Scholars@Duke publication: Perceptions and Needs for a Technology-Based Dyadic Intervention on Symptom Management Among Patients With Colorectal Cancer and Their Caregivers: A Qualitative Study.

Perceptions and Needs for a Technology-Based Dyadic Intervention on Symptom Management Among Patients With Colorectal Cancer and Their Caregivers: A Qualitative Study.

Publication , Journal Article

Epari, A; Kim, K; Xiao, C; Porter, LS; Alese, OB; Northouse, L; Liu, D; Graetz, I; Lin, Y

Published in: Cancer Nurs

November 29, 2024

BACKGROUND: Colorectal cancer (CRC) patients and their caregivers often experience multiple co-occurring symptoms (eg, fatigue, depression, anxiety, and sleep disturbance). There is a noticeable gap in research regarding symptom management for patient-caregiver dyads, particularly using technology-based tools. OBJECTIVE: This study aimed to describe the needs and perceptions of patient-caregiver dyads regarding a technology-based tool to manage their multiple symptoms. METHODS: This study utilized a qualitative descriptive design with purposive sampling. Semistructured interviews were conducted with CRC patients undergoing chemotherapy and their caregivers. Thematic analysis was performed to identify key themes. RESULTS: The study included 11 patients and 8 caregivers (8 patient-caregiver dyads and 3 patients without dyads). Four main themes emerged: (1) high symptom burden experienced by CRC patients and their caregivers; (2) symptom self-management strategies, including information seeking and self-education, family and social support, and coping strategies; (3) input and suggestions for technology use, covering aspects such as content, format, and specific technology features; and (4) concerns about barriers to healthcare access, including technological literacy, geographical distance, and time constraints. CONCLUSIONS: Our findings provide novel insights into experiences, needs, and suggestions of CRC patient-caregiver dyads for managing multiple symptoms. Participants emphasized the importance of developing a tailored, technology-based tool that includes personalized, evidence-based content; accessible and intuitive design features; and interactive social support capabilities. IMPLICATIONS FOR PRACTICE: Leveraging these findings, we aim to develop a technology-based dyadic intervention tool that addresses the psychosocial needs of CRC patient-caregiver dyads. This approach can also enhance health equity by making care more accessible.