Scholars@Duke
Sophia Kustas Smith

Sophia Kustas Smith

Associate Professor in the School of Nursing
School of Nursing
sophia.smith@duke.edu
DUMC 3322, Durham, NC 27710
307 Trent Dr, DUMC 3322, Pearson 2114, Durham, NC 27710

Selected Publications

A digital health approach to improving PTSD symptom management among cancer transplant survivors using a SMART design.

Journal Article JCO Oncology Practice · October 14, 2025 550Background: Hematopoietic cell transplantation (HCT) cancer survivors face elevated risk for posttraumatic stress disorder (PTSD) symptoms, yet access to effective treatment remains limited. This NCI-funded study (R01-CA244172) evaluated a stepped-care, ... Full text Cite

A Pilot Study of the Cancer Distress Coach-Caregiver App: A Digital Intervention for Reducing PTSD Symptoms in HCT Caregivers.

Journal Article Psycho-oncology · October 2025 BackgroundCaregivers of hematopoietic cell transplantation (HCT) survivors face high risk for posttraumatic stress disorder (PTSD) but lack psychosocial support. Digital health tools may offer scalable solutions to address caregiver distress. This ... Full text Cite

NCCN Guidelines® Insights: Survivorship, Version 2.2025.

Journal Article Journal of the National Comprehensive Cancer Network : JNCCN · June 2025 The NCCN Guidelines for Survivorship include screening, evaluation, and treatment recommendations for common physical and psychosocial problems resulting from adult-onset cancer and its treatment and provide a framework for coordination of survivorship car ... Full text Cite

Exploring the landscape of palliative care provision for black patients with hematologic cancers: A scoping review.

Journal Article Palliative & supportive care · April 2025 ObjectivesPatients with cancer benefit greatly from receiving palliative care (PC), improving their overall survival and quality of life. Despite its benefits, PC is underutilized among patients with hematologic malignancies (HMs), particularly am ... Full text Cite

Assessing the utility of the PC-PTSD-5 as a screening tool among a cancer survivor sample.

Journal Article Cancer · December 1, 2024 INTRODUCTION: Hematopoietic stem cell transplantation (HCT) is an intensive and invasive procedure used in cancer treatment that can lead to posttraumatic stress disorder (PTSD) symptoms. These symptoms are frequently overlooked in oncology and general hea ... Full text Link to item Cite

NCCN Guidelines® Insights: Survivorship, Version 2.2024.

Journal Article Journal of the National Comprehensive Cancer Network : JNCCN · December 2024 The NCCN Guidelines for Survivorship include recommendations for screening, evaluation, and treatment of psychosocial and physical problems resulting from adult-onset cancer and its treatment. They also include recommendations to promote healthy behaviors ... Full text Cite

Feasibility and acceptability of measuring positivity resonance in nurse-patient telehealth videoconferencing visits: A mixed-methods observational study.

Journal Article J Clin Nurs · July 2024 AIM: To investigate the feasibility and acceptability of the training process, procedures, measures and recruitment strategies necessary for a future investigation to test the reliability and validity of using positivity resonance measures in health care e ... Full text Link to item Cite

Coverage for evidence-based cancer survivorship care services.

Journal Article Support Care Cancer · February 17, 2024 PURPOSE: The American Society of Clinical Oncology Cancer Survivorship Committee established a task force to determine which survivorship care services were being denied by public and private payers for coverage and reimbursement. METHODS: A quantitative s ... Full text Link to item Cite

The essential and evolving nature of oncology social work: Accomplishments and impact, 2010-present.

Journal Article Journal of psychosocial oncology · January 2024 This paper demonstrates the essential nature of oncology social work and the critical role that oncology social workers (OSWs) play in the achievement of high-quality cancer care that improves patient outcomes, contains cost, advances population health, re ... Full text Cite

Knowledge, Attitudes, and Resources of Frontline Oncology Support Personnel Regarding Financial Burden in Patients With Cancer.

