Charmaine DM Royal
Robert O. Keohane Professor
Charmaine Royal is the Robert O. Keohane Professor of African & African American Studies, Biology, Global Health, and Family Medicine & Community Health at Duke University. She directs the Center on Genomics, Race, Identity, Difference and the Center for Truth, Racial Healing & Transformation.
Dr. Royal’s research, scholarship, and teaching focus on ethical, social, scientific, and clinical implications of human genetics and genomics, particularly issues at the intersection of genetics and "race". Her specific interests and primary areas of work include genetics and genomics in African and African Diaspora populations; sickle cell disease and trait; public and professional perspectives and practices regarding "race", ethnicity, and ancestry; genetic ancestry inference; and broadly defined genotype-environment interplay. A fundamental aim of her work is to dismantle ideologies and systems of racial hierarchy in research, healthcare, and society. She serves on numerous national and international advisory boards and committees for government agencies, professional organizations, research initiatives, not-for-profit entities, and corporations.
Dr. Royal obtained a bachelor’s degree in microbiology, master’s in genetic counseling, and doctorate in human genetics from Howard University. She completed postgraduate training in ethical, legal, and social implications (ELSI) research and bioethics at the National Human Genome Research Institute of the National Institutes of Health, and in epidemiology and behavioral medicine at Howard University Cancer Center.
Office Hours
By appointment
Current Appointments & Affiliations
- Robert O. Keohane Professor, African & African American Studies, Trinity College of Arts & Sciences 2021 - 2026
- Professor of African and African American Studies, African & African American Studies, Trinity College of Arts & Sciences 2020
- Director of the Duke Center for Truth, Racial Healing & Transformation (TRHT), Social Science Research Institute, University Institutes and Centers 2022
- Director of the Duke Center on Genomics, Race, Identity, Difference (GRID), Center on Genomics, Race, Identity, Difference, Social Science Research Institute 2022
- Professor of Biology, Biology, Trinity College of Arts & Sciences 2020
- Research Professor of Global Health, Duke Global Health Institute, University Institutes and Centers 2020
- Professor in Family Medicine and Community Health, Family Medicine and Community Health, Community Health, Family Medicine and Community Health 2020
- Associate of the Duke Initiative for Science & Society, Duke Science & Society, Initiatives 2017
Contact Information
- 234 Friedl Bldg, Box 90252, Durham, NC 27708-0141
- Duke Box 90252, Durham, NC 27708
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charmaine.royal@duke.edu
(919) 668-6515
- Background
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Education, Training, & Certifications
- Ph.D., Howard University 1997
- M.S., Howard University 1992
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Previous Appointments & Affiliations
- Associate Professor in the Department of African and African American Studies, African & African American Studies, Trinity College of Arts & Sciences 2013 - 2020
- Associate Professor of Biology, Biology, Trinity College of Arts & Sciences 2016 - 2020
- Associate Professor in Family Medicine and Community Health, Family Medicine and Community Health, Community Health, Family Medicine and Community Health 2017 - 2020
- Associate Research Professor of Global Health, Duke Global Health Institute, University Institutes and Centers 2019 - 2020
- Affiliate, Duke Global Health Institute, Duke Global Health Institute, University Institutes and Centers 2014 - 2019
- Core Member of the Center for Biobehavioral Health Disparities Research, Center on Health & Society, Social Science Research Institute 2014 - 2019
- Director of the Reginaldo Howard Scholars Program, Institutes and Provost's Academic Units, Duke University 2015 - 2018
- Investigator in the Institute forGenome Sciences & Policy, Institutes and Centers, School of Medicine 2007 - 2014
- Associate Research Professor in the Department of African and African American Studies, African & African American Studies, Trinity College of Arts & Sciences 2011 - 2013
- Associate Research Professor of African and African-American Studies, Trinity College of Arts & Sciences, Duke University 2009 - 2011
- Associate Research Professor, Institutes and Centers, School of Medicine 2007 - 2011
- Recognition
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In the News
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DEC 12, 2022 -
MAR 10, 2022 -
FEB 25, 2022 -
JUN 1, 2021 -
FEB 12, 2020 -
OCT 24, 2019 -
SEP 22, 2017 -
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MAY 26, 2016 -
SEP 3, 2014 -
MAR 22, 2014 Duke Today
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Awards & Honors
- Expertise
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Global Scholarship
- Research
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Selected Grants
- Tom Russell Charitable Foundation awarded by Tom Russell Charitable Foundation 2020 - 2023
- Duke Center for Truth, Racial Healing & Transformation Workshop awarded by James Madison University 2022 - 2023
- Implementation and Implications of Sickle Cell Trait Screening in the NCAA awarded by National Institutes of Health 2019 - 2023
- U.S. PUBLIC PERSPECTIVES ON RACE AND GENETICS awarded by Burroughs Wellcome Fund 2021 - 2023
- Racial Healing & Relationship Building awarded by Association of American Colleges and Universities 2022
- Duke-Durham: One Community¿Multiple Voices (Duke Truth, Racial Healing & Transformation Center) awarded by Association of American Colleges and Universities 2019 - 2020
- Duke-Durham: One Community Multiple Voices (Duke Truth, Racial Healing & Transformation Center) awarded by Association of American Colleges and Universities 2017 - 2020
- Duke-Durham: One Community¿Multiple Voices (Duke Truth, Racial Healing & Transformation Center) awarded by Association of American Colleges and Universities 2017 - 2019
- Understanding the Intersection of Stigma and Self-Management in Sickle Cell Disease awarded by National Institutes of Health 2017 - 2019
- Public Perspectives and Experience Regarding Genetic Ancestry Testing awarded by National Institutes of Health 2012 - 2016
- Perspectives and Experience Regarding the NCAA Sickle Cell Trait Testing awarded by National Collegiate Athletic Association 2013 - 2015
- Ethics as a Guide for the Use of "Race" and Ancestry in Research and Clinical Practice awarded by Greenwall Foundation 2009 - 2015
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External Relationships
- American Society of Human Genetics
- Illumina
- Publications & Artistic Works
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Selected Publications
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Academic Articles
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Bulgin, Dominique, Monika Asnani, Allison Vorderstrasse, Charmaine Royal, Wei Pan, and Paula Tanabe. “Stigma and quality of life in adults with sickle cell disease in Jamaica and the United States.” Psychology, Health & Medicine 28, no. 5 (June 2023): 1133–47. https://doi.org/10.1080/13548506.2021.2019808.Full Text
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Wagner, Jennifer K., Joon-Ho Yu, Duana Fullwiley, CeCe Moore, James F. Wilson, Michael J. Bamshad, Charmaine D. Royal, and Charmaine D. Genetic Ancestry Inference Roundtable Participants. “Guidelines for genetic ancestry inference created through roundtable discussions.” Hgg Advances 4, no. 2 (April 2023): 100178. https://doi.org/10.1016/j.xhgg.2023.100178.Full Text
