Reporting of underrepresented populations in autism treatment studies across 25 years

Purpose: Eight language and autism related journals published between 1993 and 2017 were analyzed to identify trends in the inclusion of underrepresented populations in empirical studies with social skill, play, joint attention, and expressive language outcomes. Relationships among treatment outcomes, treatment settings, and underrepresented population types were explored. Methods: All articles (12,381) were searched to identify intervention studies that included participants with autism and were classified by treatment target and setting (N=291). The selected studies were then examined to determine if any participants were from underrepresented populations (n=138) and categorized by type of underrepresented population. Results: Most studies did not indicate demographic characteristics beyond disability, age, and gender; and few relationships between frequency of underrepresented population articles, treatment targets, or intervention setting emerged. Results indicated that demographic characteristics were often omitted, despite recommendations to report descriptive information. Conclusions: Although inclusion of underrepresented populations has increased since 1993, treatment study results cannot yet be generalized to a more diverse population, due to the disproportionately low number of participants from racial/ethnic minority, multilingual, and low socioeconomic status groups reported and/or included in studies. The dearth of underrepresented participants suggests that conscious efforts to recruit and report them are still necessary.

Duke Scholars

Author Danai Kassambira Fannin Head and Neck Surgery & Communication Sciences