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Charmaine DM Royal

Robert O. Keohane Professor of African & African American Studies
African & African American Studies
Duke Box 90252, Durham, NC 27708
234 Friedl Bldg, Box 90252, Durham, NC 27708-0141
Office hours By appointment  

Selected Presentations & Appearances


Ethics in Sickle Cell Disease Prenatal Testing and Paternity - Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia (CAREST) · January 2016 Broadcast Appearance Kingston, Jamaica,
Race in Science and Medicine - Public Responsibility in Medicine & Research (PRIM&R) Advancing Ethical Research Conference · December 2014 Lecture Baltimore, MD,
Genomics, Ancestry, and Identity - Darwin Seminar · October 2013 Lecture University of Cape Town. Cape Town, South Africa,
Genetic and Genomic Ancestry Inference - Bioethics Grand Rounds, Baylor College of Medicine · April 2013 Lecture Houston, TX,
(Re) Conceptualizing Identity and Kinship: Insights from genetic ancestry testing - Claiming Kin. 9th Annual MU Life Sciences and Society Symposium · March 2013 Invited Talk University of Missouri – Columbia. Columbia, MO,
Ethics in Sickle Cell Disease Prenatal Testing and Paternity - Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia (CAREST) · January 2016 Broadcast Appearance Kingston, Jamaica,
Race in Science and Medicine - Public Responsibility in Medicine & Research (PRIM&R) Advancing Ethical Research Conference · December 2014 Lecture Baltimore, MD,
Genomics, Ancestry, and Identity - Darwin Seminar · October 2013 Lecture University of Cape Town. Cape Town, South Africa,
Genetic and Genomic Ancestry Inference - Bioethics Grand Rounds, Baylor College of Medicine · April 2013 Lecture Houston, TX,
(Re) Conceptualizing Identity and Kinship: Insights from genetic ancestry testing - Claiming Kin. 9th Annual MU Life Sciences and Society Symposium · March 2013 Invited Talk University of Missouri – Columbia. Columbia, MO,
Returning Genomic Research Results - Human Heredity and Health in Africa (H3Africa) Consortium Meeting · October 1, 2012 Lecture Addis Ababa, Ethiopia,

Invited Lectures ; Human Heredity and Health in Africa (H3Africa) Consortium Meeting

Toward Precision Medicine: Building a Knowledge Network for Biomedical Research and a New Taxonomy of Disease - 14th Annual Meeting of the American Society for Bioethics and Humanities · October 1, 2012 Lecture Washington, DC,

Invited Lectures ; 14th Annual Meeting of the American Society for Bioethics and Humanities

Running with the Trait: ethical and societal implications of mandatory testing of athletes for sickle cell trait - ”. 31st Annual Education Conference of the National Society of Genetic Counselors · October 1, 2012 Lecture Boston, MA,

Invited Lectures ; Charmaine Royal ; 31st Annual Education Conference of the National Society of Genetic Counselors

Precision Medicine - Meeting of the Standing Committee on Use of Emerging Science for Environmental Health Decisions · April 1, 2012 Lecture Washington, DC,

Invited Lectures ; Meeting of the Standing Committee on Use of Emerging Science for Environmental Health Decisions. National Academies.

Ethical Issues in Conducting Genetic and Genomic Research in Peoples of African Descent - Genetics of the Peoples of Africa and the Transatlantic African Diaspora · March 1, 2012 Lecture UNC - Chapel Hill, NC,

Invited Lectures ; Genetics of the Peoples of Africa and the Transatlantic African Diaspora.

Sickle Cell Disease - Preconception Peer Education Spring Update. North Carolina Division of Public Health · March 1, 2012 Lecture Greensboro, NC,

Invited Lectures ; Preconception Peer Education Spring Update. North Carolina Division of Public Health.