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Royal, Charmaine D. M. “Science, Society, and Dismantling Racism.” Health Equity 7, no. 1 (January 2023): 38–44. https://doi.org/10.1089/heq.2022.29023.cro.Full Text
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Callier, Shawneequa L., Perry W. Payne, Deborah Akinniyi, Kaitlyn McPartland, Terry L. Richardson, Mark A. Rothstein, and Charmaine D. M. Royal. “Cardiologists' Perspectives on BiDil and the Use of Race in Drug Prescribing.” Journal of Racial and Ethnic Health Disparities 9, no. 6 (December 2022): 2146–56. https://doi.org/10.1007/s40615-021-01153-x.Full Text
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Sodeke, Stephen, Faith E. Fletcher, Virginia A. Brown, John R. Stone, Cynthia B. Wilson, Tené Hamilton Franklin, Charmaine D. M. Royal, and Vence L. Bonham. “Herstory as an Important Force in Bioethics.” The Hastings Center Report 52 Suppl 1 (March 2022): S83–88. https://doi.org/10.1002/hast.1379.Full Text
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Marshall, Patricia, Charmaine D. M. Royal, and Ruth Chadwick. “Translational Science, DNA Commercialization, and Informed Consent: The Need for Specific Terminology, Insights from a Review of H3Africa Projects.” Public Health Genomics, January 2022, 1–8. https://doi.org/10.1159/000521371.Full Text
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Wagner, Jennifer K., Joon-Ho Yu, Jessica X. Chong, Charmaine D. Royal, and Michael J. Bamshad. “Centering Equity in Human Genetics and Genomics Advances.” Hgg Advances 2, no. 4 (October 2021): 100048. https://doi.org/10.1016/j.xhgg.2021.100048.Full Text
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Tukker, Anke M., Charmaine D. Royal, Aaron B. Bowman, and Kimberly A. McAllister. “The Impact of Environmental Factors on Monogenic Mendelian Diseases.” Toxicological Sciences : An Official Journal of the Society of Toxicology 181, no. 1 (April 2021): 3–12. https://doi.org/10.1093/toxsci/kfab022.Full Text Open Access Copy
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Royal, Charmaine D. M., Michael Babyak, Nirmish Shah, Shantanu Srivatsa, Kearsley A. Stewart, Paula Tanabe, Ambroise Wonkam, and Monika Asnani. “Sickle cell disease is a global prototype for integrative research and healthcare.” Adv Genet (Hoboken) 2, no. 1 (March 2021): e10037. https://doi.org/10.1002/ggn2.10037.Full Text Open Access Copy Link to Item
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Stewart, Kearsley A., Monika Parshad-Asnani, Ambroise Wonkam, John Bollinger, Valentina Ngo Bitoungui, Edmond Wonkam-Tingang, Jill Powell, et al. “"Pain is Subjective": A Mixed-Methods Study of Provider Attitudes and Practices Regarding Pain Management in Sickle Cell Disease Across Three Countries.” J Pain Symptom Manage 61, no. 3 (March 2021): 474–87. https://doi.org/10.1016/j.jpainsymman.2020.08.029.Full Text Link to Item
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Gyamfi, Joyce, Temitope Ojo, Juliet Iwelunmor, Gbenga Ogedegbe, Nessa Ryan, Amy Diawara, Obiageli Nnodu, Ambroise Wonkam, Charmaine Royal, and Emmanuel Peprah. “Implementation science research for the scale-up of evidence-based interventions for sickle cell disease in africa: a commentary.” Globalization and Health 17, no. 1 (February 2021): 20. https://doi.org/10.1186/s12992-021-00671-x.Full Text
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Teteh, Dede K., Lenna Dawkins-Moultin, Stanley Hooker, Wenndy Hernandez, Carolina Bonilla, Dorothy Galloway, Victor LaGroon, et al. “Genetic ancestry, skin color and social attainment: The four cities study.” Plos One 15, no. 8 (January 2020): e0237041. https://doi.org/10.1371/journal.pone.0237041.Full Text Open Access Copy
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Blanchard, Jessica W., Simon Outram, Gloria Tallbull, and Charmaine D. M. Royal. “"We Don't Need a Swab in Our Mouth to Prove Who We Are": Identity, Resistance, and Adaptation of Genetic Ancestry Testing among Native American Communities.” Current Anthropology 60, no. 5 (October 2019): 637–55. https://doi.org/10.1086/705483.Full Text
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Bulgin, Dominique, Paula Tanabe, Monika Asnani, and Charmaine D. M. Royal. “Twelve tips for teaching a comprehensive disease-focused course with a global perspective: A sickle cell disease example.” Medical Teacher 41, no. 3 (March 2019): 275–81. https://doi.org/10.1080/0142159x.2017.1420151.Full Text
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Callier, Shawneequa L., Brooke A. Cunningham, Jill Powell, Mary Anne McDonald, and Charmaine D. M. Royal. “Cardiologists' Perspectives on Race-Based Drug Labels and Prescribing Within the Context of Treating Heart Failure.” Health Equity 3, no. 1 (January 2019): 246–53. https://doi.org/10.1089/heq.2018.0074.Full Text
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Sickle Cell Disease Ontology Working Group, Eric. “The Sickle Cell Disease Ontology: enabling universal sickle cell-based knowledge representation.” Database : The Journal of Biological Databases and Curation 2019 (January 2019): baz118. https://doi.org/10.1093/database/baz118.Full Text Open Access Copy
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Baker, Charlotte, Jill Powell, Dominic Le, Melissa S. Creary, Lori-Ann Daley, Mary Anne McDonald, and Charmaine Dm Royal. “Implementation of the NCAA Sickle Cell Trait Screening Policy: A Survey of Athletic Staff and Student-athletes.” Journal of the National Medical Association 110, no. 6 (December 2018): 564–73. https://doi.org/10.1016/j.jnma.2018.03.004.Full Text Open Access Copy
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Nelson, Sarah C., Joon-Ho Yu, Jennifer K. Wagner, Tanya M. Harrell, Charmaine D. Royal, and Michael J. Bamshad. “A content analysis of the views of genetics professionals on race, ancestry, and genetics.” Ajob Empirical Bioethics 9, no. 4 (October 2018): 222–34. https://doi.org/10.1080/23294515.2018.1544177.Full Text Open Access Copy
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Outram, Simon, Joseph L. Graves, Jill Powell, Chantelle Wolpert, Kerry L. Haynie, Morris W. Foster, Jessica W. Blanchard, Anna Hoffmeyer, Robert P. Agans, and Charmaine Dm Royal. “Genes, Race, and Causation: US Public Perspectives About Racial Difference.” Race and Social Problems 10, no. 2 (June 2018): 79–90. https://doi.org/10.1007/s12552-018-9223-7.Full Text Open Access Copy
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Christensen, Kurt D., Wendy R. Uhlmann, J Scott Roberts, Erin Linnenbringer, Peter J. Whitehouse, Charmaine D. M. Royal, Thomas O. Obisesan, et al. “A randomized controlled trial of disclosing genetic risk information for Alzheimer disease via telephone.” Genetics in Medicine : Official Journal of the American College of Medical Genetics 20, no. 1 (January 2018): 132–41. https://doi.org/10.1038/gim.2017.103.Full Text
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McDonald, Mary Anne, Melissa S. Creary, Jill Powell, Lori-Ann Daley, Charlotte Baker, and Charmaine Dm Royal. “Perspectives and Practices of Athletic Trainers and Team Physicians Implementing the 2010 NCAA Sickle Cell Trait Screening Policy.” Journal of Genetic Counseling 26, no. 6 (December 2017): 1292–1300. https://doi.org/10.1007/s10897-017-0107-6.Full Text
