Scholars@Duke
Sharron Lee Docherty

Sharron Lee Docherty

Associate Professor in the School of Nursing
School of Nursing
doche002@mc.duke.edu
DUMC 3322, Durham, NC 27710
307 Trent Drive, 4112 Christine Siegler Pearson Building, Durham, NC 27710

Selected Publications

A Hybrid Pragmatic and Factorial Cluster Randomized Controlled Trial for an Anti-racist, Multilevel Intervention to Improve Mental Health Equity in High Schools.

Journal Article Prevention science : the official journal of the Society for Prevention Research · July 2024 Systemic racism is pervasive in US society and disproportionately limits opportunities for education, work, and health for historically marginalized and minoritized racial and ethnic groups, making it an urgent issue of social justice. Because systemic rac ... Full text Cite

Feasibility and acceptability of measuring positivity resonance in nurse-patient telehealth videoconferencing visits: A mixed-methods observational study.

Journal Article J Clin Nurs · July 2024 AIM: To investigate the feasibility and acceptability of the training process, procedures, measures and recruitment strategies necessary for a future investigation to test the reliability and validity of using positivity resonance measures in health care e ... Full text Link to item Cite

Transition of Intensive Care Unit Patients and Their Families to Home After Acute Hospital Care.

Journal Article AACN Adv Crit Care · June 15, 2024 Patients in the intensive care unit (ICU) increasingly are expected to eventually return home after acute hospital care. Yet transitional care for ICU patients and their families is often delayed until the patient is about to be transferred to another loca ... Full text Link to item Cite

Racial Differences in Shared Decision-Making About Critical Illness.

Journal Article JAMA Intern Med · April 1, 2024 IMPORTANCE: Shared decision-making is the preferred method for evaluating complex tradeoffs in the care of patients with critical illness. However, it remains unknown whether critical care clinicians engage diverse patients and caregivers equitably in shar ... Full text Link to item Cite

Mobile Application-Based Communication Facilitation Platform for Family Members of Critically Ill Patients: A Randomized Clinical Trial.

Journal Article JAMA Netw Open · January 2, 2024 IMPORTANCE: Unmet and racially disparate palliative care needs are common in intensive care unit (ICU) settings. OBJECTIVE: To test the effect of a primary palliative care intervention vs usual care control both overall and by family member race. DESIGN, S ... Full text Link to item Cite

Perinatal loss in Tanzania: Perspectives of maternal-child healthcare providers.

Journal Article PLOS Glob Public Health · 2024 Over 98% of stillbirths and neonatal deaths occur in Low- and Middle-Income Countries, such as Tanzania. Despite the profound burden of perinatal loss in these regions, access to facility or community-based palliative and psychosocial care is poor and unde ... Full text Link to item Cite

Distinct morning and evening fatigue profiles in gastrointestinal cancer during chemotherapy.

Journal Article BMJ Support Palliat Care · December 7, 2023 BACKGROUND: Purposes were to identify subgroups of patients with gastrointestinal cancers with distinct morning and evening fatigue severity profiles and evaluate for differences among these subgroups in demographic and clinical characteristics, co-occurri ... Full text Link to item Cite

Challenges and coping between parents in shared decision-making for children with complex, life-threatening conditions: A qualitative content analysis.

Journal Article Journal of pediatric nursing · November 2023 Background & purposeRelatively little is known about the parents' challenges and coping in making decisions for children with complex, life-threatening conditions. Therefore, this secondary analysis aimed to explore the challenges and coping betwe ... Full text Cite

Child and family factors associated with positive outcomes among youth born extremely preterm.

Journal Article Pediatric research · July 2023 BackgroundTo analyze the relationship of child behavioral and communication disorders, and adverse family events, to later-in-life child health and cognitive function among youth born extremely preterm.MethodsThe study participants were 6 ... Full text Cite

Impact of primary care usual provider type and provider interdependence on outcomes for patients with diabetes: a cohort study.

Conference BMJ Open Qual · June 2023 BACKGROUND: Interprofessional primary care (PC) teams are key to the provision of high-quality care. PC providers often 'share' patients (eg, a patient may see multiple providers in the same clinic), resulting in between-visit interdependence between provi ... Full text Link to item Cite

Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions.

Journal Article Journal of child health care : for professionals working with children in the hospital and community · June 2023 Parents of children born with complex life-threatening chronic conditions (CLTCs) experience an uncertain trajectory that requires critical decision making. Along this trajectory, hope plays an influential but largely unexplored role; therefore, this quali ... Full text Cite

MyKidneyCoach, Patient Activation, and Clinical Outcomes in Diverse Kidney Transplant Recipients: A Randomized Control Pilot Trial.

Journal Article Transplant Direct · April 2023 UNLABELLED: Kidney transplant (KT) recipients who are not actively engaged in their care and lack self-management skills have poor transplant outcomes, which are disproportionately observed among Black KT recipients. This pilot study aimed to determine whe ... Full text Link to item Cite

Pediatric Goals of Care Communication: A Socioecological Model to Guide Conversations.

Journal Article Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · February 2023 The purpose of this article is to explore factors that influence pediatric patients and their parents during provider-led goals-of-care conversations. Our framework can help providers enhance holistic communication by approaching difficult topics (ie, qual ... Full text Cite

Trajectories of Palliative Care Needs in the ICU and Long-Term Psychological Distress Symptoms.

Journal Article Crit Care Med · January 1, 2023 OBJECTIVES: While palliative care needs are assumed to improve during ICU care, few empiric data exist on need trajectories or their impact on long-term outcomes. We aimed to describe trajectories of palliative care needs during ICU care and to determine i ... Full text Link to item Cite

When is caring sharing? Primary care provider interdependence and continuity of care.