Genomic Research on Sickle Cell Disease: ethical and societal implications in the U.S. - NIH Workshop on Genomic Approaches for Studying Sickle Cell Disease · December 1, 2011 Lecture San Diego, CA,

Invited Lectures ; NIH Workshop on Genomic Approaches for Studying Sickle Cell Disease.

Lessons from BiDil - Novartis Institutes of Biomedical Research · May 1, 2011 Lecture Boston, MA,

Invited Lectures ; Health Equity Symposium. Novartis Institutes of Biomedical Research.

Race, Genetics, and Health: implications for research and medical practice - Race, Genetics, Medicine and Health Disparities Symposium · March 2011 Lecture Wake Forest University, NC,

Invited Lectures ; Race, Genetics, Medicine and Health Disparities Symposium.

Implications of the American Society of Human Genetics (ASHG) Ancestry Inference Report - 6th International Conference on Genetic Genealogy · October 2010 Lecture Houston, TX,
Ethical and Social Issues in Sickle Cell Counseling - Framing the Research Agenda for Sickle Cell Trait Workshop · June 2010 Invited Talk National Institutes of Health, Bethesda, MD,
Genomics and Health Disparities: Ethical and Social Considerations - 8th Annual Disparities in Health in America Workshop · June 2010 Lecture University of Texas M.D. Anderson Cancer Center, Bethesda, MD,
Race and Human Genetic Variation - Environmental Protection Agency (EPA) Symposium on the Science of Disproportionate Environmental Health Impacts · March 2010 Invited Talk Bethesda MD,
Genetic Ancestry Testing: Troubling Concepts of Race and Identity - 2009-2010 Colloquium Series, The University of New Mexico · November 2009 Invited Talk Albuquerque, NM,
Engagement, Informed Consent and Benefit Sharing - Frontiers Meeting - Genetic Diversity in Health and Disease in African Populations · March 2009 Invited Talk Yaounde, Cameroon,
Genetics, Genomics, and Ancestry: Implications for Social Identity and Social Justice - Fisher Center Lecture Series, Hobart and William Smith Colleges · April 2008 Invited Talk Geneva, NY,
Genomic Ancestry Testing: Probing Notions of Identity and Kinship - Annual Meeting of the American Society of Human Genetics, Presidential Symposium · October 2007 Invited Talk San Diego, CA,
Identity and identification in Genomic/Genetic Studies of Common Diseases - Genomics of Common Diseases Conference · July 2007 Invited Talk Hinxton, UK,
Genes, Environment, and Human Variation: Does ‘race’ have a place? - Race, Human Variation, and Disease Conference, American Anthropological Association RACE Project · March 2007 Invited Talk Airlie, VA
Genetic Ancestry Testing in African Americans: Cure for the identity crisis? - Sawyer Seminar, Duke University · February 2007 Lecture Durham, NC
Genomics and Personalized Medicine: what’s “race” got to do with it? - Annual Convention of the National Medical Association · August 2006 Invited Talk Dallas, TX
Ethical Implications of Ancestry Testing and Genetic Identity - 75th Annual Meeting of the American Association of Physical Anthropologists · March 2006 Invited Talk Anchorage, AK
Ethical, Legal, and Social Issues in Genomic Research and Medicine - Eliminating Health Disparities in Mississippi: From Research to Action · October 2005 Invited Talk Jackson State University, Jackson, MS
Alternatives to Using ‘Race’ as a Population Descriptor in Research - 55th Annual Meeting of the American Society of Human Genetics · October 2005 Invited Talk Salt Lake City, UT
HapMap Nigeria: Engaging the Yoruba in Aba-Alamu - 8th Annual Meeting of the American Society for Bioethics and Humanities · October 2005 Invited Talk Washington, DC
The Illusion of Inclusion - FDA Hearing on the Approval of BiDil · June 2005 Invited Talk Washington, DC
Ethical, Legal, and Social Implications of Human Genetics/Genomic Research - Annual Black Health Professional Meeting · May 2005 Invited Talk Biloxi, MS
Race, Genomics, and Health - Rock Ethics Institute, The Pennsylvania State University · April 2005 Invited Talk University Park, PA
Bioethics and Genetics: A Case of and for Symbiosis - Joint Meeting of the Southern African Society of Human Genetics and the African Society of Human Genetics · March 2005 Lecture Muldersdrift, South Africa
Genomic Medicine at Bedside: Privacy and Confidentiality of Genetic Information - Annual Meeting of the Association of Academic Minority Physicians · October 2004 Invited Talk Crystal City, VA
The Ethical, Legal, and Social Implications of ‘Race' - 54th Annual Meeting of the American Society of Human Genetics · October 2004 Invited Talk Toronto, Canada
Emerging Issues in Population Genomics - Arizona State University · October 2004 Invited Talk Tempe, AZ
Informed Consent for Research in Minority Communities - AAAS Minority Science Writers Workshop · August 2004 Invited Talk Washington, DC
Ethical, Legal, and Social Implications of Genomic Research and Medicine - 102nd Annual Convention and Scientific Assembly of the National Medical Association · August 2004 Invited Talk San Diego, CA
