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Measuring repetitive behaviors as a treatment endpoint in youth with autism spectrum disorder.

Publication ,  Journal Article
Scahill, L; Aman, MG; Lecavalier, L; Halladay, AK; Bishop, SL; Bodfish, JW; Grondhuis, S; Jones, N; Horrigan, JP; Cook, EH; Handen, BL ...
Published in: Autism
January 2015

Restricted interests and repetitive behaviors vary widely in type, frequency, and intensity among children and adolescents with autism spectrum disorder. They can be stigmatizing and interfere with more constructive activities. Accordingly, restricted interests and repetitive behaviors may be a target of intervention. Several standardized instruments have been developed to assess restricted interests and repetitive behaviors in the autism spectrum disorder population, but the rigor of psychometric assessment is variable. This article evaluated the readiness of available measures for use as outcome measures in clinical trials. The Autism Speaks Foundation assembled a panel of experts to examine available instruments used to measure restricted interests and repetitive behaviors in youth with autism spectrum disorder. The panel held monthly conference calls and two face-to-face meetings over 14 months to develop and apply evaluative criteria for available instruments. Twenty-four instruments were evaluated and five were considered "appropriate with conditions" for use as outcome measures in clinical trials. Ideally, primary outcome measures should be relevant to the clinical target, be reliable and valid, and cover the symptom domain without being burdensome to subjects. The goal of the report was to promote consensus across funding agencies, pharmaceutical companies, and clinical investigators about advantages and disadvantages of existing outcome measures.

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Published In

Autism

DOI

EISSN

1461-7005

Publication Date

January 2015

Volume

19

Issue

1

Start / End Page

38 / 52

Location

England

Related Subject Headings

  • Surveys and Questionnaires
  • Stereotyped Behavior
  • Outcome Assessment, Health Care
  • Humans
  • Developmental & Child Psychology
  • Consensus
  • Child, Preschool
  • Child Development Disorders, Pervasive
  • Child
  • Checklist
 

Citation

APA
Chicago
ICMJE
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Scahill, L., Aman, M. G., Lecavalier, L., Halladay, A. K., Bishop, S. L., Bodfish, J. W., … Dawson, G. (2015). Measuring repetitive behaviors as a treatment endpoint in youth with autism spectrum disorder. Autism, 19(1), 38–52. https://doi.org/10.1177/1362361313510069
Scahill, Lawrence, Michael G. Aman, Luc Lecavalier, Alycia K. Halladay, Somer L. Bishop, James W. Bodfish, Sabrina Grondhuis, et al. “Measuring repetitive behaviors as a treatment endpoint in youth with autism spectrum disorder.Autism 19, no. 1 (January 2015): 38–52. https://doi.org/10.1177/1362361313510069.
Scahill L, Aman MG, Lecavalier L, Halladay AK, Bishop SL, Bodfish JW, et al. Measuring repetitive behaviors as a treatment endpoint in youth with autism spectrum disorder. Autism. 2015 Jan;19(1):38–52.
Scahill, Lawrence, et al. “Measuring repetitive behaviors as a treatment endpoint in youth with autism spectrum disorder.Autism, vol. 19, no. 1, Jan. 2015, pp. 38–52. Pubmed, doi:10.1177/1362361313510069.
Scahill L, Aman MG, Lecavalier L, Halladay AK, Bishop SL, Bodfish JW, Grondhuis S, Jones N, Horrigan JP, Cook EH, Handen BL, King BH, Pearson DA, McCracken JT, Sullivan KA, Dawson G. Measuring repetitive behaviors as a treatment endpoint in youth with autism spectrum disorder. Autism. 2015 Jan;19(1):38–52.
Journal cover image

Published In

Autism

DOI

EISSN

1461-7005

Publication Date

January 2015

Volume

19

Issue

1

Start / End Page

38 / 52

Location

England

Related Subject Headings

  • Surveys and Questionnaires
  • Stereotyped Behavior
  • Outcome Assessment, Health Care
  • Humans
  • Developmental & Child Psychology
  • Consensus
  • Child, Preschool
  • Child Development Disorders, Pervasive
  • Child
  • Checklist