Journal Article JAAPA · January 1, 2023 Efforts to improve access to high-quality, efficient primary care have highlighted the need for team-based care. Most primary care teams are designed to maintain continuity of care between patients and primary care providers (PCPs), because continuity of c ... Full text Link to item Cite

Caregiver Perspectives on Telemedicine for Postdischarge Care for Children With Medical Complexity: A Qualitative Study.

Journal Article J Pediatr Health Care · 2023 INTRODUCTION: The objectives of this study were to describe the perspectives of caregivers of children with medical complexity on telemedicine video visits (TMVV) for posthospitalization care and determine whether TMVV may be a viable alternative to in-per ... Full text Link to item Cite

Identification of high-risk symptom cluster burden group among midlife peri-menopausal and post-menopausal women with metabolic syndrome using latent class growth analysis.

Journal Article Women's health (London, England) · January 2023 BackgroundMidlife peri-menopausal and post-menopausal women with metabolic syndrome experience multiple co-occurring symptoms or symptom clusters, which often result in significant symptom cluster burden. While they are a high-risk symptom burden ... Full text Cite

The Concept of Double Protection in the Childhood Cancer Context.

Journal Article Cancer nursing · December 2022 BackgroundThe concept of double protection is used to describe communication avoidance used by parents and their child or adolescents with cancer in attempts to protect the other against disease-related stress and emotions, resulting from communic ... Full text Cite

Clinical Application of a Peer Coaching Intervention to Enhance Self-Management for Adolescents and Young Adults With Inflammatory Bowel Disease.

Journal Article Clin Pract Pediatr Psychol · December 2022 OBJECTIVE: The purpose of this article is to characterize the current evidence base related to peer support interventions for adolescents and young adults (AYAs) with inflammatory bowel disease (IBD) and to describe a peer support program to enhance self-m ... Full text Link to item Cite

Palliative care phenotypes among critically ill patients and family members: intensive care unit prospective cohort study.

Journal Article BMJ Support Palliat Care · September 27, 2022 OBJECTIVE: Because the heterogeneity of patients in intensive care units (ICUs) and family members represents a challenge to palliative care delivery, we aimed to determine if distinct phenotypes of palliative care needs exist. METHODS: Prospective cohort ... Full text Link to item Cite

Exploring Nurse and Patient Experiences of Developing Rapport During Oncology Ambulatory Care Videoconferencing Visits: Qualitative Descriptive Study.

Journal Article J Med Internet Res · September 8, 2022 BACKGROUND: Although videoconferencing between oncology patients and nurses became routine during the pandemic, little is known about the development of clinician-patient rapport in this care environment. Evidence that virtual visits may challenge nurses' ... Full text Link to item Cite

Identification of Symptom Clusters Among Midlife Menopausal Women with Metabolic Syndrome.

Journal Article Western journal of nursing research · September 2022 The aim of this study was to identify and compare symptom clusters in midlife menopausal women with and without metabolic syndrome based on symptom occurrence and severity dimension through secondary data analysis of the Study of Women's Health Across the ... Full text Cite

Caregivers' perception of the role of the socio-environment on their extremely preterm child's well-being.

Journal Article Journal of pediatric nursing · September 2022 PurposeThe purpose of this qualitative descriptive study was to explore primary caregivers' perception of how social-environmental characteristics, and their own role as primary caregivers, affected their extremely preterm adolescent's well-being. ... Full text Cite

Health Behavior Profiles Among Midlife Women: Identifying At-Risk Subgroups for Metabolic Syndrome Using Latent Class Analysis.

Journal Article Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · August 2022 BackgroundMetabolic syndrome is known as a lifestyle disease that results from poor health behaviors. Yet, little is known about the subgroups of midlife women with distinct health behavior profiles who are at risk for developing metabolic syndrom ... Full text Cite

Symptom Clusters and Key Symptoms Among Midlife Perimenopausal and Postmenopausal Women With and Without Metabolic Syndrome.

Journal Article Nursing research · July 2022 BackgroundMidlife perimenopausal and postmenopausal women with metabolic syndrome experience multiple symptoms concurrently.ObjectiveThe study objectives were to examine the relationship among symptoms through network visualization and id ... Full text Cite

The Psychological Impact of the COVID-19 Pandemic on Postsecondary Students: An Analysis of Self-Determination.

Journal Article International journal of environmental research and public health · July 2022 The COVID-19 pandemic has put postsecondary students across the world at risk of psychological distress, negatively impacting their basic psychological well-being, including self-determination. Although the concept of self-determination has been widely dis ... Full text Open Access Cite

Family members' experience of well-being as racial/ethnic minorities raising a child with a neurodevelopmental disorder: A qualitative meta-synthesis.

Journal Article Research in nursing & health · June 2022 Raising a child with a neurodevelopmental disorder has often been associated with poorer quality of life and family functioning. Yet, many family members describe themselves as resilient and capable of achieving well-being. Whether and how this occurs in r ... Full text Cite

Distinct Sleep Disturbance Profiles in Patients With Gastrointestinal Cancers Receiving Chemotherapy.

Journal Article Cancer Nurs · March 2022 BACKGROUND: Patients with gastrointestinal cancers experience moderate to high levels of sleep disturbance during chemotherapy that decreases their functional status and quality of life (QOL). OBJECTIVE: The objectives of this study were to identify subgro ... Full text Link to item Cite

Review and Evaluation of mHealth Apps in Solid Organ Transplantation: Past, Present, and Future.

Journal Article Transplant Direct · March 2022 UNLABELLED: With the rapid and widespread expansion of smartphone availability and usage, mobile health (mHealth) has become a viable multipurpose treatment medium for the US healthcare system. METHODS: The purpose of this review is to identify posttranspl ... Full text Link to item Cite

Teaming up in primary care: Membership boundaries, interdependence, and coordination.