HapMap in Nigeria: The Community Engagement Process - The International HapMap Consortium Meeting · May 2004 Invited Talk Cold Spring Harbor, NY
Ethical, Legal, and Social Implications of Human Genomic/Genetics Research - Joint Center for Political and Economic Studies · November 2003 Invited Talk Washington, DC
Genes and Race: Implications for the Future of Clinical Research/Practice - Johns Hopkins University Greenwall Fellowship Program · May 2003 Lecture Washington DC,
Race/Ethnicity and Genetics in the Newborn Screening Context - Ethical Issues in Newborn Screening. Hastings Center Meeting · October 2002 Lecture Baltimore, MD,
Human Genome Research & Cultural Competence - National Medical Association Annual Convention and Scientific Assembly · August 2002 Lecture Honolulu HI,
Ethics and African American Genealogy - Powderhorn/Phillips Cultural Wellness Center- African Genealogy & Genetics: Looking Back to Move Forward · June 2002 Lecture Minneapolis MN,
Ethical, Legal and Social Issues of the Human Genome Project - Zeta Phi Beta Sorority, Inc., Beta Theta Zeta Chapter’s Human Genome Conference · April 2002 Lecture Norfolk, VA,
Genetics Research and Communities of Color: The Good, the Bad and the Ugly - West Harlem Environmental Action’s conference on Human Genetics, Environment, and Communities of Color: Ethical and Social Implications · February 2002 Lecture New York, NY,
People of Color as Partners and Leaders in Human Genome Research - 4th Annual Meeting of the American Society for Bioethics and Humanities · November 2001 Lecture Nashville TN,
Health Disparities and Human Genome Research - Zeta Phi Beta Sorority National Educational Foundation - Human Genome Project Conference · November 2001 Lecture Washington, DC,
Human Genome Research and Cultural Competence - National Medical Association Planning Meeting · October 2001 Lecture Honolulu, HI,
Health Disparities: How Should the Black World Respond? - Racism and the Black World Response Symposium · August 2001 Lecture Nova Scotia, Canada,
Human Genome Project and Its Implications for African Americans - 26th Annual NAFEO (National Association for Equal Opportunity in Higher Education) Conference · March 2001 Lecture Washington, DC,
Ethics and Special Populations Research - FAES (Foundation for Advanced Education in the Sciences) Medical Genetics Course, National Human Genome Research Institute, National Institutes of Health · March 2001 Lecture Bethesda, MD,
Participating in Genetic Research - Second Annual National Human Genome Research Institute Consumer Day, National Institutes of Health · November 2000 Lecture Bethesda, MD,
Societal Perspectives on Advances in Genetic Research and Technologies - Third National Conference on Genetics and Public Health · September 2000 Lecture Ann Arbor, MI,
Risks and Benefits of Participating in Genetics Research - First Community Consultation on the Responsible Collection and Use of Samples for Genetic Research, National Institutes of Health · September 2000 Lecture Bethesda, MD,
Ethics - National Human Genome Research Institute Genomics Short Course, National Institutes of Health · August 2000 Lecture Bethesda, MD,
The Human Genome Project: Legal Implications for Diverse Populations - National Association of Women Judges Conference: Bioethical Issues and Judging · March 2000 Lecture Washington, DC,
Ethical Considerations in the Era of the ‘New Genetics’ - Planned Parenthood Visioning Leadership Conference: Voyage to 2025 · January 2000 Lecture Marco Island, FL,
African American Perspectives on Issues of Genetics Research and Testing - Second National Conference on Genetics and Disease Prevention · December 1999 Lecture Baltimore, MD,
Group Rights in Genetic Research: What Can That Mean and How Do We Respond - 2nd Annual Meeting of the American Society for Bioethics and Humanities · October 1999 Lecture Philadelphia, PA,
SES, Health Disparities, and Genetic Susceptibility - Concept Forum on SES and Health Disparities, National Institutes of Health · March 1999 Lecture Bethesda, MD,
Involvement of African Americans in Human Genetics Research - Workshop on Anthropology, Genetic Diversity, and Ethics · February 1999 Lecture Milwaukee, WI,
Coping Strategies in Families of Children with Sickle Cell Disease - 48th Annual Meeting of the American Society of Human Genetics · October 1998 Lecture Denver CO,
Ethical Issues in Genetic Studies - Howard University Cancer Center Prostate Cancer Symposium · September 1998 Lecture Bethesda, MD,
Ethical, Legal, and Social Implications of the Human Genome Project - Cleft-Palate/Craniofacial Association Meeting · April 1998 Lecture Baltimore, MD,
Inclusion of Ethnic/Racial Minorities in Bio-Medical Research: Benefits, Risks and Challenges - National Dialogue on Genetics · March 1998 Lecture College Park, MD,
Implications of Cystic Fibrosis Testing in African Americans - Genetic Testing for Cystic Fibrosis Consensus Development Conference Follow-up Workshop · October 1997 Lecture Bethesda, MD,
Human Genome Project: Ethical and Social Issues - National Institutes of Health Mini-Med School · October 1997 Lecture Washington, DC,