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Ifekwunigwe, Jayne O., Jennifer K. Wagner, Joon-Ho Yu, Tanya M. Harrell, Michael J. Bamshad, and Charmaine D. Royal. “A Qualitative Analysis of How Anthropologists Interpret the Race Construct.” American Anthropologist 119, no. 3 (September 2017): 422–34. https://doi.org/10.1111/aman.12890.Full Text
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Blanchard, Jessica W., Gloria Tallbull, Chantelle Wolpert, Jill Powell, Morris W. Foster, and Charmaine Royal. “Barriers and Strategies Related to Qualitative Research on Genetic Ancestry Testing in Indigenous Communities.” Journal of Empirical Research on Human Research Ethics : Jerhre 12, no. 3 (July 2017): 169–79. https://doi.org/10.1177/1556264617704542.Full Text
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Treadwell, M. J., J. Makani, K. Ohene-Frempong, S. Ofori-Acquah, S. McCurdy, J. De Vries, D. Bukini, et al. “Stakeholder Perspectives on Public Health Genomics Applications for Sickle Cell Disease: A Methodology for a Human Heredity and Health in Africa (H3Africa) Qualitative Research Study.” Omics a Journal of Integrative Biology 21, no. 6 (June 1, 2017): 323–32. https://doi.org/10.1089/omi.2017.0047.Full Text
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Wagner, Jennifer K., Joon-Ho Yu, Jayne O. Ifekwunigwe, Tanya M. Harrell, Michael J. Bamshad, and Charmaine D. Royal. “Anthropologists' views on race, ancestry, and genetics.” American Journal of Physical Anthropology 162, no. 2 (February 2017): 318–27. https://doi.org/10.1002/ajpa.23120.Full Text
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Mulder, N., V. Nembaware, A. Adekile, K. A. Anie, B. Inusa, B. Brown, A. Campbell, et al. “Proceedings of a Sickle Cell Disease Ontology workshop — Towards the first comprehensive ontology for Sickle Cell Disease.” Applied & Translational Genomics 9 (June 2016): 23–29. https://doi.org/10.1016/j.atg.2016.03.005.Full Text
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Bonham, Vence L., Shawneequa L. Callier, and Charmaine D. Royal. “Will Precision Medicine Move Us beyond Race?” The New England Journal of Medicine 374, no. 21 (May 2016): 2003–5. https://doi.org/10.1056/nejmp1511294.Full Text
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Christensen, Kurt D., J Scott Roberts, Peter J. Whitehouse, Charmaine D. M. Royal, Thomas O. Obisesan, L Adrienne Cupples, Jacqueline A. Vernarelli, et al. “Disclosing Pleiotropic Effects During Genetic Risk Assessment for Alzheimer Disease: A Randomized Trial.” Annals of Internal Medicine 164, no. 3 (February 2016): 155–63. https://doi.org/10.7326/m15-0187.Full Text
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1000 Genomes Project Consortium, A., Adam Auton, Lisa D. Brooks, Richard M. Durbin, Erik P. Garrison, Hyun Min Kang, Jan O. Korbel, et al. “A global reference for human genetic variation.” Nature 526, no. 7571 (October 2015): 68–74. https://doi.org/10.1038/nature15393.Full Text
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Green, Robert C., Kurt D. Christensen, L Adrienne Cupples, Norman R. Relkin, Peter J. Whitehouse, Charmaine D. M. Royal, Thomas O. Obisesan, et al. “A randomized noninferiority trial of condensed protocols for genetic risk disclosure of Alzheimer's disease.” Alzheimer’S & Dementia : The Journal of the Alzheimer’S Association 11, no. 10 (October 2015): 1222–30. https://doi.org/10.1016/j.jalz.2014.10.014.Full Text
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Wonkam, Ambroise, Julie Makani, Solomon Ofori-Aquah, Obiageli E. Nnodu, Marsha Treadwell, Charmaine Royal, Kwaku Ohene-Frempong, and Kwaku Members of the H3Africa Consortium. “Sickle cell disease and H3Africa: enhancing genomic research on cardiovascular diseases in African patients.” Cardiovascular Journal of Africa 26, no. 2 Suppl 1 (March 2015): S50–55. https://doi.org/10.5830/cvja-2015-040.Full Text
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Peprah, Emmanuel, Huichun Xu, Fasil Tekola-Ayele, and Charmaine D. Royal. “Genome-wide association studies in Africans and African Americans: expanding the framework of the genomics of human traits and disease.” Public Health Genomics 18, no. 1 (January 2015): 40–51. https://doi.org/10.1159/000367962.Full Text
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Wonkam, Ambroise, Jantina de Vries, Charmaine D. Royal, Raj Ramesar, and Fru F. Angwafo. “Would you terminate a pregnancy affected by sickle cell disease? Analysis of views of patients in Cameroon.” Journal of Medical Ethics 40, no. 9 (September 2014): 615–20. https://doi.org/10.1136/medethics-2013-101392.Full Text
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Colonna, Vincenza, Qasim Ayub, Yuan Chen, Luca Pagani, Pierre Luisi, Marc Pybus, Erik Garrison, et al. “Human genomic regions with exceptionally high levels of population differentiation identified from 911 whole-genome sequences.” Genome Biology 15, no. 6 (June 2014): R88. https://doi.org/10.1186/gb-2014-15-6-r88.Full Text Open Access Copy
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Delaneau, Olivier, Jonathan Marchini, and Jonathan 1000 Genomes Project Consortium. “Integrating sequence and array data to create an improved 1000 Genomes Project haplotype reference panel.” Nature Communications 5 (June 2014): 3934. https://doi.org/10.1038/ncomms4934.Full Text
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Khurana, Ekta, Yao Fu, Vincenza Colonna, Xinmeng Jasmine Mu, Hyun Min Kang, Tuuli Lappalainen, Andrea Sboner, et al. “Integrative annotation of variants from 1092 humans: application to cancer genomics.” Science (New York, N.Y.) 342, no. 6154 (October 2013): 1235587. https://doi.org/10.1126/science.1235587.Full Text
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Daley, Lori-Ann A., Jennifer K. Wagner, Tiffany L. Himmel, Kaitlyn A. McPartland, Sara H. Katsanis, Mark D. Shriver, and Charmaine D. Royal. “Personal DNA testing in college classrooms: perspectives of students and professors.” Genetic Testing and Molecular Biomarkers 17, no. 6 (June 2013): 446–52. https://doi.org/10.1089/gtmb.2012.0404.Full Text Open Access Copy
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1000 Genomes Project Consortium, T., Goncalo R. Abecasis, Adam Auton, Lisa D. Brooks, Mark A. DePristo, Richard M. Durbin, Robert E. Handsaker, Hyun Min Kang, Gabor T. Marth, and Gil A. McVean. “An integrated map of genetic variation from 1,092 human genomes.” Nature 491, no. 7422 (November 2012): 56–65. https://doi.org/10.1038/nature11632.Full Text
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Jonassaint, Charles R., Allison Ashley-Koch, Keith E. Whitfield, Rick H. Hoyle, Laura Smart Richman, Ilene C. Siegler, Charmaine D. Royal, and Redford Williams. “The serotonin transporter gene polymorphism (5HTTLPR) moderates the effect of adolescent environmental conditions on self-esteem in young adulthood: a structural equation modeling approach.” Biol Psychol 91, no. 1 (September 2012): 111–19. https://doi.org/10.1016/j.biopsycho.2012.05.004.Full Text Open Access Copy Link to Item
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Wagner, Jennifer K., and Charmaine D. Royal. “Field of genes: an investigation of sports-related genetic testing.” Journal of Personalized Medicine 2, no. 3 (September 2012): 119–37. https://doi.org/10.3390/jpm2030119.Full Text
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Wagner, Jennifer K., Jill D. Cooper, Rene Sterling, and Charmaine D. Royal. “Tilting at windmills no longer: a data-driven discussion of DTC DNA ancestry tests.” Genetics in Medicine : Official Journal of the American College of Medical Genetics 14, no. 6 (June 2012): 586–93. https://doi.org/10.1038/gim.2011.77.Full Text