Journal Article JAAPA · February 1, 2022 OBJECTIVE: Increased demand for quality primary care and value-based payment has prompted interest in implementing primary care teams. Evidence-based recommendations for implementing teams will be critical to successful PA participation. This study sought ... Full text Link to item Cite

Assessment of Clinical Palliative Care Trigger Status vs Actual Needs Among Critically Ill Patients and Their Family Members.

Journal Article JAMA Netw Open · January 4, 2022 IMPORTANCE: Palliative care consultations in intensive care units (ICUs) are increasingly prompted by clinical characteristics associated with mortality or resource utilization. However, it is not known whether these triggers reflect actual palliative care ... Full text Link to item Cite

Feasibility of Post-hospitalization Telemedicine Video Visits for Children With Medical Complexity.

Journal Article J Pediatr Health Care · 2022 OBJECTIVES: To evaluate feasibility and acceptability of post-hospitalization telemedicine video visits (TMVV) during hospital-to-home transitions for children with medical complexity (CMC); and explore associations with hospital utilization, caregiver sel ... Full text Open Access Link to item Cite

Are there differences in symptoms experienced by midlife climacteric women with and without metabolic syndrome? A scoping review.

Journal Article Women's health (London, England) · January 2022 IntroductionMidlife climacteric women with metabolic syndrome are at high risk for experiencing a complex array of symptoms. The aim of this scoping review was to identify the prevalence, types, and clustering of symptoms in midlife climacteric wo ... Full text Cite

Evaluation of a Quality Improvement Intervention to Improve Pediatric Palliative Care Consultation Processes.

Journal Article Am J Hosp Palliat Care · December 2021 BACKGROUND: A critical aspect of pediatric palliative care consultations is the assessment and documentation of patient and family needs. While these assessments usually include a focus on physical pain, there is less standardization of assessments of othe ... Full text Link to item Cite

Multiple Roles of Parental Caregivers of Children with Complex Life-Threatening Conditions: A Qualitative Descriptive Analysis.

Journal Article Journal of pediatric nursing · November 2021 PurposeChildren born with Complex Life-Threatening Conditions (CLTCs) often require complex and specialized services. Parents of children with CLTCs balance the role of caregiver with other responsibilities of employment, education, relationships, ... Full text Cite

Who is coordinating pediatric concurrent hospice care?

Journal Article Journal of pain and symptom management · November 2021 Full text Cite

Distinct profiles of multiple co-occurring symptoms in patients with gastrointestinal cancers receiving chemotherapy.

Journal Article Support Care Cancer · August 2021 PURPOSE: Identify subgroups of gastrointestinal (GI) cancer patients with distinct multiple co-occurring symptom profiles and evaluate for differences among these subgroups in demographic and clinical characteristics and quality of life (QOL) outcomes. MET ... Full text Link to item Cite

Seriously ill pediatric patient, parent, and clinician perspectives on visualizing symptom data.

Journal Article J Am Med Inform Assoc · July 14, 2021 OBJECTIVE: This study examined the perspectives on the use of data visualizations and identified key features seriously ill children, their parents, and clinicians prefer to see when visualizing symptom data obtained from mobile health technologies (an App ... Full text Link to item Cite

Human Flourishing in Adolescents with Cancer: Experiences of Pediatric Oncology Health Care Professionals.

Journal Article Journal of pediatric nursing · July 2021 PurposeThis study explores human flourishing (HF) in adolescents with cancer (AC) as witnessed by their health care providers, and it develops a list of critical attributes associated with HF to describe the positive outcomes witnessed.Design ... Full text Cite

Symptom Monitoring in Children With Life-Threatening Illness: A Feasibility Study Using mHealth.

Journal Article ANS Adv Nurs Sci · July 2021 Children with life-threatening illness (C-LTI) experience considerable symptom distress. Mobile technology may offer opportunities to better obtain symptom data that will lead to better symptom management. A mixed-methods study was conducted to explore the ... Full text Link to item Cite

A Conceptual Framework of Data Readiness: The Contextual Intersection of Quality, Availability, Interoperability, and Provenance.

Journal Article Applied clinical informatics · May 2021 BackgroundData readiness is a concept often used when referring to health information technology applications in the informatics disciplines, but it is not clearly defined in the literature. To avoid misinterpretations in research and implementati ... Full text Cite

Improving racial disparities in unmet palliative care needs among intensive care unit family members with a needs-targeted app intervention: The ICUconnect randomized clinical trial.

Journal Article Contemp Clin Trials · April 2021 INTRODUCTION: The technologies used to treat the millions who receive care in intensive care unit (ICUs) each year have steadily advanced. However, the quality of ICU-based communication has remained suboptimal, particularly concerning for Black patients a ... Full text Link to item Cite

Inpatient Unit Leaders' Perspectives on Parent Engagement in Neonatal and Pediatric Intensive Care: A Secondary, Qualitative Analysis.

Journal Article Advances in neonatal care : official journal of the National Association of Neonatal Nurses · February 2021 BackgroundHospital unit leaders help set the unit's priorities and are responsible for guiding the unit mission and philosophy of care; however, the perspective of leaders in facilitating parent engagement within intensive care units is limited. Full text Cite

Symptom experience and self-management for multiple co-occurring symptoms in patients with gastric cancer: A qualitative study.

Journal Article Eur J Oncol Nurs · December 2020 PURPOSE: Patients with gastric cancer experience an increased symptom burden with multiple co-occurring symptoms. Knowledge of patients' symptom experiences and self-management for these symptoms is limited. The purpose of this study was to describe multip ... Full text Link to item Cite

Operationalizing needs-focused palliative care for older adults in intensive care units: Design of and rationale for the PCplanner randomized clinical trial.