Outreach & Engaged Scholarship


Bass Connections Team Leader - Movement through Racial Healing and Justice · 2021 - 2022 Projects & Field Work Education & Human Development
Bass Connections Faculty Team Member - Integrative Global Health Research on Sickle Cell Disease · August 2015 - May 2016 Projects & Field Work flag Jamaica
Bass Connections Faculty Team Member - Integrative Global Health Research on Sickle Cell Disease · August 2014 - May 2015 Projects & Field Work flag Cameroon

Service to the Profession


Course Director - Faculty Curriculum on Anti-Racism · January 11, 2021 - January 14, 2021 Professional Development Duke Office of Faculty Advancement,
Data Access Committee - African Partnership for Chronic Disease Research · 2014 Committee Service The Wellcome Trust Sanger Institute
Editorial Board - Ethnicity and Health · 2013 Committee Service
Independent Expert Committee - Human Heredity and Health in Africa (H3Africa) Program · 2012 Committee Service National Institutes of Health and the Wellcome Trust Genome Exhibition Advisory Board, National Human Genome Research Institute and National Museum of Natural History,
Advisory Committee · 2012 - 2015 Committee Service Underrepresented Minority Postdoctoral Enrichment Program, Burroughs Wellcome Fund ,
Course Director - Faculty Curriculum on Anti-Racism · January 11, 2021 - January 14, 2021 Professional Development Duke Office of Faculty Advancement,
Data Access Committee - African Partnership for Chronic Disease Research · 2014 Committee Service The Wellcome Trust Sanger Institute
Editorial Board - Ethnicity and Health · 2013 Committee Service
Independent Expert Committee - Human Heredity and Health in Africa (H3Africa) Program · 2012 Committee Service National Institutes of Health and the Wellcome Trust Genome Exhibition Advisory Board, National Human Genome Research Institute and National Museum of Natural History,
Advisory Committee · 2012 - 2015 Committee Service Underrepresented Minority Postdoctoral Enrichment Program, Burroughs Wellcome Fund ,
Genome Exhibition Advisory Board · 2012 Committee Service National Human Genome Research Institute and National Museum of Natural History,
Board of Directors · 2011 - 2012 Committee Service Public Responsibility in Medicine and Research (PRIM&R),
Vice-Chair : Worldwide Initiative on Social Studies of Haemoglobinopathies · 2011 - 2011 Editorial Activities
Expert Panel - Grand Challenges in Genomics for Public Health in Developing Countries (Grand Challenges) Project · 2011 Committee Service World Health Organization,
Data and Safety Monitoring Board/Observational Study Monitoring Board (DSMB/OSMB) · 2011 Committee Service National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), NIH,
International Scientific Advisory Board (ISAB) · 2011 - 2014 Committee Service Kenya Medical Research Institute (KEMRI)-Wellcome Trust Research Programme,
Vice-Chair · 2011 Committee Service Worldwide Initiative on Social Studies of Haemoglobinopathies,
Steering Committee - Co-Chair, Patient Centered Care Collaboration to Improve Minority Health, Office of Minority Health, DHHS · 2010 - 2013 Committee Service
Medical Genetics Working Group · 2010 Committee Service National Center for Biotechnology Information, NIH,
Communicable Diseases Working Group · 2010 - 2012 Committee Service Human Heredity and Health in Africa (H3Africa) Program, National Institutes of Health and the Wellcome Trust,
