Skip to main content

Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus.

Publication ,  Journal Article
Guardino, K; Gaerlan, M; Pinotti, CS; Burnett, KR; Kofoed, D; Schanberg, LE; Hightow-Weidman, LB; Randell, RL
Published in: Lupus Sci Med
July 31, 2024

Paediatric systemic lupus erythematosus (pSLE) management and research could be enhanced by a mobile health application (app); however, no app designed for pSLE is currently available. A development and design committee comprising of patients, parents/caregivers and other stakeholders met to inform development and design of an app specific for pSLE. This meeting report summarises the group's discussions and recommendations that could help create a useful and desirable app or mobile health tool for the pSLE community.

Duke Scholars

Published In

Lupus Sci Med

DOI

ISSN

2053-8790

Publication Date

July 31, 2024

Volume

11

Issue

2

Location

England

Related Subject Headings

  • Telemedicine
  • Mobile Applications
  • Lupus Erythematosus, Systemic
  • Humans
  • Child
  • Caregivers
  • 3204 Immunology
  • 3202 Clinical sciences
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Guardino, K., Gaerlan, M., Pinotti, C. S., Burnett, K. R., Kofoed, D., Schanberg, L. E., … Randell, R. L. (2024). Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus. Lupus Sci Med, 11(2). https://doi.org/10.1136/lupus-2024-001305
Guardino, Katrina, Malaya Gaerlan, Caitlan S. Pinotti, Kimberly R. Burnett, Deborah Kofoed, Laura Eve Schanberg, Lisa B. Hightow-Weidman, and Rachel L. Randell. “Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus.Lupus Sci Med 11, no. 2 (July 31, 2024). https://doi.org/10.1136/lupus-2024-001305.
Guardino K, Gaerlan M, Pinotti CS, Burnett KR, Kofoed D, Schanberg LE, et al. Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus. Lupus Sci Med. 2024 Jul 31;11(2).
Guardino, Katrina, et al. “Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus.Lupus Sci Med, vol. 11, no. 2, July 2024. Pubmed, doi:10.1136/lupus-2024-001305.
Guardino K, Gaerlan M, Pinotti CS, Burnett KR, Kofoed D, Schanberg LE, Hightow-Weidman LB, Randell RL. Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus. Lupus Sci Med. 2024 Jul 31;11(2).

Published In

Lupus Sci Med

DOI

ISSN

2053-8790

Publication Date

July 31, 2024

Volume

11

Issue

2

Location

England

Related Subject Headings

  • Telemedicine
  • Mobile Applications
  • Lupus Erythematosus, Systemic
  • Humans
  • Child
  • Caregivers
  • 3204 Immunology
  • 3202 Clinical sciences