Journal Article Contemp Clin Trials · November 2020 INTRODUCTION: The number of older adults who receive life support in an intensive care unit (ICU), now 2 million per year, is increasing while survival remains unchanged. Because the quality of ICU-based palliative care is highly variable, we developed a m ... Full text Link to item Cite

Communication Challenges in Korean Families Coping With Adolescent Cancer.

Journal Article Oncology nursing forum · November 2020 PurposeTo examine the family communication experience of Korean adolescents with cancer and their parents, including how adolescents and their parents verbally share feelings and concerns related to the adolescent's cancer diagnosis with one anoth ... Full text Cite

Adaptive Leadership in Parents Caring for their Children Born with Life-Threatening Conditions.

Journal Article Journal of pediatric nursing · July 2020 PurposeThe purpose of this study was to chronicle the adaptive challenges and adaptive work, including emerging leadership behaviors, recounted over time by the parents of very young children diagnosed before birth with life threatening conditions ... Full text Cite

Beyond Resilience: A Concept Analysis of Human Flourishing in Adolescents and Young Adults With Cancer.

Journal Article ANS. Advances in nursing science · April 2020 This article explores the concept of human flourishing in the context of adolescents and young adults with cancer, using Rodgers' Evolutionary Concept Analysis method. We describe flourishing in adolescents and young adults with cancer experience as a cont ... Full text Cite

The need for a Serious Illness Digital Ecosystem (SIDE) to improve outcomes for patients receiving palliative and hospice care.

Journal Article Am J Manag Care · April 2020 Palliative and hospice care services produce immense benefits for patients living with serious illness and for their families. Due to the national shift toward value-based payment models, health systems and payers share a heightened awareness of the need t ... Full text Open Access Link to item Cite

Common and Co-Occurring Symptoms Experienced by Patients With Gastric Cancer.

Journal Article Oncol Nurs Forum · March 1, 2020 PROBLEM IDENTIFICATION: Patients with gastric cancer experience multiple disease- and treatment-related symptoms. The purpose of this review was to describe the common and co-occurring symptoms experienced by patients with gastric cancer. LITERATURE SEARCH ... Full text Link to item Cite

Adolescent/Young Adult Perspectives of a Therapeutic Music Video Intervention to Improve Resilience During Hematopoietic Stem Cell Transplant for Cancer.

Journal Article Journal of music therapy · February 2020 This empirical phenomenology study reports adolescents/young adults (AYA) experiences of the therapeutic music video (TMV) intervention arm of a randomized controlled clinical trial (Children's Oncology Group; COG-ANUR0631; R01 NR008583) during hospitaliza ... Full text Cite

Mobile Health Technology for Pediatric Symptom Monitoring: A Feasibility Study.

Journal Article Nurs Res · 2020 BACKGROUND: Pediatric blood and marrow transplant (PBMT) patients experience significant symptom distress. Mobile health (mHealth) technologies can be leveraged to improve understanding of the patient's symptom experience by providing continuous, real-time ... Full text Link to item Cite

User-Centered App Design for Acutely Ill Children and Adolescents.

Journal Article J Pediatr Oncol Nurs · 2020 Background and Objectives: The high level of acceptance and consistent use of smartphones by children and adolescents present new opportunities to monitor and collect health data. For acutely ill children and adolescents, collecting symptom data via smartp ... Full text Link to item Cite

Identifying Individuals With Intellectual Disability Within a Population Study.

Journal Article Nurs Res · 2020 BACKGROUND: Much remains unknown about the longitudinal health and well-being of individuals with intellectual disability (ID); thus, new methods to identify those with ID within nationally representative population studies are critical for harnessing thes ... Full text Link to item Cite

Neurologic Outcome after Prematurity: Perspectives of Parents and Clinicians

Journal Article Obstetrical and Gynecological Survey · December 1, 2019 Full text Cite

"It's Almost Like Gay Sex Doesn't Exist:" Parent-Child Sex Communication According to Gay, Bisexual, and Queer Adolescent Sons.

Journal Article J Adolesc Res · September 1, 2019 Sex communication interventions facilitate positive sexual health outcomes with heterosexual adolescents. The same has yet to be established for male youth with same-sex attractions, behaviors, and identities. Our study describes the experiences of gay, bi ... Full text Link to item Cite

Precision health: Advancing symptom and self-management science.

Journal Article Nursing outlook · July 2019 BackgroundPrecision health considers individual lifestyle, genetics, behaviors, and environment context and facilitates interventions aimed at helping individuals achieve well-being and optimal health.PurposeTo present the Nursing Science ... Full text Cite

Neurologic Outcome After Prematurity: Perspectives of Parents and Clinicians.

Journal Article Pediatrics · July 2019 BACKGROUND: Parents and clinicians caring for premature infants face high-stakes and time-sensitive decisions about care. We aimed to characterize how parents and clinicians discuss outcome in the context of decision-making for premature infants. METHODS: ... Full text Link to item Cite

Ways of knowing in precision health.

Journal Article Nursing outlook · July 2019 Precision health can provide an avenue to bridge and integrate ways of knowing for research and practice. Nurse scientists have a long-standing interest in using multiple sources of information to address research questions of significance to the professio ... Full text Cite

Parent-child communication in a childhood cancer context: A literature review

Journal Article Pediatric Nursing · May 1, 2019 This integrative literature review examines the facilitators and barriers to open and clear parent-child communication in the context of childhood cancer (for this literature review, child refers to ages 0 to 19 years). The Resilience in Illness Model (Haa ... Cite

Improving recruitment and retention of adolescents and young adults with cancer in randomized controlled clinical trials.