Journal Article JCO oncology practice · August 2023 PurposeFinancial navigation services support patients with cancer and address the direct and indirect financial burden of cancer diagnosis and treatment. These services are commonly delivered through a variety of frontline oncology support personn ... Full text Cite

NCCN Guidelines® Insights: Survivorship, Version 1.2023.

Journal Article Journal of the National Comprehensive Cancer Network : JNCCN · August 2023 The NCCN Guidelines for Survivorship are intended to help healthcare professionals address the complex and varied needs of cancer survivors. The NCCN Guidelines provide screening, evaluation, and treatment recommendations for psychosocial and physical prob ... Full text Cite

A Mobile App to Support Self-Management in Patients with Multiple Myeloma or Chronic Lymphocytic Leukemia: Pilot Randomized Controlled Trial.

Journal Article JMIR Cancer · July 6, 2023 BACKGROUND: Patients with blood cancer experience serious physical and emotional symptoms throughout their cancer journey. OBJECTIVE: Building on previous work, we aimed to develop an app designed to help patients with multiple myeloma and chronic lymphocy ... Full text Link to item Cite

Exploring the relationship between social support and mental health status among lymphoma survivors: Does patient-centered communication really matter? A brief report.

Journal Article Journal of psychosocial oncology · January 2023 The purpose of this study was to explore whether patient-centered communication (PCC) would partially mediate the relationship between social support and mental health status among adult survivors of non-Hodgkin's lymphoma (NHL). Methods: Secondary ... Full text Cite

NCCN Guidelines® Insights: Survivorship, Version 1.2022.

Journal Article Journal of the National Comprehensive Cancer Network : JNCCN · October 2022 The NCCN Guidelines for Survivorship are intended to help healthcare professionals who work with survivors to ensure that the survivors' complex and varied needs are addressed. The NCCN Guidelines provide screening, evaluation, and treatment recommendation ... Full text Cite

Exploring Nurse and Patient Experiences of Developing Rapport During Oncology Ambulatory Care Videoconferencing Visits: Qualitative Descriptive Study.

Journal Article J Med Internet Res · September 8, 2022 BACKGROUND: Although videoconferencing between oncology patients and nurses became routine during the pandemic, little is known about the development of clinician-patient rapport in this care environment. Evidence that virtual visits may challenge nurses' ... Full text Link to item Cite

Geriatric Assessment Reveals Actionable Impairments in Hematopoietic Stem Cell Transplantation Candidates Age 18 to 80 Years.

Journal Article Transplant Cell Ther · August 2022 Allogeneic hematopoietic stem cell transplantation (HCT) is a potentially curative treatment for both malignant and nonmalignant hematologic diseases; however, reported rates of treatment-related mortality approach 30%. Outcomes are worse in patients who b ... Full text Link to item Cite

Relationships among uncertainty, post-traumatic stress disorder symptoms, and quality of life in non-muscle-invasive bladder cancer survivors.

Journal Article Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · July 2022 PurposeThe aim of this study was to examine relationships among uncertainty, PTSD symptoms (PTSS), and quality of life (QOL) in non-muscle-invasive bladder cancer (NMIBC) survivors.MethodsEligible NMIBC survivors were identified through t ... Full text Cite

A cross-sectional observational study of health-related quality of life in adults with multiple myeloma.

Journal Article Support Care Cancer · June 2022 BACKGROUND: The purpose of this manuscript is to describe health-related quality of life (HRQoL) outcomes in a United States (US)-based sample of multiple myeloma (MM) patients and identify characteristics associated with poor HRQoL. PATIENTS AND METHODS: ... Full text Link to item Cite

Persistent fatigue among long-term non-Hodgkin lymphoma survivors.

Journal Article Leuk Lymphoma · February 2022 This study describes the prevalence and persistence of fatigue among a cohort of long-term non-Hodgkin lymphoma (NHL) survivors. Mailed surveys assessed quality-of-life including fatigue (SF-36) at baseline and five years. Logistic regression was used to i ... Full text Link to item Cite

A SMART approach to optimizing delivery of an mHealth intervention among cancer survivors with posttraumatic stress symptoms.