Steering Committee · 2010 - 2015 Committee Service Registry and Surveillance System for Hemoglobinopathies (RuSH), Centers for Disease Control and Prevention and National Heart, Lung, and Blood Institute,
ELSI and Samples Working Group · 2010 Committee Service 1000 Genomes Project, National Human Genome Research Institute (NHGRI), NIH,
Ethics Advisory Board · 2010 Committee Service Jackson Heart Study, National Heart Lung and Blood Institute, NIH,
Committee on Framework for Developing a New Taxonomy of Disease · 2010 - 2012 Committee Service National Research Council, National Academies,
Diversity and Minority Inclusion Work Group · 2009 - 2014 Committee Service Genomic Medicine Program, US Department of Veterans Affairs ,
Genomic Data Sharing Task Force, Chair · 2009 - 2010 Committee Service Secretary's Advisory Committee on Genetics, Health, and Society, DHHS,
Social Issues Committee · 2009 - 2011 Committee Service Chair, Social Issues Committee, American Society of Human Genetics,
Nominating Committee · 2009 - 2010 Committee Service American Society of Human Genetics,
Advisory Committee · 2009 - 2013 Committee Service Genetics for Social and Behavioral Science Researchers Initiative, Office of Behavioral and Social Sciences Research, NIH,
Task Force on Genetic Ancestry and Ancestry Testing · 2008 - 2010 Committee Service American Society of Human Genetics ,
Advisory Committee to the NIH Director’s Working Group on Participant and Data Protection for the Genetic Association Information Network (GAIN) · 2007 - 2010 Committee Service NIH,
Social Issues Committee · 2006 - 2012 Committee Service American Society of Human Genetics,
Genetics and Genealogy Working Group · 2005 - 2015 Committee Service Harvard University,
Editorial Board · 2005 - 2015 Committee Service The American Journal of Bioethics,
Advisory Committee on Genetics, Race, and Health Care · 2005 - 2010 Committee Service National Coalition for Health Professional Education in Genetics,
African American Accrual Advisory Board · 2003 - 2007 Committee Service GlaxoSmithKline,
Ethics Committee - African Society of Human Genetics · 2003 Committee Service
Bioethics Advisory Committee - March of Dimes Foundation · 2002 Committee Service
Board of Directors - Genetic Alliance · 2001 - 2002 Committee Service
Planning Committee - 4th Annual Meeting, American Society for Bioethics and Humanities · 2001 Committee Service
Community Issues Subcommittee - Pharmacogenomics Network Steering Committee, National Institute of General Medical Sciences, NIH · 2001 - 2002 Committee Service
Advisory Committee - Genome Minority Outreach Video for Inclusive Education, National Human Genome Research Institute, NIH · 2001 - 2002 Committee Service
ELSI and Methods Working Groups - International Haplotype Map Project, National Human Genome Research Institute, NIH · 2001 - 2003 Committee Service
Cultural Competency Advisory Committee - National Medical Association · 2001 - 2006 Committee Service
Diversity and Cultural Competence Working Group - National Coalition for Health Professional Education in Genetics · 2000 - 2005 Committee Service
Institutional Review Board - National Human Genome Research Institute, NIH · 1998 - 2000 Committee Service
Steering Committee - African American Hereditary Prostate Cancer Study Network · 1998 - 2003 Committee Service
Bioethics Education Materials and Resources Subcommittee - NIH · 1998 - 1999 Committee Service
GenEthics Consortium Steering Committee · 1997 - 1998 Other
Diverse Populations Working Group - National Human Genome Research Institute, NIH · 1997 - 1998 Other