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Manswell Butty, Jo-Anne, Finie Richardson, Charles P. Mouton, Charmaine D. M. Royal, Rodney D. Green, and Kerry-Ann Munroe. “Evaluation findings from genetics and family health history community-based workshops for African Americans.” Journal of Community Genetics 3, no. 1 (January 2012): 1–12. https://doi.org/10.1007/s12687-011-0068-7.Full Text
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Akinleye, Ibidapo, J Scott Roberts, Charmaine D. M. Royal, Erin Linnenbringer, Thomas O. Obisesan, Grace-Ann Fasaye, and Robert C. Green. “Differences between African American and White research volunteers in their attitudes, beliefs and knowledge regarding genetic testing for Alzheimer's disease.” Journal of Genetic Counseling 20, no. 6 (December 2011): 650–59. https://doi.org/10.1007/s10897-011-9377-6.Full Text
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Royal, Charmaine D. M. “Genome-sequencing anniversary. My genome, my identity, my health.” Science (New York, N.Y.) 331, no. 6018 (February 2011): 690–91. https://doi.org/10.1126/science.1203123.Full Text
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Royal, Charmaine D., Charles R. Jonassaint, Jude C. Jonassaint, and Laura M. De Castro. “Living with sickle cell disease: traversing 'race' and identity.” Ethn Health 16, no. 4–5 (2011): 389–404. https://doi.org/10.1080/13557858.2011.563283.Full Text Link to Item
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Rusert, Britt M., and Charmaine D. M. Royal. “Grassroots marketing in a global era: more lessons from BiDil.” The Journal of Law, Medicine & Ethics : A Journal of the American Society of Law, Medicine & Ethics 39, no. 1 (January 2011): 79–90. https://doi.org/10.1111/j.1748-720x.2011.00552.x.Full Text
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Jonassaint, Charles R., Jude C. Jonassaint, Michael V. Stanton, Laura M. De Castro, and Charmaine D. Royal. “Clinical and sociodemographic factors predict coping styles among adults with sickle cell disease.” J Natl Med Assoc 102, no. 11 (November 2010): 1045–49. https://doi.org/10.1016/s0027-9684(15)30731-8.Full Text Link to Item
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International HapMap 3 Consortium, Vicky E., David M. Altshuler, Richard A. Gibbs, Leena Peltonen, Emmanouil Dermitzakis, Stephen F. Schaffner, Fuli Yu, et al. “Integrating common and rare genetic variation in diverse human populations.” Nature 467, no. 7311 (September 2010): 52–58. https://doi.org/10.1038/nature09298.Full Text
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Jonassaint, Charles R., Eunice R. Santos, Crystal M. Glover, Perry W. Payne, Grace-Ann Fasaye, Nefertiti Oji-Njideka, Stanley Hooker, et al. “Regional differences in awareness and attitudes regarding genetic testing for disease risk and ancestry.” Human Genetics 128, no. 3 (September 2010): 249–60. https://doi.org/10.1007/s00439-010-0845-0.Full Text
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Sirugo, Giorgio, Scott M. Williams, Charmaine D. M. Royal, Melanie J. Newport, Branwen J. Hennig, Renato Mariani-Costantini, Franco M. Buonaguro, et al. “Report on the 6th African Society of Human Genetics (AfSHG) Meeting, March 12-15, 2009, Yaounde, Cameroon.” The American Journal of Tropical Medicine and Hygiene 83, no. 2 (August 2010): 226–29. https://doi.org/10.4269/ajtmh.2010.10-0208.Full Text
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Royal, Charmaine D., John Novembre, Stephanie M. Fullerton, David B. Goldstein, Jeffrey C. Long, Michael J. Bamshad, and Andrew G. Clark. “Inferring genetic ancestry: opportunities, challenges, and implications.” American Journal of Human Genetics 86, no. 5 (May 2010): 661–73. https://doi.org/10.1016/j.ajhg.2010.03.011.Full Text
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Darity, W., C. Royal, and K. Whitfield. “Race, genetics and health: An introduction.” Review of Black Political Economy 37, no. 1 (January 1, 2010): 1–6. https://doi.org/10.1007/s12114-009-9054-2.Full Text
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Madhere, Serge, Jules Harrell, and Charmaine D. M. Royal. “Social Ecology, Genomics, and African American Health: A Nonlinear Dynamical Perspective.” The Journal of Black Psychology 35, no. 2 (January 2009): 154–79. https://doi.org/10.1177/0095798409333587.Full Text
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Christensen, Kurt D., J Scott Roberts, Charmaine D. M. Royal, Grace-Ann Fasaye, Thomas Obisesan, L Adrienne Cupples, Peter J. Whitehouse, et al. “Incorporating ethnicity into genetic risk assessment for Alzheimer disease: the REVEAL study experience.” Genetics in Medicine : Official Journal of the American College of Medical Genetics 10, no. 3 (March 2008): 207–14. https://doi.org/10.1097/gim.0b013e318164e4cf.Full Text
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Sabeti, Pardis C., Patrick Varilly, Ben Fry, Jason Lohmueller, Elizabeth Hostetter, Chris Cotsapas, Xiaohui Xie, et al. “Genome-wide detection and characterization of positive selection in human populations.” Nature 449, no. 7164 (October 2007): 913–18. https://doi.org/10.1038/nature06250.Full Text
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International HapMap Consortium, Andrea M., Kelly A. Frazer, Dennis G. Ballinger, David R. Cox, David A. Hinds, Laura L. Stuve, Richard A. Gibbs, et al. “A second generation human haplotype map of over 3.1 million SNPs.” Nature 449, no. 7164 (October 2007): 851–61. https://doi.org/10.1038/nature06258.Full Text
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Payne, Perry W., Charmaine Royal, and Sharon L. R. Kardia. “Genetic and social environment interactions and their impact on health policy.” The Journal of the American Academy of Orthopaedic Surgeons 15 Suppl 1 (January 2007): S95–98. https://doi.org/10.5435/00124635-200700001-00020.Full Text
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Rotimi, Charles, Mark Leppert, Ichiro Matsuda, Changqing Zeng, Houcan Zhang, Clement Adebamowo, Ike Ajayi, et al. “Community engagement and informed consent in the International HapMap project.” Community Genetics 10, no. 3 (January 2007): 186–98. https://doi.org/10.1159/000101761.Full Text
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Baffoe-Bonnie, Agnes B., Rick A. Kittles, Elizabeth Gillanders, Liang Ou, Asha George, Christiane Robbins, Chiledum Ahaghotu, et al. “Genome-wide linkage of 77 families from the African American Hereditary Prostate Cancer study (AAHPC).” The Prostate 67, no. 1 (January 2007): 22–31. https://doi.org/10.1002/pros.20456.Full Text
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Payne, Perry W., and Charmaine Royal. “The role of genetic and sociopolitical definitions of race in clinical trials.” The Journal of the American Academy of Orthopaedic Surgeons 15 Suppl 1 (January 2007): S100–104. https://doi.org/10.5435/00124635-200700001-00021.Full Text
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Foster, M. W., C. D. M. Royal, and R. R. Sharp. “The routinisation of genomics and genetics: implications for ethical practices.” Journal of Medical Ethics 32, no. 11 (November 2006): 635–38. https://doi.org/10.1136/jme.2005.013532.Full Text
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Royal, C. D. M. “Ethical implications of ancestry testing and genetic identity.” American Journal of Physical Anthropology, January 1, 2006, 155–155.Link to Item
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Brezo, Jelena, Charmaine Royal, Franklin Ampy, and Verle Headings. “Ethnic identity and type 2 diabetes health attitudes in Americans of African ancestry.” Ethnicity & Disease 16, no. 3 (January 2006): 624–32.