Journal Article Contemp Clin Trials · November 2021 BACKGROUND/AIMS: Many cancer survivors who received intensive treatment such as hematopoietic stem cell transplantation (HCT) experience posttraumatic stress disorder (PTSD) symptoms. PTSD is associated with lower quality of life and other symptoms that re ... Full text Link to item Cite

Hospice Access and Scope of Services for Undocumented Immigrants: A Clinician Survey.

Journal Article J Palliat Med · August 2021 Objectives: To characterize clinician experiences of hospice access and scope of services for undocumented immigrants. Background: The 10.5 million undocumented immigrants in the United States are not covered by Medicare's hospice benefit and are at high r ... Full text Link to item Cite

Human Flourishing in Adolescents with Cancer: Experiences of Pediatric Oncology Health Care Professionals.

Journal Article Journal of pediatric nursing · July 2021 PurposeThis study explores human flourishing (HF) in adolescents with cancer (AC) as witnessed by their health care providers, and it develops a list of critical attributes associated with HF to describe the positive outcomes witnessed.Design ... Full text Cite

Survivorship, Version 1.2021.

Journal Article Journal of the National Comprehensive Cancer Network : JNCCN · June 2021 The NCCN Guidelines for Survivorship are intended to help healthcare professionals working with cancer survivors to ensure that each survivor's complex and varied needs are addressed. The Guidelines provide screening, evaluation, and treatment recommendati ... Full text Cite

Post-traumatic stress disorder symptoms in non-muscle-invasive bladder cancer survivors: A population-based study.

Journal Article Urologic oncology · April 2021 ObjectiveThis cross-sectional study examined the prevalence of post-traumatic stress disorder (PTSD) and identified the predictive factors associated with PTSD symptoms in a population of non-muscle-invasive bladder cancer (NMIBC) survivors.Me ... Full text Cite

A Qualitative Study of the Experiences of Living With Multiple Myeloma.

Journal Article Oncol Nurs Forum · March 1, 2021 PURPOSE: To explore the ways in which multiple myeloma affects an individual's life in the modern treatment era. PARTICIPANTS & SETTING: 15 individuals with multiple myeloma and 10 clinicians were recruited from two academic medical centers in the sout ... Full text Link to item Cite

Quality of Life and Impact of Cancer: Differences in Rural and Nonrural Non-Hodgkin's Lymphoma Survivors.

Journal Article The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · September 2020 PurposePeople living in rural areas experience greater health disparities than their nonrural counterparts, but little is known about the association between rural status and quality of life (QOL) in non-Hodgkin's lymphoma (NHL) survivors. We comp ... Full text Cite

NCCN Guidelines Insights: Survivorship, Version 2.2020.

Journal Article Journal of the National Comprehensive Cancer Network : JNCCN · August 2020 The NCCN Guidelines for Survivorship provide screening, evaluation, and treatment recommendations for consequences of adult-onset cancer and its treatment, with the goal of helping healthcare professionals who work with survivors, including those in primar ... Full text Cite

How are patient-reported outcomes and symptoms being measured in adults with relapsed/refractory multiple myeloma? A systematic review.

Journal Article Qual Life Res · June 2020 PURPOSE: Patients with relapsed and/or refractory multiple myeloma (RRMM) are living longer due in part to changing treatment patterns. It is important to understand how changing treatment patterns affect patients' lives beyond extending survival. Research ... Full text Link to item Cite

Four Conversations: A Randomized Controlled Trial of an Online, Personalized Coping and Decision Aid for Metastatic Breast Cancer Patients.

Journal Article Journal of palliative medicine · March 2020 Background: Anticipating and making health care decisions about appropriate or preferred treatment around end-of-life care are intellectually challenging and emotionally distressing for metastatic breast cancer (MBC) patients, new interventio ... Full text Cite

Health-related quality of life among non-muscle-invasive bladder cancer survivors: a population-based study.