Journal Article International journal of adolescent medicine and health · April 2019 Participation of adolescents and young adults (AYAs) with cancer in randomized clinical trials (RCTs) is necessary to advance treatments and psychosocial programs. Exploring AYAs experiences in an RCT will inform strategies to support recruitment and reten ... Full text Cite

Parent perceptions of the impact of the Paediatric Intensive Care environment on delivery of family-centred care.

Journal Article Intensive & critical care nursing · February 2019 ObjectivesTo examine parent perception of how the physical and cultural environment of the paediatric intensive care unit impacted the implementation of family-centred care as outlined by the Institute for Patient and Family Centered Care.Rese ... Full text Cite

Transition to adult care in sickle cell disease: A longitudinal study of clinical characteristics and disease severity.

Journal Article Pediatr Blood Cancer · January 2019 BACKGROUND: Sickle cell disease (SCD) is a chronic blood disorder in which mortality has increased for adolescents and young adults (AYA). PROCEDURE: A longitudinal analysis of medical records was conducted to describe the clinical course among AYAs (ages ... Full text Link to item Cite

Health Care Transition for Adolescent and Young Adults with Intellectual Disability: Views from the Parents.

Journal Article J Pediatr Nurs · 2019 PURPOSE: This study explored the health care transition (HCT) experiences of parents of adolescents and young adults (AYAs) with intellectual disability (ID), 18-33 years of age, including barriers and facilitators to the AYA's transition to adulthood with ... Full text Link to item Cite

Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: a qualitative study.

Journal Article BMC palliative care · September 2018 BackgroundMedical advances have led to new challenges in decision-making for parents of seriously ill children. Many parents say religion and spirituality (R&S) influence their decisions, but the mechanism and outcomes of this influence are unknow ... Full text Cite

Biomarkers as Common Data Elements for Symptom and Self-Management Science.

Journal Article Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · May 2018 PurposeBiomarkers as common data elements (CDEs) are important for the characterization of biobehavioral symptoms given that once a biologic moderator or mediator is identified, biologically based strategies can be investigated for treatment effor ... Full text Cite

Black Mothers Living With HIV Picture the Social Determinants of Health.

Journal Article The Journal of the Association of Nurses in AIDS Care : JANAC · March 2018 The purpose of our study was to explore the social determinants of health for Black mothers living with HIV in the southeastern region of the United States. In this exploratory study, we used qualitative methods of in-depth interviewing and photo elicitati ... Full text Cite

Palliative Care Planner: A Pilot Study to Evaluate Acceptability and Usability of an Electronic Health Records System-integrated, Needs-targeted App Platform.

Journal Article Ann Am Thorac Soc · January 2018 RATIONALE: The quality and patient-centeredness of intensive care unit (ICU)-based palliative care delivery is highly variable. OBJECTIVE: To develop and pilot an app platform for clinicians and ICU patients and their family members that enhances the deliv ... Full text Link to item Cite

ERRATA

Journal Article Journal of Nursing Scholarship · November 2017 Full text Cite

Stories and Music for Adolescent/Young Adult Resilience During Transplant Partnerships: Strategies to Support Academic-Clinical Nurse Collaborations in Behavioral Intervention Studies.

Journal Article Clinical nurse specialist CNS · July 2017 Evidence-based nursing is in the forefront of healthcare delivery systems. Federal and state agencies, academic institutions, and healthcare delivery systems recognize the importance of nursing research. This article describes the mechanisms that facilitat ... Full text Cite

Feasibility of Combining Common Data Elements Across Studies to Test a Hypothesis.

Journal Article Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · May 2017 PurposeThe purpose of this article is to describe the outcomes of a collaborative initiative to share data across five schools of nursing in order to evaluate the feasibility of collecting common data elements (CDEs) and developing a common data r ... Full text Cite

Capturing the Social Location of African American Mothers Living With HIV: An Inquiry Into How Social Determinants of Health Are Framed.

Journal Article Nursing research · May 2017 BackgroundThe disparate health outcomes of African American mothers living with HIV are considerable. Multidimensional approaches are needed to address the complex social and economic conditions of their lives, collectively known as the social det ... Full text Cite

Parental bereavement: Looking beyond grief.

Journal Article Death studies · May 2017 Bereaved parents have higher morbidity and mortality rates when compared to nonbereaved parents. Although parental grief is well studied, the complexities of challenges bereaved parents face are not understood. This study describes parental bereavement cha ... Full text Cite

Improving ICU-Based Palliative Care Delivery: A Multicenter, Multidisciplinary Survey of Critical Care Clinician Attitudes and Beliefs.

Journal Article Crit Care Med · April 2017 OBJECTIVE: Addressing the quality gap in ICU-based palliative care is limited by uncertainty about acceptable models of collaborative specialist and generalist care. Therefore, we characterized the attitudes of physicians and nurses about palliative care d ... Full text Link to item Cite

Exploration of Exercise Outcome Expectations Among Breast Cancer Survivors.

Journal Article Cancer nursing · March 2017 BackgroundExercise is associated with decreased recurrence risk and improved survival and quality of life for breast cancer survivors. However, only an estimated 17% to 37% of survivors adhere to the American Cancer Society exercise guidelines. A ... Full text Cite

Visualization of Multidimensional Data in Nursing Science.

Journal Article Western journal of nursing research · January 2017 Nursing scientists have long been interested in complex, context-dependent questions addressing individual- and population-level challenges in health and illness. These critical questions require multilevel data (e.g., genetic, physiologic, biologic, behav ... Full text Cite

Recommendations of Common Data Elements to Advance the Science of Self-Management of Chronic Conditions.

Journal Article Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · September 2016 PurposeCommon data elements (CDEs) are increasingly being used by researchers to promote data sharing across studies. The purposes of this article are to (a) describe the theoretical, conceptual, and definition issues in the development of a set o ... Full text Cite

Relationship of Maternal Psychological Distress Classes to Later Mother-Infant Interaction, Home Environment, and Infant Development in Preterm Infants.