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International HapMap Consortium, Dan. “A haplotype map of the human genome.” Nature 437, no. 7063 (October 2005): 1299–1320. https://doi.org/10.1038/nature04226.Full Text
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Wilson, J. G., C. N. Rotimi, L. Ekunwe, C. D. M. Royal, M. E. Crump, S. B. Wyatt, M. W. Steffes, et al. “Study design for genetic analysis in the Jackson Heart Study.” Ethnicity & Disease 15, no. 4 (September 1, 2005): S30–37.Link to Item
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Wilson, James G., Charles N. Rotimi, Lynette Ekunwe, Charmaine D. M. Royal, Mary E. Crump, Sharon B. Wyatt, Michael W. Steffes, et al. “Study design for genetic analysis in the Jackson Heart Study.” Ethnicity & Disease 15, no. 4 Suppl 6 (January 2005): S6-30–37.
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Keita, S. O. Y., R. A. Kittles, C. D. M. Royal, G. E. Bonney, P. Furbert-Harris, G. M. Dunston, and C. N. Rotimi. “Conceptualizing human variation.” Nature Genetics 36, no. 11 Suppl (November 2004): S17–20. https://doi.org/10.1038/ng1455.Full Text
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Royal, Charmaine D. M., and Georgia M. Dunston. “Changing the paradigm from 'race' to human genome variation.” Nature Genetics 36, no. 11 Suppl (November 2004): S5–7. https://doi.org/10.1038/ng1454.Full Text
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International HapMap Consortium, Rafick-Pierre. “Integrating ethics and science in the International HapMap Project.” Nature Reviews. Genetics 5, no. 6 (June 2004): 467–75. https://doi.org/10.1038/nrg1351.Full Text
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Ahaghotu, C., A. Baffoe-Bonnie, R. Kittles, C. Pettaway, I. Powell, C. Royal, H. Wang, et al. “Clinical characteristics of African-American men with hereditary prostate cancer: the AAHPC Study.” Prostate Cancer and Prostatic Diseases 7, no. 2 (January 2004): 165–69. https://doi.org/10.1038/sj.pcan.4500719.Full Text
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International HapMap Consortium, E. “The International HapMap Project.” Nature 426, no. 6968 (December 2003): 789–96. https://doi.org/10.1038/nature02168.Full Text
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Weinrich, Sally P., Louise Faison-Smith, Julie Hudson-Priest, Charmaine Royal, and Isaac Powell. “Stability of self-reported family history of prostate cancer among African American men.” Journal of Nursing Measurement 10, no. 1 (March 2002): 39–46. https://doi.org/10.1891/jnum.10.1.39.52547.Full Text
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Weinrich, Sally, Charmaine Royal, Curtis A. Pettaway, Georgia Dunston, Louise Faison-Smith, Julie Hudson Priest, Pamela Roberson-Smith, et al. “Interest in genetic prostate cancer susceptibility testing among african American men.” Cancer Nursing 25, no. 1 (February 2002): 28–34. https://doi.org/10.1097/00002820-200202000-00007.Full Text
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Powell, I. J., J. Carpten, G. Dunston, R. Kittles, J. Bennett, G. Hoke, C. Pettaway, et al. “African-American heredity prostate cancer study: a model for genetic research.” Journal of the National Medical Association 93, no. 12 Suppl (December 2001): 25S-28S.
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Powell, I. J., J. Carpten, G. Dunston, R. Kittles, J. Bennett, G. Hoke, C. Pettaway, et al. “African-American heredity prostate cancer study: a model for genetic research.” Journal of the National Medical Association 93, no. 4 (April 2001): 120–23.
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Ellison, G. L., A. L. Coker, J. R. Hebert, S. M. Sanderson, C. D. Royal, and S. P. Weinrich. “Psychosocial stress and prostate cancer: a theoretical model.” Ethnicity & Disease 11, no. 3 (January 2001): 484–95.
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Royal, C., A. Baffoe-Bonnie, R. Kittles, I. Powell, J. Bennett, G. Hoke, C. Pettaway, et al. “Recruitment experience in the first phase of the African American Hereditary Prostate Cancer (AAHPC) study.” Annals of Epidemiology 10, no. 8 Suppl (November 2000): S68–77. https://doi.org/10.1016/s1047-2797(00)00194-0.Full Text
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Royal, C. D., V. E. Headings, J. P. Harrell, F. R. Ampy, and G. W. Hall. “Coping strategies in families of children with sickle cell disease.” Ethnicity & Disease 10, no. 2 (March 2000): 237–47.
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Royal, C. D., V. E. Headings, E. T. Molnar, and F. R. Ampy. “Resilience in siblings of children with sickle cell disease.” Journal of Genetic Counseling 4, no. 3 (September 1995): 199–217. https://doi.org/10.1007/bf01408410.Full Text
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Book Sections
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Royal, C. D. M., and K. FitzGerald. “Race, Genetics, and Ethics.” In African American Bioethics: Culture, Race, and Identity, edited by Edmund D. Pellegrino, 137–52. Georgetown University Press, 2007.
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Royal, C. D. M., and G. Dunston. “The Human Genome: Implications for the Health of African Americans.” In Praeger Handbook of Black American Health, edited by Ivor Lensworth Livingston, 757–75. Praeger Publishers, 2004.
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Royal, C. D. M., and R. Kittles. “The Genetics of African Americans: Implications for Disease Gene Mapping and Identity.” In Genetic Nature/Culture: Anthropology and Science beyond the Two-Culture Divide, edited by Alan H. Goodman, Deborah Heath, and M Susan Lindee. Univ of California Press, 2003.