Service to Duke


Associate Director . Graduate Studies, African & African American Studies · 2016 Other
Faculty Diversity Task Force Diversity Implementation Committee (University) · 2015 - 2016 Committee Service
Spring Break Course Committee (University) · 2015 Committee Service
Director . Science & Society Certificate Program · 2015 Other Trinity College of Arts and Sciences,
Chair . Curriculum Committee · 2015 Event/Organization Administration African & African American Studies ,
Associate Director . Graduate Studies, African & African American Studies · 2016 Other
Faculty Diversity Task Force Diversity Implementation Committee (University) · 2015 - 2016 Committee Service
Spring Break Course Committee (University) · 2015 Committee Service
Director . Science & Society Certificate Program · 2015 Other Trinity College of Arts and Sciences,
Chair . Curriculum Committee · 2015 Event/Organization Administration African & African American Studies ,
Faculty Governance Committee · 2015 Other Duke Initiative for Science and Society,
Graduate Studies Committee · 2014 Other African & African American Studies ,
Search Committee for Dean of Arts and Sciences (University) · 2014 - 2015 Committee Service
Admissions Committee · 2014 Other MD-MS CTSA Scholars Program, School of Medicine,
Admissions Committee · 2013 Other MA in Bioethics & Science Policy, Duke Initiative for Science and Society ,
Faculty Council · 2013 Other MA in Bioethics & Science Policy, Duke Initiative for Science and Society ,
Faculty Director . Reginaldo Howard Memorial Scholarship Program, Office of Undergraduate Scholars and Fellows · 2012 Other
Search Committee (University) · 2012 Committee Service Joint faculty position for the Department of Cultural Anthropology and the Institute for Genome Sciences & Policy,
IRB Reviewer . Institute for Genome Sciences & Policy · 2011 - 2014 Other
Faculty Nominating Committee . Institute for Genome Sciences & Policy · 2011 - 2014 Other
Cultural Competence in Healthcare Program Committee (University) · 2011 - 2015 Committee Service Center for African and African American Research,
Curriculum Committee . Institute for Genome Sciences & Policy · 2011 - 2014 Other
Arts and Sciences Council . Representative for the Department of African & African American Studies · 2011 - 2014 Other
Difference Working Group . Franklin Humanities Institute and Office of Institutional Equity · 2011 - 2012 Consulting
Advisory Board Member . Center for the Study of Race, Ethnicity and Gender in the Social Sciences (REGSS) · 2009 - 2014 Other