Scholars@Duke
Mariam Kayle

Mariam Kayle

Associate Professor in the School of Nursing
School of Nursing
mariam.kayle@duke.edu
DUMC 3322, 307 Trent Dr.,, Duke University School of Nursing, Durham, NC 27710
307 Trent Dr, Durham, NC 27710
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Selected Publications

Gaps during pediatric to adult care transfer escalate acute resource utilization in sickle cell disease.

Journal Article Blood Adv · July 23, 2024 Guidelines recommend transfer to adult health care within 6 months of completing pediatric care; however, this has not been studied in sickle cell disease (SCD). We hypothesized that longer transfer gaps are associated with increased resource utilization. ... Full text Link to item Cite

Common data model for sickle cell disease surveillance: considerations and implications.

Journal Article JAMIA Open · July 2023 OBJECTIVE: Population-level data on sickle cell disease (SCD) are sparse in the United States. The Centers for Disease Control and Prevention (CDC) is addressing the need for SCD surveillance through state-level Sickle Cell Data Collection Programs (SCDC). ... Full text Open Access Link to item Cite

Emergency department visits and hospitalizations among patients with sickle cell disease in illinois, 2016-2020.

Journal Article Pediatric hematology and oncology · February 2023 Sickle cell disease (SCD) state level surveillance data are limited. We performed a retrospective review of emergency department (ED) visits and hospitalizations from individuals with SCD in Illinois (2016-2020) using the Illinois Health and Hospital Assoc ... Full text Cite

Longitudinal Trajectories of Clean Intermittent Catheterization Responsibility in Youths with Spina Bifida.

Journal Article The Journal of urology · January 2022 PurposeClean intermittent catheterization (CIC) responsibility among youths with spina bifida is not well studied. We sought to determine longitudinal trajectories of CIC responsibility to examine the transition of CIC responsibility from caregive ... Full text Cite

Patient-reported neurocognitive symptoms influence instrumental activities of daily living in sickle cell disease.

Journal Article American journal of hematology · November 2021 Individuals with sickle cell disease (SCD) experience neurocognitive decline, low medication adherence, increased unemployment, and difficulty with instrumental activities of daily living (IADL). The relationship between self-perceived cognitive difficulti ... Full text Cite

Redesigning clinical education to transition pre-licensure students from all-virtual to in-person clinical

Journal Article Teaching and Learning in Nursing · July 1, 2021 At the start of the COVID-19 pandemic, pre-licensure nursing programs swiftly adapted the curriculum to accommodate the cessation of in-person clinical and transition to all-virtual clinical education. Once in-person clinical resumed, a re-design of clinic ... Full text Cite

Predictors of Distinct Trajectories of Medical Responsibility in Youth with Spina Bifida.

Journal Article Journal of pediatric psychology · November 2020 ObjectiveTo determine if there are distinct developmental trajectories of medical responsibility in youth with spina bifida (SB) across ages 8-17 years and to identify condition-related, parental, and family systems predictors of membership in the ... Full text Cite

Impact of Medicaid expansion on access and healthcare among individuals with sickle cell disease.

Journal Article Pediatric blood & cancer · May 2020 PurposeSickle cell disease (SCD) is associated with high acute healthcare utilization. The purpose of this study was to examine whether Medicaid expansion in California increased Medicaid enrollment, increased hydroxyurea prescriptions filled, and ... Full text Cite

Transition to adult care in sickle cell disease: A longitudinal study of clinical characteristics and disease severity.

Journal Article Pediatr Blood Cancer · January 2019 BACKGROUND: Sickle cell disease (SCD) is a chronic blood disorder in which mortality has increased for adolescents and young adults (AYA). PROCEDURE: A longitudinal analysis of medical records was conducted to describe the clinical course among AYAs (ages ... Full text Link to item Cite

Evaluation of a Sickle Cell Disease Educational Website for Emergency Providers.

Journal Article Advanced emergency nursing journal · April 2016 Sickle cell disease (SCD) is a complex multisystem debilitating disease. Despite its complexity, health care providers who are not SCD experts receive little formal education on SCD. An open-access, educational website, "Emergency Department Sickle Cell Di ... Full text Cite

Challenges in Shifting Management Responsibility From Parents to Adolescents With Sickle Cell Disease.

Journal Article J Pediatr Nurs · 2016 UNLABELLED: This study explored the challenges faced by adolescents with sickle cell disease (SCD) and their parents and the work they engage in to progressively shift from parent management to independent adolescent self-management. DESIGN AND METHODS: A ... Full text Link to item Cite

The Adolescent and Young Adult with Cancer: A Developmental Life Course Perspective.

Journal Article Semin Oncol Nurs · August 2015 OBJECTIVES: Using a Life Course Health Development framework, this article summarizes what is known about the impact of cancer and its treatment on the biopsychosocial world of the adolescent and young adult. DATA SOURCES: Published peer reviewed literatur ... Full text Link to item Cite

Attitudes toward patients with sickle cell disease in a multicenter sample of emergency department providers.

Journal Article Advanced emergency nursing journal · October 2014 Patients with sickle cell disease (SCD) often seek care in the emergency department (ED) for pain associated with vaso-occlusive crises. Research has shown that negative provider attitudes serve as a barrier to care in this patient population. Our aim was ... Full text Cite

Survival at the threshold of viability: a nationwide survey of the opinions and attitudes of physicians in a developing country.

Journal Article Paediatric and perinatal epidemiology · May 2014 BackgroundTo explore physicians' opinions and attitudes regarding resuscitation of extremely premature infants (EPIs) in a developing country with suboptimal resources.MethodsA survey was developed, revised, and pilot-tested. All 964 paed ... Full text Cite