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Conference Papers
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Dula, Annette, Charmaine Royal, and Marian Gray Secundy. “The ethical and social implications of exploring African American genealogies.” In Developing World Bioethics, 3:133–41, 2003. https://doi.org/10.1046/j.1471-8731.2003.00069.x.Full Text
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- Teaching & Mentoring
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Recent Courses
- AAAS 261D: Race, Genomics, and Society 2023
- BIOLOGY 261D: Race, Genomics, and Society 2023
- CULANTH 261D: Race, Genomics, and Society 2023
- GLHLTH 258D: Race, Genomics, and Society 2023
- SCISOC 258D: Race, Genomics, and Society 2023
- VMS 274D: Race, Genomics, and Society 2023
- AAAS 660: Health in the African Diaspora 2022
- CULANTH 660: Health in the African Diaspora 2022
- EHD 396T: Bass Connections Education & Human Development Research Team 2022
- EHD 796T: Bass Connections Education & Human Development Research Team 2022
- GLHLTH 672: Health in the African Diaspora 2022
- POE 105: Spring Breakthrough 2022
- UNIV 101D: Let's Talk About Race 2022
- AAAS 261D: Race, Genomics, and Society 2021
- AAAS 496: Distinction Program Sequence 2021
- AAAS 660: Health in the African Diaspora 2021
- BIOLOGY 261D: Race, Genomics, and Society 2021
- CULANTH 261D: Race, Genomics, and Society 2021
- CULANTH 660: Health in the African Diaspora 2021
- EHD 395T: Bass Connections Education & Human Development Research Team 2021
- EHD 795T: Bass Connections Education & Human Development Research Team 2021
- GLHLTH 258D: Race, Genomics, and Society 2021
- GLHLTH 672: Health in the African Diaspora 2021
- SCISOC 258D: Race, Genomics, and Society 2021
- UNIV 101: Invention and Consequences of Race 2021
- VMS 274D: Race, Genomics, and Society 2021
- Scholarly, Clinical, & Service Activities
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Presentations & Appearances
- Ethics in Sickle Cell Disease Prenatal Testing and Paternity. Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia (CAREST). Kingston, Jamaica. January 2016 2016
- Race in Science and Medicine. Public Responsibility in Medicine & Research (PRIM&R) Advancing Ethical Research Conference. Baltimore, MD. December 2014 2014
- Genomics, Ancestry, and Identity. Darwin Seminar. University of Cape Town. Cape Town, South Africa. October 2013 2013
- Genetic and Genomic Ancestry Inference. Bioethics Grand Rounds, Baylor College of Medicine. Houston, TX. April 2013 2013
- (Re) Conceptualizing Identity and Kinship: Insights from genetic ancestry testing. Claiming Kin. 9th Annual MU Life Sciences and Society Symposium. University of Missouri – Columbia. Columbia, MO. March 2013 2013
- Returning Genomic Research Results. Human Heredity and Health in Africa (H3Africa) Consortium Meeting. Addis Ababa, Ethiopia. October 1, 2012 2012
- Running with the Trait: ethical and societal implications of mandatory testing of athletes for sickle cell trait. ”. 31st Annual Education Conference of the National Society of Genetic Counselors. Boston, MA. October 1, 2012 2012
- Toward Precision Medicine: Building a Knowledge Network for Biomedical Research and a New Taxonomy of Disease. 14th Annual Meeting of the American Society for Bioethics and Humanities. Washington, DC. October 1, 2012 2012
- Precision Medicine. Meeting of the Standing Committee on Use of Emerging Science for Environmental Health Decisions. Washington, DC. April 1, 2012 2012
- Ethical Issues in Conducting Genetic and Genomic Research in Peoples of African Descent. Genetics of the Peoples of Africa and the Transatlantic African Diaspora. UNC - Chapel Hill, NC. March 1, 2012 2012
- Sickle Cell Disease. Preconception Peer Education Spring Update. North Carolina Division of Public Health. Greensboro, NC. March 1, 2012 2012
- Genomic Research on Sickle Cell Disease: ethical and societal implications in the U.S.. NIH Workshop on Genomic Approaches for Studying Sickle Cell Disease. San Diego, CA. December 1, 2011 2011
- Lessons from BiDil. Novartis Institutes of Biomedical Research. Boston, MA. May 1, 2011 2011
- Race, Genetics, and Health: implications for research and medical practice. Race, Genetics, Medicine and Health Disparities Symposium. Wake Forest University, NC. March 2011 2011
- Implications of the American Society of Human Genetics (ASHG) Ancestry Inference Report. 6th International Conference on Genetic Genealogy. Houston, TX. October 2010 2010
- Ethical and Social Issues in Sickle Cell Counseling. Framing the Research Agenda for Sickle Cell Trait Workshop. National Institutes of Health, Bethesda, MD. June 2010 2010
- Genomics and Health Disparities: Ethical and Social Considerations. 8th Annual Disparities in Health in America Workshop. University of Texas M.D. Anderson Cancer Center, Bethesda, MD. June 2010 2010
- Race and Human Genetic Variation. Environmental Protection Agency (EPA) Symposium on the Science of Disproportionate Environmental Health Impacts. Bethesda MD. March 2010 2010
- Genetic Ancestry Testing: Troubling Concepts of Race and Identity. 2009-2010 Colloquium Series, The University of New Mexico. Albuquerque, NM. November 2009 2009
- Engagement, Informed Consent and Benefit Sharing. Frontiers Meeting - Genetic Diversity in Health and Disease in African Populations. Yaounde, Cameroon. March 2009 2009
- Genetics, Genomics, and Ancestry: Implications for Social Identity and Social Justice. Fisher Center Lecture Series, Hobart and William Smith Colleges. Geneva, NY. April 2008 2008
- Genomic Ancestry Testing: Probing Notions of Identity and Kinship. Annual Meeting of the American Society of Human Genetics, Presidential Symposium. San Diego, CA. October 2007 2007
- Identity and identification in Genomic/Genetic Studies of Common Diseases. Genomics of Common Diseases Conference. Hinxton, UK. July 2007 2007
- Genes, Environment, and Human Variation: Does ‘race’ have a place?. Race, Human Variation, and Disease Conference, American Anthropological Association RACE Project. March 2007 2007
- Genetic Ancestry Testing in African Americans: Cure for the identity crisis?. Sawyer Seminar, Duke University. February 2007 2007
- Genomics and Personalized Medicine: what’s “race” got to do with it?. Annual Convention of the National Medical Association. August 2006 2006
- Ethical Implications of Ancestry Testing and Genetic Identity. 75th Annual Meeting of the American Association of Physical Anthropologists. March 2006 2006
- Alternatives to Using ‘Race’ as a Population Descriptor in Research. 55th Annual Meeting of the American Society of Human Genetics. October 2005 2005
- Ethical, Legal, and Social Issues in Genomic Research and Medicine. Eliminating Health Disparities in Mississippi: From Research to Action. Jackson State University. October 2005 2005
- HapMap Nigeria: Engaging the Yoruba in Aba-Alamu. 8th Annual Meeting of the American Society for Bioethics and Humanities. October 2005 2005
- The Illusion of Inclusion. FDA Hearing on the Approval of BiDil. June 2005 2005
