Examining Stigma and Disclosure Among Women With HIV in the Southern United States: Qualitative Study Guided by the Adaptive Leadership Framework for Chronic Illness.

Journal Article (Journal Article)

Stigma is a fundamental cause of health inequities. Guided by the Adaptive Leadership Framework for Chronic Illness (ALFCI), this descriptive qualitative study explored the challenges of stigma and disclosure experienced by women with HIV (WWH) in the Southern United States. A convenience sample of 22 WWH aged 36 to 62 years were interviewed for this study. Analysis of participant interviews revealed that WWH face a multitude of stigma-related technical and adaptive challenges, which are consistent with the ALFCI. Once identified, technical challenges, such as recognizing the need for support, lack of trust, and fear of rejection, can be overcome by technical work, including providing assistance with HIV disclosure and building a trusted network. By identifying specific adaptive and technical challenges faced by WWH and engaging in technical and adaptive work, the WWH and the provider can reduce the fear of disclosure and the effect of stigma.

Full Text

Duke Authors

Cited Authors

  • McMillian-Bohler, JM; Holt, L; Adimora, AA; Bailey, DCE; Johnson, R; Koch, A; McGee, K; Ramirez, C; Randolph, SD; Ritchwood, TD; Relf, MV

Published Date

  • January 2023

Published In

Volume / Issue

  • 34 / 1

Start / End Page

  • 113 - 124

PubMed ID

  • 35862630

Electronic International Standard Serial Number (EISSN)

  • 1552-6917

Digital Object Identifier (DOI)

  • 10.1097/JNC.0000000000000354


  • eng

Conference Location

  • United States