Journal Article BJU international · January 2020 ObjectiveTo examine the effect of non-muscle-invasive bladder cancer (NMIBC) diagnosis and treatment on survivors' quality of life (QoL).Patients and methodsOf the 5979 patients with NMIBC diagnosed between 2010 and 2014 in North Carolina ... Full text Cite

NCCN Guidelines Insights: Survivorship, Version 2.2019.

Journal Article Journal of the National Comprehensive Cancer Network : JNCCN · July 2019 The NCCN Guidelines for Survivorship provide screening, evaluation, and treatment recommendations for consequences of cancer and cancer treatment to aid healthcare professionals who work with survivors of adult-onset cancer. Guidance is also provided to he ... Full text Cite

Quality of Life in Non-Muscle-Invasive Bladder Cancer Survivors: A Systematic Review.

Journal Article Cancer nursing · May 2019 BackgroundNon-muscle-invasive bladder cancer (NMIBC) represents approximately 75% of newly diagnosed patients with bladder cancer. Non-muscle-invasive bladder cancer survivors have unique chronic burdens including frequent recurrences, repeated su ... Full text Cite

Reimagine: a randomized controlled trial of an online, symptom self-management curriculum among breast cancer survivors.

Journal Article Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · May 2019 PurposeChronic pain, depression, and fatigue are common effects resulting from the cancer experience; new interventions are needed. This study examined the effect of Reimagine, an online symptom self-management curriculum that teaches coping skill ... Full text Cite

Survivorship, Version 2.2018, NCCN Clinical Practice Guidelines in Oncology.

Journal Article Journal of the National Comprehensive Cancer Network : JNCCN · October 2018 The NCCN Guidelines for Survivorship provide screening, evaluation, and treatment recommendations for common physical and psychosocial consequences of cancer and cancer treatment to help healthcare professionals who work with survivors of adult-onset cance ... Full text Cite

Best Practices in Oncology Distress Management: Beyond the Screen.

Journal Article American Society of Clinical Oncology educational book. American Society of Clinical Oncology. Annual Meeting · May 2018 The field of psychosocial oncology is a young discipline with a rapidly expanding evidence base. Over the past few decades, several lines of research have established that psychosocial problems, such as anxiety, depression, post-traumatic stress, fatigue, ... Full text Cite

Nonspecialty Nurse Education: Evaluation of the Oncology Intensives Initiative, an Oncology Curriculum to Improve Patient Care

Journal Article Clinical journal of oncology nursing · April 2018 BackgroundA community hospital combined its medical and surgical patients with cancer on one unit, which resulted in nurses not trained in oncology caring for this patient population.ObjectivesThe Oncology Intensives Initiative (ONCii) in ... Full text Cite

The Rules of Engagement: CTTI Recommendations for Successful Collaborations Between Sponsors and Patient Groups Around Clinical Trials.

Journal Article Therapeutic innovation & regulatory science · March 2018 ObjectiveTo identify the elements necessary for successful collaboration between patient groups and academic and industry sponsors of clinical trials, in order to develop recommendations for best practices for effective patient group engagement. Full text Cite

Four Conversations: A randomized control trial of an online, shared decision making curriculum among the metastatic breast cancer community.

Conference Journal of Clinical Oncology · November 1, 2017 47 Background: Evidence shows that shared decision making is effective in improving the quality of end of life care, and that it rarely happens; new interventions are needed. Four Conversations is an evidence-based, online curric ... Full text Cite

Prescribing an App? Oncology Providers' Views on Mobile Health Apps for Cancer Care.