- Ethical, Legal, and Social Implications of Human Genetics/Genomic Research. Annual Black Health Professional Meeting. May 2005 2005
- Race, Genomics, and Health. Rock Ethics Institute, The Pennsylvania State University. April 2005 2005
- Bioethics and Genetics: A Case of and for Symbiosis. Joint Meeting of the Southern African Society of Human Genetics and the African Society of Human Genetics. March 2005 2005
- Emerging Issues in Population Genomics. Arizona State University. October 2004 2004
- Genomic Medicine at Bedside: Privacy and Confidentiality of Genetic Information. Annual Meeting of the Association of Academic Minority Physicians. October 2004 2004
- The Ethical, Legal, and Social Implications of ‘Race'. 54th Annual Meeting of the American Society of Human Genetics. October 2004 2004
- Ethical, Legal, and Social Implications of Genomic Research and Medicine. 102nd Annual Convention and Scientific Assembly of the National Medical Association. August 2004 2004
- Informed Consent for Research in Minority Communities. AAAS Minority Science Writers Workshop. August 2004 2004
- HapMap in Nigeria: The Community Engagement Process. The International HapMap Consortium Meeting. May 2004 2004
- Ethical, Legal, and Social Implications of Human Genomic/Genetics Research. Joint Center for Political and Economic Studies. November 2003 2003
- Genes and Race: Implications for the Future of Clinical Research/Practice. Johns Hopkins University Greenwall Fellowship Program. Washington DC. May 2003 2003
- Race/Ethnicity and Genetics in the Newborn Screening Context. Ethical Issues in Newborn Screening. Hastings Center Meeting. Baltimore, MD. October 2002 2002
- Human Genome Research & Cultural Competence. National Medical Association Annual Convention and Scientific Assembly. Honolulu HI. August 2002 2002
- Ethics and African American Genealogy. Powderhorn/Phillips Cultural Wellness Center- African Genealogy & Genetics: Looking Back to Move Forward. Minneapolis MN. June 2002 2002
- Ethical, Legal and Social Issues of the Human Genome Project. Zeta Phi Beta Sorority, Inc., Beta Theta Zeta Chapter’s Human Genome Conference. Norfolk, VA. April 2002 2002
- Genetics Research and Communities of Color: The Good, the Bad and the Ugly. West Harlem Environmental Action’s conference on Human Genetics, Environment, and Communities of Color: Ethical and Social Implications. New York, NY. February 2002 2002
- Health Disparities and Human Genome Research. Zeta Phi Beta Sorority National Educational Foundation - Human Genome Project Conference. Washington, DC. November 2001 2001
- People of Color as Partners and Leaders in Human Genome Research. 4th Annual Meeting of the American Society for Bioethics and Humanities. Nashville TN. November 2001 2001
- Human Genome Research and Cultural Competence. National Medical Association Planning Meeting. Honolulu, HI. October 2001 2001
- Health Disparities: How Should the Black World Respond?. Racism and the Black World Response Symposium. Nova Scotia, Canada. August 2001 2001
- Ethics and Special Populations Research. FAES (Foundation for Advanced Education in the Sciences) Medical Genetics Course, National Human Genome Research Institute, National Institutes of Health. Bethesda, MD. March 2001 2001
- Human Genome Project and Its Implications for African Americans. 26th Annual NAFEO (National Association for Equal Opportunity in Higher Education) Conference. Washington, DC. March 2001 2001
- Participating in Genetic Research. Second Annual National Human Genome Research Institute Consumer Day, National Institutes of Health. Bethesda, MD. November 2000 2000
- Risks and Benefits of Participating in Genetics Research. First Community Consultation on the Responsible Collection and Use of Samples for Genetic Research, National Institutes of Health. Bethesda, MD. September 2000 2000
- Societal Perspectives on Advances in Genetic Research and Technologies. Third National Conference on Genetics and Public Health. Ann Arbor, MI. September 2000 2000
- Ethics. National Human Genome Research Institute Genomics Short Course, National Institutes of Health. Bethesda, MD. August 2000 2000
- The Human Genome Project: Legal Implications for Diverse Populations. National Association of Women Judges Conference: Bioethical Issues and Judging. Washington, DC. March 2000 2000
- Ethical Considerations in the Era of the ‘New Genetics’. Planned Parenthood Visioning Leadership Conference: Voyage to 2025. Marco Island, FL. January 2000 2000
- African American Perspectives on Issues of Genetics Research and Testing. Second National Conference on Genetics and Disease Prevention. Baltimore, MD. December 1999 1999
- Group Rights in Genetic Research: What Can That Mean and How Do We Respond. 2nd Annual Meeting of the American Society for Bioethics and Humanities. Philadelphia, PA. October 1999 1999
- SES, Health Disparities, and Genetic Susceptibility. Concept Forum on SES and Health Disparities, National Institutes of Health. Bethesda, MD. March 1999 1999
- Involvement of African Americans in Human Genetics Research. Workshop on Anthropology, Genetic Diversity, and Ethics. Milwaukee, WI. February 1999 1999
- Coping Strategies in Families of Children with Sickle Cell Disease. 48th Annual Meeting of the American Society of Human Genetics. Denver CO. October 1998 1998
- Ethical Issues in Genetic Studies. Howard University Cancer Center Prostate Cancer Symposium. Bethesda, MD. September 1998 1998
- Ethical, Legal, and Social Implications of the Human Genome Project. Cleft-Palate/Craniofacial Association Meeting. Baltimore, MD. April 1998 1998
- Inclusion of Ethnic/Racial Minorities in Bio-Medical Research: Benefits, Risks and Challenges. National Dialogue on Genetics. College Park, MD. March 1998 1998
- Human Genome Project: Ethical and Social Issues. National Institutes of Health Mini-Med School. Washington, DC. October 1997 1997
- Implications of Cystic Fibrosis Testing in African Americans. Genetic Testing for Cystic Fibrosis Consensus Development Conference Follow-up Workshop. Bethesda, MD. October 1997 1997
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Outreach & Engaged Scholarship
- Bass Connections Team Leader. Movement through Racial Healing and Justice. 2021 - 2022 2021 - 2022
- Bass Connections Faculty Team Member. Integrative Global Health Research on Sickle Cell Disease . August 2015 - May 2016 2015 - 2016
- Bass Connections Faculty Team Member. Integrative Global Health Research on Sickle Cell Disease. August 2014 - May 2015 2014 - 2015
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Service to the Profession
- Course Director. Faculty Curriculum on Anti-Racism. Duke Office of Faculty Advancement. January 11, 2021 - January 14, 2021 2021
- Data Access Committee. African Partnership for Chronic Disease Research. 2014 2014
- Editorial Board. Ethnicity and Health. 2013 2013
- Advisory Committee. Underrepresented Minority Postdoctoral Enrichment Program, Burroughs Wellcome Fund . 2012 - 2015 2012 - 2015
- Genome Exhibition Advisory Board. National Human Genome Research Institute and National Museum of Natural History. 2012 2012