Journal Article Research in nursing & health · June 2016 Latent class analyses can be used early in the postpartum period to identify mothers of preterm infants experiencing similar patterns of psychological distress symptoms, but whether these classes of mothers also differ in parental responses to their infant ... Full text Cite

Birthing and Parenting a Premature Infant in a Cultural Context.

Journal Article Qualitative health research · February 2016 The purpose of this longitudinal qualitative descriptive study was to explore American Indian mothers' perceptions of parenting their premature infants over their first year of life in the context of their culture, including the birth and hospitalization e ... Full text Cite

Challenges in Shifting Management Responsibility From Parents to Adolescents With Sickle Cell Disease.

Journal Article J Pediatr Nurs · 2016 UNLABELLED: This study explored the challenges faced by adolescents with sickle cell disease (SCD) and their parents and the work they engage in to progressively shift from parent management to independent adolescent self-management. DESIGN AND METHODS: A ... Full text Link to item Cite

Advancing Symptom Science Through Use of Common Data Elements.

Journal Article Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · September 2015 BackgroundUse of common data elements (CDEs), conceptually defined as variables that are operationalized and measured in identical ways across studies, enables comparison of data across studies in ways that would otherwise be impossible. Although ... Full text Cite

The Adolescent and Young Adult with Cancer: A Developmental Life Course Perspective.

Journal Article Semin Oncol Nurs · August 2015 OBJECTIVES: Using a Life Course Health Development framework, this article summarizes what is known about the impact of cancer and its treatment on the biopsychosocial world of the adolescent and young adult. DATA SOURCES: Published peer reviewed literatur ... Full text Link to item Cite

Adaptive leadership framework for chronic illness: framing a research agenda for transforming care delivery.

Journal Article ANS. Advances in nursing science · April 2015 We propose the Adaptive Leadership Framework for Chronic Illness as a novel framework for conceptualizing, studying, and providing care. This framework is an application of the Adaptive Leadership Framework developed by Heifetz and colleagues for business. ... Full text Cite

Exploration of specialty certification for nurse anesthetists: nonsurgical pain management as a test case.

Journal Article Pain management nursing : official journal of the American Society of Pain Management Nurses · December 2014 Certification is the outcome of the demonstration of knowledge and skills, which is an important link to licensing and credentialing. Considering the essential role that Certified Registered Nurse Anesthetists play in the practice of nonsurgical pain manag ... Full text Cite

National Institute of Nursing Research Centers of Excellence: a logic model for sustainability, leveraging resources, and collaboration to accelerate cross-disciplinary science.

Journal Article Nursing outlook · November 2014 The National Institute of Nursing Research (NINR) Centers of Excellence program is a catalyst enabling institutions to develop infrastructure and administrative support for creating cross-disciplinary teams that bring multiple strategies and expertise to b ... Full text Cite

Using an intersectional approach to study the impact of social determinants of health for African American mothers living with HIV.

Journal Article ANS. Advances in nursing science · October 2014 Heightened awareness of the social determinants of health by health scientists and clinicians has failed to translate into significant progress in the amelioration of those social determinants contributing to health inequities. The purpose of this article ... Full text Cite

Evaluation of the use of a stabilization device to improve the quality of care in patients with peripherally inserted central catheters.

Journal Article AACN advanced critical care · July 2014 ObjectivesThis project evaluated the implementation of use of the StatLock stabilization device (Bard Access Systems, Inc, Salt Lake City, Utah) for peripherally inserted central catheters (PICCs) in pediatric cardiology patients. The aim was to i ... Full text Cite

Letter to the editor.

Journal Article ANS. Advances in nursing science · July 2014 Full text Cite

Contemplating genetic feedback regarding lung cancer susceptibility.

Journal Article Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · June 2014 Background and purposeWe examined three theoretical models (self-enhancement theory, consistency theory, and a combined model) for understanding how expectations and test result favorability influence smokers' desire for a retest following hypothe ... Full text Cite

NAPNAP research agenda: 2014-2019.

Journal Article Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners · May 2014 Full text Cite

Impact of a pediatric quality of life program on providers' moral distress.

Journal Article MCN. The American journal of maternal child nursing · May 2014 PurposeTo evaluate the impact of the introduction of a new pediatric palliative care program on the pattern of moral distress in pediatric healthcare providers (HCPs).Study design and methodsWe used a before and after cross-sectional surv ... Full text Cite

Randomized clinical trial of therapeutic music video intervention for resilience outcomes in adolescents/young adults undergoing hematopoietic stem cell transplant: a report from the Children's Oncology Group.

Journal Article Cancer · March 2014 BackgroundTo reduce the risk of adjustment problems associated with hematopoietic stem cell transplant (HSCT) for adolescents/young adults (AYAs), we examined efficacy of a therapeutic music video (TMV) intervention delivered during the acute phas ... Full text Cite

Evaluation of a discharge education protocol for pediatric patients with gastrostomy tubes.

Journal Article J Pediatr Health Care · 2014 INTRODUCTION: To evaluate the impact of a preprocedure education protocol for children who receive a gastrostomy tube (GT). METHODS: A preintervention-postintervention design, using surveys and comparison between preprotocol and postprotocol cohorts, was u ... Full text Link to item Cite

Nursing strategies to support family members of ICU patients at high risk of dying.

Journal Article Heart Lung · 2014 OBJECTIVES: To explore how family members of ICU patients at high risk of dying respond to nursing communication strategies. BACKGROUND: Family members of ICU patients may face difficult decisions. Nurses are in a position to provide support. Evidence of s ... Full text Link to item Cite

Standardization of health care provider competencies for intrathecal access procedures.

