatric Patients With Cancer.Am Soc Clin Oncol Educ Book, vol. 43, May 2023, p. e390272. Pubmed, doi:10.1200/EDBK_390272.
Reeve BB, Greenzang KA, Sung L. Patient-Reported Outcomes in Pediatric Patients With Cancer. Am Soc Clin Oncol Educ Book. 2023 May;43:e390272.

Published In

Am Soc Clin Oncol Educ Book

DOI

EISSN

1548-8756

Publication Date

May 2023

Volume

43

Start / End Page

e390272

Location

United States

Related Subject Headings

  • Quality of Life
  • Patient Reported Outcome Measures
  • Palliative Care
  • Neoplasms
  • Medical Oncology
  • Humans
  • Child
  • 3211 Oncology and carcinogenesis