- Independent Expert Committee. Human Heredity and Health in Africa (H3Africa) Program. National Institutes of Health and the Wellcome Trust Genome Exhibition Advisory Board, National Human Genome Research Institute and National Museum of Natural History. 2012 2012
- Board of Directors. Public Responsibility in Medicine and Research (PRIM&R). 2011 - 2012 2011 - 2012
- Data and Safety Monitoring Board/Observational Study Monitoring Board (DSMB/OSMB). National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), NIH. 2011 2011
- Expert Panel. Grand Challenges in Genomics for Public Health in Developing Countries (Grand Challenges) Project. World Health Organization. 2011 2011
- International Scientific Advisory Board (ISAB). Kenya Medical Research Institute (KEMRI)-Wellcome Trust Research Programme. 2011 - 2014 2011 - 2014
- Vice-Chair : Worldwide Initiative on Social Studies of Haemoglobinopathies. 2011 - 2011 2011
- Vice-Chair. Worldwide Initiative on Social Studies of Haemoglobinopathies. 2011 2011
- Committee on Framework for Developing a New Taxonomy of Disease. National Research Council, National Academies. 2010 - 2012 2010 - 2012
- Communicable Diseases Working Group. Human Heredity and Health in Africa (H3Africa) Program, National Institutes of Health and the Wellcome Trust. 2010 - 2012 2010 - 2012
- ELSI and Samples Working Group. 1000 Genomes Project, National Human Genome Research Institute (NHGRI), NIH. 2010 2010
- Ethics Advisory Board. Jackson Heart Study, National Heart Lung and Blood Institute, NIH. 2010 2010
- Medical Genetics Working Group. National Center for Biotechnology Information, NIH. 2010 2010
- Steering Committee. Co-Chair, Patient Centered Care Collaboration to Improve Minority Health, Office of Minority Health, DHHS. 2010 - 2013 2010 - 2013
- Steering Committee. Registry and Surveillance System for Hemoglobinopathies (RuSH), Centers for Disease Control and Prevention and National Heart, Lung, and Blood Institute. 2010 - 2015 2010 - 2015
- Advisory Committee. Genetics for Social and Behavioral Science Researchers Initiative, Office of Behavioral and Social Sciences Research, NIH. 2009 - 2013 2009 - 2013
- Diversity and Minority Inclusion Work Group. Genomic Medicine Program, US Department of Veterans Affairs . 2009 - 2014 2009 - 2014
- Genomic Data Sharing Task Force, Chair. Secretary's Advisory Committee on Genetics, Health, and Society, DHHS. 2009 - 2010 2009 - 2010
- Nominating Committee. American Society of Human Genetics. 2009 - 2010 2009 - 2010
- Social Issues Committee. Chair, Social Issues Committee, American Society of Human Genetics. 2009 - 2011 2009 - 2011
- Task Force on Genetic Ancestry and Ancestry Testing. American Society of Human Genetics . 2008 - 2010 2008 - 2010
- Advisory Committee to the NIH Director’s Working Group on Participant and Data Protection for the Genetic Association Information Network (GAIN). NIH. 2007 - 2010 2007 - 2010
- Social Issues Committee. American Society of Human Genetics. 2006 - 2012 2006 - 2012
- Advisory Committee on Genetics, Race, and Health Care. National Coalition for Health Professional Education in Genetics. 2005 - 2010 2005 - 2010
- Editorial Board. The American Journal of Bioethics. 2005 - 2015 2005 - 2015
- Genetics and Genealogy Working Group. Harvard University. 2005 - 2015 2005 - 2015
- African American Accrual Advisory Board. GlaxoSmithKline. 2003 - 2007 2003 - 2007
- Ethics Committee. African Society of Human Genetics. 2003 2003
- Bioethics Advisory Committee. March of Dimes Foundation. 2002 2002
- Advisory Committee. Genome Minority Outreach Video for Inclusive Education, National Human Genome Research Institute, NIH. 2001 - 2002 2001 - 2002
- Board of Directors. Genetic Alliance. 2001 - 2002 2001 - 2002
- Community Issues Subcommittee. Pharmacogenomics Network Steering Committee, National Institute of General Medical Sciences, NIH. 2001 - 2002 2001 - 2002
- Cultural Competency Advisory Committee. National Medical Association. 2001 - 2006 2001 - 2006
- ELSI and Methods Working Groups. International Haplotype Map Project, National Human Genome Research Institute, NIH . 2001 - 2003 2001 - 2003
- Planning Committee. 4th Annual Meeting, American Society for Bioethics and Humanities . 2001 2001
- Diversity and Cultural Competence Working Group. National Coalition for Health Professional Education in Genetics. 2000 - 2005 2000 - 2005
- Bioethics Education Materials and Resources Subcommittee. NIH . 1998 - 1999 1998 - 1999
- Institutional Review Board. National Human Genome Research Institute, NIH. 1998 - 2000 1998 - 2000
- Steering Committee. African American Hereditary Prostate Cancer Study Network. 1998 - 2003 1998 - 2003
- Diverse Populations Working Group. National Human Genome Research Institute, NIH. 1997 - 1998 1997 - 1998
- GenEthics Consortium Steering Committee. 1997 - 1998 1997 - 1998
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Service to Duke
- Associate Director. Graduate Studies, African & African American Studies . 2016 2016
- Chair. Curriculum Committee. African & African American Studies . 2015 2015
- Director. Science & Society Certificate Program. Trinity College of Arts and Sciences. 2015 2015
- Faculty Diversity Task Force Diversity Implementation Committee. 2015 - 2016 2015 - 2016
- Faculty Governance Committee. Duke Initiative for Science and Society. 2015 2015
- Spring Break Course Committee. 2015 2015
- Admissions Committee. MD-MS CTSA Scholars Program, School of Medicine. 2014 2014
- Graduate Studies Committee. African & African American Studies . 2014 2014
- Search Committee for Dean of Arts and Sciences. 2014 - 2015 2014 - 2015
- Admissions Committee. MA in Bioethics & Science Policy, Duke Initiative for Science and Society . 2013 2013
- Faculty Council. MA in Bioethics & Science Policy, Duke Initiative for Science and Society . 2013 2013
- Faculty Director. Reginaldo Howard Memorial Scholarship Program, Office of Undergraduate Scholars and Fellows . 2012 2012
- Joint faculty position for the Department of Cultural Anthropology and the Institute for Genome Sciences & Policy. Search Committee. 2012 2012
- Arts and Sciences Council. Representative for the Department of African & African American Studies . 2011 - 2014 2011 - 2014
- Center for African and African American Research. Cultural Competence in Healthcare Program Committee. 2011 - 2015 2011 - 2015
- Curriculum Committee. Institute for Genome Sciences & Policy. 2011 - 2014 2011 - 2014
- Difference Working Group. Franklin Humanities Institute and Office of Institutional Equity. 2011 - 2012 2011 - 2012
- Faculty Nominating Committee. Institute for Genome Sciences & Policy. 2011 - 2014 2011 - 2014
- IRB Reviewer. Institute for Genome Sciences & Policy. 2011 - 2014 2011 - 2014
- Advisory Board Member. Center for the Study of Race, Ethnicity and Gender in the Social Sciences (REGSS). 2009 - 2014 2009 - 2014
Some information on this profile has been compiled automatically from Duke databases and external sources. (Our About page explains how this works.) If you see a problem with the information, please write to Scholars@Duke and let us know. We will reply promptly.
