Skip to main content
Journal cover image

Eating and swallowing care disparities in persons with dementia: A conceptual framework.

Publication ,  Journal Article
Loy, RD; Rogus-Pulia, N; Ketchum, F; Troche, M; Rameau, A; Jones, HN; Riquelme, L; Gilmore-Bykovskyi, A; Shah, MN; Kind, A
Published in: Alzheimer's & dementia : the journal of the Alzheimer's Association
February 2025

Eating and swallowing difficulties are prevalent and distressing among persons living with dementia (PLWD). These challenges may be especially burdensome for PLWD in lower-resourced settings, where environmental factors such as social support, health-care infrastructure, and food access are critical for meeting quality standards of eating and swallowing care. However, clinical practices and research methods have not sufficiently focused on the lived environment to promote high-quality, socially and culturally aligned management approaches.To address this gap, we developed a conceptual framework informed by the literature, grounded in ecological systems and fundamental cause theories, and refined through iterative discussion.Our framework highlights individual-, system-, and community-level factors and resources influencing person-centered eating and swallowing care for PLWD. It identifies areas at risk for inequitable care along the swallowing management continuum.We propose future research areas to help health-care providers reconcile the demands of eating and swallowing care with the lived realities of PLWD.There are eating/swallowing care disparities among persons living with dementia. We introduce a conceptual framework applying social and structural determinants of health to eating/swallowing care. We also recommend areas to address disparities and improve eating/swallowing care.

Published In

Alzheimer's & dementia : the journal of the Alzheimer's Association

DOI

EISSN

1552-5279

ISSN

1552-5260

Publication Date

February 2025

Volume

21

Issue

2

Start / End Page

e70028

Related Subject Headings

  • Humans
  • Healthcare Disparities
  • Geriatrics
  • Eating
  • Dementia
  • Deglutition Disorders
  • Deglutition
  • 5202 Biological psychology
  • 3209 Neurosciences
  • 3202 Clinical sciences
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Loy, R. D., Rogus-Pulia, N., Ketchum, F., Troche, M., Rameau, A., Jones, H. N., … Kind, A. (2025). Eating and swallowing care disparities in persons with dementia: A conceptual framework. Alzheimer’s & Dementia : The Journal of the Alzheimer’s Association, 21(2), e70028. https://doi.org/10.1002/alz.70028
Loy, Raele Donetha, Nicole Rogus-Pulia, Fred Ketchum, Michelle Troche, Anaïs Rameau, Harrison N. Jones, Luis Riquelme, Andrea Gilmore-Bykovskyi, Manish N. Shah, and Amy Kind. “Eating and swallowing care disparities in persons with dementia: A conceptual framework.Alzheimer’s & Dementia : The Journal of the Alzheimer’s Association 21, no. 2 (February 2025): e70028. https://doi.org/10.1002/alz.70028.
Loy RD, Rogus-Pulia N, Ketchum F, Troche M, Rameau A, Jones HN, et al. Eating and swallowing care disparities in persons with dementia: A conceptual framework. Alzheimer’s & dementia : the journal of the Alzheimer’s Association. 2025 Feb;21(2):e70028.
Loy, Raele Donetha, et al. “Eating and swallowing care disparities in persons with dementia: A conceptual framework.Alzheimer’s & Dementia : The Journal of the Alzheimer’s Association, vol. 21, no. 2, Feb. 2025, p. e70028. Epmc, doi:10.1002/alz.70028.
Loy RD, Rogus-Pulia N, Ketchum F, Troche M, Rameau A, Jones HN, Riquelme L, Gilmore-Bykovskyi A, Shah MN, Kind A. Eating and swallowing care disparities in persons with dementia: A conceptual framework. Alzheimer’s & dementia : the journal of the Alzheimer’s Association. 2025 Feb;21(2):e70028.
Journal cover image

Published In

Alzheimer's & dementia : the journal of the Alzheimer's Association

DOI

EISSN

1552-5279

ISSN

1552-5260

Publication Date

February 2025

Volume

21

Issue

2

Start / End Page

e70028

Related Subject Headings

  • Humans
  • Healthcare Disparities
  • Geriatrics
  • Eating
  • Dementia
  • Deglutition Disorders
  • Deglutition
  • 5202 Biological psychology
  • 3209 Neurosciences
  • 3202 Clinical sciences