Skip to main content
Journal cover image

Designing and validating novel communication measures for pediatric, adolescent, and young adult oncology care and research: The PedCOM measures.

Publication ,  Journal Article
Sisk, BA; Newman, AR; Chen, D; Mack, JW; Reeve, BB
Published in: Pediatr Blood Cancer
December 2023

BACKGROUND: High-quality communication in pediatric and adolescent cancer is the standard of care. Yet, we lack pediatric-specific communication measures. We designed self-report and caregiver-report communication measures for use in pediatric oncology settings. METHODS: We recruited adolescent and young adults (AYAs; 12-24 years) with cancer and parents of children and AYAs between 1 month post-diagnosis and 2 months after completing treatment. Participants completed measures including 58 questions addressing eight previously characterized communication functions. For each function, we conducted factor analysis, and assessed reliability and construct validity. Based on psychometric properties, we created final long-form (31 items) and short-form (eight items) communication measures (PedCOM) for both self- and caregiver-report. RESULTS: Participants included 200 parents and 88 AYAs. The final 31-item and eight-item PedCOM measures for parents and AYAs demonstrated good unidimensional model fit. Each communication function (e.g., building relationships) demonstrated high reliability, coefficient alphas ranged from .83 to .93 for parents and .85 to .93 for AYAs. The overall 31-item and eight-item PedCOM measures also demonstrated high reliability (alphas >.9). For construct validity, PedCOM-Parent-31 and PedCOM-Parent-8 correlated positively with satisfaction with care, trust, emotional self-management, and decisional satisfaction, and negatively with anxiety and caregiver burden. PedCOM-AYA-31 and PedCOM-AYA-8 correlated positively with satisfaction with care, trust, emotional self-management, symptoms self-management, and decisional satisfaction, and negatively with anxiety. DISCUSSION: We developed valid and reliable measures of communication functions for parents and AYAs with cancer. These measures can support organizations and stakeholder groups that are striving to improve the quality of cancer care.

Duke Scholars

Altmetric Attention Stats
Dimensions Citation Stats

Published In

Pediatr Blood Cancer

DOI

EISSN

1545-5017

Publication Date

December 2023

Volume

70

Issue

12

Start / End Page

e30685

Location

United States

Related Subject Headings

  • Oncology & Carcinogenesis
  • 3213 Paediatrics
  • 3211 Oncology and carcinogenesis
  • 1114 Paediatrics and Reproductive Medicine
  • 1112 Oncology and Carcinogenesis
  • 1103 Clinical Sciences
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Sisk, B. A., Newman, A. R., Chen, D., Mack, J. W., & Reeve, B. B. (2023). Designing and validating novel communication measures for pediatric, adolescent, and young adult oncology care and research: The PedCOM measures. Pediatr Blood Cancer, 70(12), e30685. https://doi.org/10.1002/pbc.30685
Sisk, Bryan A., Amy R. Newman, Dandan Chen, Jennifer W. Mack, and Bryce B. Reeve. “Designing and validating novel communication measures for pediatric, adolescent, and young adult oncology care and research: The PedCOM measures.Pediatr Blood Cancer 70, no. 12 (December 2023): e30685. https://doi.org/10.1002/pbc.30685.
Sisk, Bryan A., et al. “Designing and validating novel communication measures for pediatric, adolescent, and young adult oncology care and research: The PedCOM measures.Pediatr Blood Cancer, vol. 70, no. 12, Dec. 2023, p. e30685. Pubmed, doi:10.1002/pbc.30685.
Journal cover image

Published In

Pediatr Blood Cancer

DOI

EISSN

1545-5017

Publication Date

December 2023

Volume

70

Issue

12

Start / End Page

e30685

Location

United States

Related Subject Headings

  • Oncology & Carcinogenesis
  • 3213 Paediatrics
  • 3211 Oncology and carcinogenesis
  • 1114 Paediatrics and Reproductive Medicine
  • 1112 Oncology and Carcinogenesis
  • 1103 Clinical Sciences