Journal Article J Pediatr Oncol Nurs · 2014 INTRODUCTION: This quality improvement (QI) project addresses a method for experienced health care providers to maintain skill-based competence for intrathecal access procedures. METHODS: A prospective QI design using intrathecal access simulation to asses ... Full text Open Access Link to item Cite

Motivations for genetic testing for lung cancer risk among young smokers.

Journal Article Tobacco control · November 2013 ObjectiveTo examine why young people might want to undergo genetic susceptibility testing for lung cancer despite knowing that tested gene variants are associated with small increases in disease risk.MethodsThe authors used a mixed-method ... Full text Cite

Recruitment strategies and rates of a multi-site behavioral intervention for adolescents and young adults with cancer.

Journal Article Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners · November 2013 IntroductionTo provide an overview of factors related to recruitment of adolescents and young adults (AYA) into research and recruitment rates and reasons for refusal from a multicenter study entitled "Stories and Music for Adolescent/Young Adult ... Full text Cite

Information needed to support knowing the patient.

Journal Article ANS. Advances in nursing science · October 2013 "Knowing the patient" is an essential element of nursing practice. Despite a key finding in prior studies, few scholars have directly inquired about the meaning of knowing the patient with nurses. We aimed to describe the meaning of knowing the patient and ... Full text Cite

NAPNAP research agenda revisions: preliminary survey results.

Journal Article Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners · September 2013 Full text Cite

The experience and self-management of fatigue in patients on hemodialysis.

Journal Article Nephrology nursing journal : journal of the American Nephrology Nurses' Association · March 2013 Fatigue is a common and debilitating symptom for adult patients with end stage renal disease on hemodialysis, and has been associated with decreased survival and quality of life. Patients on hemodialysis must find ways to manage their fatigue and mitigate ... Cite

Parental perspectives on a behavioral health music intervention for adolescent/young adult resilience during cancer treatment: report from the children's oncology group.

Journal Article The Journal of adolescent health : official publication of the Society for Adolescent Medicine · February 2013 PurposeThis article describes parental perspectives on the helpfulness and meaningfulness of a behavioral health music therapy intervention targeted to adolescents/young adults (AYA) with cancer undergoing stem cell transplantation. We demonstrate ... Full text Cite

Communication about life-sustaining therapy: insights from the Adaptive Leadership Framework.

Journal Article European journal for person centered healthcare · January 2013 ObjectiveEffective provider and caregiver communication is central to quality care during treatment for life-threatening illnesses. The study aim was to analyze communication patterns between providers and a parent of an infant with a life-threate ... Full text Cite

Testing different communication formats on responses to imagined risk of having versus missing the GSTM1 gene.

Journal Article Journal of health communication · January 2013 Genetic markers of lung cancer susceptibility, such as the common variant of the glutathione S-transferase Mu 1 gene (GSTM1-null), confer small probabilities of disease risk. The authors explored the influence of different approaches to communicating the s ... Full text Cite

Insights into patient and family-centered care through the hospital experiences of parents.

Journal Article Journal of obstetric, gynecologic, and neonatal nursing : JOGNN · January 2013 ObjectiveTo describe parents' care experiences during hospitalization of their children to identify strategies that could improve the provision of patient and family-centered care (PFCC).DesignA two-phase mixed-method descriptive design w ... Full text Cite

Engaging nurses in research for a randomized clinical trial of a behavioral health intervention.

Journal Article Nursing research and practice · January 2013 Nurse involvement in research is essential to the expansion of nursing science and improved care for patients. The research participation challenges encountered by nurses providing direct care (direct care nurses) include balancing patient care demands wit ... Full text Cite

Telephone follow-up for pediatric ambulatory surgery: parent and provider satisfaction.

Journal Article J Pediatr Nurs · December 2012 Traditional 4- to 6-week clinic follow-up after pediatric ambulatory surgery does not rapidly identify complications and is often a burden for parents. Telephone follow-up offers support and is preferred in a variety of adult populations, but there is litt ... Full text Link to item Cite

The nursing dimension of providing palliative care to children and adolescents with cancer.

Journal Article Clinical Medicine Insights: Pediatrics · September 2012 Palliative care for children and adolescents with cancer includes interventions that focus on the relief of suffering, optimization of function, and improvement of quality of life at any and all stages of disease. This care is most effectively provided by ... Full text Cite

Decision-Making Influences: A Comparison Based on Infant Diagnosis

Journal Article ADVANCES IN NEONATAL CARE · August 1, 2012 Link to item Cite

Studying the clinical encounter with the Adaptive Leadership framework.

Journal Article Journal of Healthcare Leadership · August 2012 In this paper we discuss the concept of leadership as a personal capability, not contingent on one’s position in a hierarchy. This type of leadership allows us to reframe both the care-giving and organizational roles of nurses and other front-line clinical ... Full text Cite

Addressing parental bereavement support needs at the end of life for infants with complex chronic conditions.

Journal Article Journal of palliative medicine · May 2012 IntroductionHealth care providers' understandings of parental bereavement needs before and in the acute period following the death of an infant with a complex chronic condition are based upon models that outline the process of grief and provide di ... Full text Cite

Ensuring treatment fidelity in a multi-site behavioral intervention study: implementing NIH Behavior Change Consortium recommendations in the SMART trial.

Journal Article Psycho-oncology · November 2011 The Stories and Music for Adolescent/Young Adult Resilience during Transplant (SMART) study (R01NR008583; U10CA098543; U10CA095861) is an ongoing multi-site Children's Oncology Group randomized clinical trial testing the efficacy of a therapeutic music vid ... Full text Cite

Young smokers' views of genetic susceptibility testing for lung cancer risk: minding unintended consequences.

