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The Impact of Faith Beliefs on Perceptions of End-of-Life Care and Decision Making among African American Church Members.

Publication ,  Journal Article
Johnson, J; Hayden, T; True, J; Simkin, D; Colbert, L; Thompson, B; Stewart, D; Martin, L
Published in: Journal of palliative medicine
February 2016

African Americans underuse palliative care and hospice services because of a combination of factors including faith beliefs. As the spiritual family for many African Americans, the church presents an opportunity to improve communication about palliative care and hospice and end-of-life (EOL) decision making.We conducted a focus group study to understand the cultural and spiritual perspectives that influence decisions about palliative care and hospice among African American church members who visit and support persons with life-limiting illnesses. Our specific aims were to elicit their perceptions, beliefs, and attitudes about: (1) the relation between faith beliefs and EOL care; (2) emotional and family influences on EOL decision making; (3) palliative care and hospice resources; and (4) opportunities to improve communication among lay persons and health professionals and within families.Seven focus groups using purposeful sampling.We partnered with two African American churches. Of 51 persons, 27 were deacons or deaconesses, 17 were members of health or bereavement ministries, and 7 were other members of the congregations.We found that faith beliefs of African Americans can support discussions about palliative care and hospice. Participants perceived that many of their congregants harbor beliefs, perceptions, and feelings about death and dying that were often not communicated to family members or to health providers.Among African Americans, faith beliefs, emotional issues, family dynamics, and insufficient knowledge of palliative care and hospice are intertwined and influence decision making about palliative care and hospice. Our findings confirm the influence of faith beliefs of African Americans on decisions about palliative care and hospice and demonstrate the opportunity to improve communication about palliative care and hospice and EOL through collaborations with the African American church.

Published In

Journal of palliative medicine

DOI

EISSN

1557-7740

ISSN

1096-6218

Publication Date

February 2016

Volume

19

Issue

2

Start / End Page

143 / 148

Related Subject Headings

  • Terminal Care
  • Religion
  • Middle Aged
  • Male
  • Humans
  • Gerontology
  • Focus Groups
  • Female
  • Decision Making
  • Black or African American
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Johnson, J., Hayden, T., True, J., Simkin, D., Colbert, L., Thompson, B., … Martin, L. (2016). The Impact of Faith Beliefs on Perceptions of End-of-Life Care and Decision Making among African American Church Members. Journal of Palliative Medicine, 19(2), 143–148. https://doi.org/10.1089/jpm.2015.0238
Johnson, Jerry, Tara Hayden, Jennifer True, Daren Simkin, Louis Colbert, Beverly Thompson, Denise Stewart, and Latoya Martin. “The Impact of Faith Beliefs on Perceptions of End-of-Life Care and Decision Making among African American Church Members.Journal of Palliative Medicine 19, no. 2 (February 2016): 143–48. https://doi.org/10.1089/jpm.2015.0238.
Johnson J, Hayden T, True J, Simkin D, Colbert L, Thompson B, et al. The Impact of Faith Beliefs on Perceptions of End-of-Life Care and Decision Making among African American Church Members. Journal of palliative medicine. 2016 Feb;19(2):143–8.
Johnson, Jerry, et al. “The Impact of Faith Beliefs on Perceptions of End-of-Life Care and Decision Making among African American Church Members.Journal of Palliative Medicine, vol. 19, no. 2, Feb. 2016, pp. 143–48. Epmc, doi:10.1089/jpm.2015.0238.
Johnson J, Hayden T, True J, Simkin D, Colbert L, Thompson B, Stewart D, Martin L. The Impact of Faith Beliefs on Perceptions of End-of-Life Care and Decision Making among African American Church Members. Journal of palliative medicine. 2016 Feb;19(2):143–148.
Journal cover image

Published In

Journal of palliative medicine

DOI

EISSN

1557-7740

ISSN

1096-6218

Publication Date

February 2016

Volume

19

Issue

2

Start / End Page

143 / 148

Related Subject Headings

  • Terminal Care
  • Religion
  • Middle Aged
  • Male
  • Humans
  • Gerontology
  • Focus Groups
  • Female
  • Decision Making
  • Black or African American