Journal Article Journal of community genetics · September 2011 Assessment of smokers' responses to individualized feedback of genetic susceptibility has shown little or no influence on smoking cessation outcomes. One explanation is that smokers may be having unintended responses that undermine the feedback's motivatio ... Full text Cite

An Important First Step to Answer a Key Question

Journal Article Journal of Pediatric Health Care · July 1, 2011 Full text Cite

Electronic nursing documentation as a strategy to improve quality of patient care.

Journal Article Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · June 2011 PurposeElectronic health records are expected to improve the quality of care provided to hospitalized patients. For nurses, use of electronic documentation sources becomes highly relevant because this is where they obtain the majority of necessary ... Full text Cite

A national survey of the primary and acute care pediatric nurse practitioner educational preparation.

Journal Article Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners · January 2011 IntroductionThe past decade has been marked by a gradual expansion of the traditional primary care role of the pediatric nurse practitioner (PNP) into practice arenas that call for more acute and critical care of children. The purpose of the study ... Full text Cite

Emerging issues regarding pediatric nurse practitioner education in acute and primary care.

Journal Article Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners · January 2011 Full text Cite

Nursing Roles and Strategies in End-of-Life Decision Making in Acute Care: A Systematic Review of the Literature.

Journal Article Nursing research and practice · January 2011 The objective of this paper is to analyze the literature concerning nurses' roles and strategies in EOL decision making in acute care environments, synthesize the findings, and identify implications for future research. We conducted searches in CINAHL and ... Full text Cite

Surviving critical illness: acute respiratory distress syndrome as experienced by patients and their caregivers.

Journal Article Crit Care Med · October 2009 OBJECTIVE: To characterize the effects of critical illness in the daily lives and functioning of acute respiratory distress syndrome survivors. Survivors of acute respiratory distress syndrome, a systemic critical illness, often report poor quality of life ... Full text Link to item Cite

Poverty as context for the parenting experience of low-income Lumbee Indian mothers with a medically fragile infant.

Journal Article Neonatal network : NN · November 2007 PurposeTo explore the influence of poverty on the parenting experience and maternal developmental trajectory of Lumbee mothers with medically fragile infants.DesignA multiple-case study design using secondary data from a larger longitudin ... Full text Cite

Infant and child deaths in acute care settings: implications for palliative care.

Journal Article Journal of palliative medicine · August 2007 Featured Publication ObjectivesDespite 56% of child deaths occurring in inpatient hospital settings, who these children are and how they die has not been fully described. The purpose of this study was to identify the characteristics of those infants and children who d ... Full text Cite

Searching for "the dying point:" providers' experiences with palliative care in pediatric acute care.

Journal Article Pediatric nursing · July 2007 Featured Publication To improve care of children who die in acute care settings there is a need to develop a clearer understanding of the barriers to provision of palliative care. The purpose of this study was to describe the experiences and views of health care providers in g ... Cite

Three months in the symptom life of a teenage girl undergoing treatment for cancer.

Journal Article Research in nursing & health · August 2006 Featured Publication The purpose of this case study was to examine the daily symptom experience of a teenage girl, Abby, undergoing treatment for cancer. Quantitative and qualitative data collection and analysis techniques were used to ascertain patterns in daily experiences o ... Full text Cite

Sleep quality in children with juvenile rheumatoid arthritis.

Journal Article Holistic nursing practice · July 2003 Children with juvenile rheumatoid arthritis (JRA) report poor sleep quality, daytime sleepiness, fatigue, anxiety, and altered mood. Sleep disturbances in school-aged children are an issue of serious concern. Children are at an age when sleep is of primary ... Full text Cite

Symptom experiences of children and adolescents with cancer.

Journal Article Annual review of nursing research · January 2003 Featured Publication This paper examines nursing research focused on the symptom experiences of children and adolescents with cancer, and the extent to which the perspective and methods of developmental science have been used in this research. CINALH, MEDLINE, and PSYCHLIT wer ... Full text Cite

Worry about child health in mothers of hospitalized medically fragile infants.

Journal Article Advances in neonatal care : official journal of the National Association of Neonatal Nurses · April 2002 Featured Publication PurposeThis study examined child health worry among mothers of medically fragile infants with differing health problems and identified factors associated with maternal worry.SubjectsMedically fragile infants were term (38%) and preterm (6 ... Full text Cite

Developmental outcomes of infants with bronchopulmonary dysplasia: comparison with other medically fragile infants.

Journal Article Research in nursing & health · June 2001 The purpose of this study was to compare the developmental outcomes and mother-infant interactions of infants with bronchopulmonary dysplasia (BPD) and those of other medically fragile infants. One-hour behavioral observations were made of the interactions ... Full text Cite

African American mothers' responses to hospitalization of an infant with serious health problems.

Journal Article Neonatal network : NN · December 1999 Featured Publication PurposeTo describe African American mothers' experiences related to the hospitalization of an infant with serious health problems.DesignRetrospective descriptive.Sample19 African American mothers with premature and term infants w ... Full text Cite

Interviewing children.

Journal Article Research in nursing & health · April 1999 The focus in health-related research on children has shifted from seeking information about children to seeking information directly from them. Children, even as young as three years old, can give graphic descriptions and have excellent recall of experienc ... Cite

Focus on qualitative methods. Qualitative metasynthesis: issues and techniques.

Journal Article Research in nursing & health · August 1997 There has been an accumulation of qualitative studies in recent years, but little cumulation of the understandings gained from them. Qualitative research appears endangered both by efforts to synthesize studies and by the failure to do so. Techniques used ... Full text Cite

Helping students use nursing models to guide research.

Journal Article Nurse educator · March 1992 This article describes a teaching-learning strategy that was used to help third-year undergraduate BSN students understand the importance of situating nursing research questions within a nursing theoretical framework. Examples of student-generated research ... Full text Cite