Journal Article JCO Clin Cancer Inform · November 2017 INTRODUCTION: Although there are over 500 mobile health (mHealth) applications (apps) available for download in the field of oncology, little research has addressed their acceptability among health care providers. In addition, the providers' perspectives r ... Full text Link to item Cite

Bridging the Gap: PCP and Patient Needs in Head and Neck Cancer Survivor Care

Conference International Journal of Radiation Oncology*Biology*Physics · October 2017 Full text Cite

Identifying Social-Behavioral Health Needs of Adults with Sickle Cell Disease in the Emergency Department.

Journal Article Journal of emergency nursing · September 2017 IntroductionSickle cell disease (SCD) is a complex illness with many social-behavioral co-morbidities. The aim of this project was to describe unmet social-behavioral health needs for adults with SCD who presented to the emergency department for t ... Full text Cite

Survivorship, Version 2.2017, NCCN Clinical Practice Guidelines in Oncology.

Journal Article Journal of the National Comprehensive Cancer Network : JNCCN · September 2017 Many cancer survivors experience menopausal symptoms, including female survivors taking aromatase inhibitors or with a history of oophorectomy or chemotherapy, and male survivors who received or are receiving androgen-ablative therapies. Sexual dysfunction ... Full text Cite

Comparison of the impact of cancer between British and US long-term non-Hodgkin lymphoma survivors.

Journal Article Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · March 2017 PurposeThe aims of this study were to examine quality of life, using the Impact of Cancer version 2 (IOCv2), in British non-Hodgkin lymphoma (NHL) survivors and investigate differences between survivors in the UK and the USA.MethodsNHL su ... Full text Cite

Quality of Life is Similar between Long-term Survivors of Indolent and Aggressive Non-Hodgkin Lymphoma.

Journal Article Cancer Invest · July 2, 2016 Differences in quality of life (QOL) of long-term survivors of aggressive or indolent subtypes of non-Hodgkin lymphoma (NHL) have not been frequently evaluated. We assessed these differences by analyzing results of a large QOL survey of long-term NHL survi ... Full text Link to item Cite

NCCN Guidelines Insights: Survivorship, Version 1.2016.

Journal Article Journal of the National Comprehensive Cancer Network : JNCCN · June 2016 The NCCN Guidelines for Survivorship provide screening, evaluation, and treatment recommendations for common consequences of cancer and cancer treatment. They are intended to aid health care professionals who work with survivors of adult-onset cancer in th ... Full text Cite

NCCN Roundtable: Palliative Care: Providing Comfort From a Patient and Provider Perspective.

Journal Article Journal of the National Comprehensive Cancer Network : JNCCN · May 2016 The words "palliative care" can be threatening for many patients, particularly for those who do not understand what they mean. In fact, according to a survey by the American Cancer Society, about 70% of adults in the United States are not at all knowledgea ... Full text Cite

Evaluation of Pillars4life: a virtual coping skills program for cancer survivors.

Journal Article Psychooncology · November 2015 OBJECTIVE: Pillars4Life is an educational program that teaches coping skills to cancer patients in a virtual group setting; it was recently implemented at 17 hospitals across the USA. The cost-effective, scalable, and assessable Pillars4Life curriculum tar ... Full text Link to item Cite

Fatigue in long-term non-Hodgkin lymphoma survivors.

Conference Journal of Clinical Oncology · October 10, 2015 239 Background: Fatigue is a common and distressing effect of cancer and its treatment, potentially affecting quality of life (QOL) for years after treatment. However, the prevalence and persistence of fatigue among long-term sur ... Full text Cite

Are lifestyle behavioral factors associated with health-related quality of life in long-term survivors of non-Hodgkin lymphoma?

Journal Article Cancer · September 2015 BackgroundThe objective of the current study was to determine whether survivors of non-Hodgkin lymphoma are meeting select American Cancer Society (ACS) health-related guidelines for cancer survivors, as well as to examine relationships between th ... Full text Cite

Fatigue in long-term non-Hodgkin lymphoma survivors

Conference JOURNAL OF CLINICAL ONCOLOGY · May 20, 2015 Link to item Cite

An exploratory path model of the relationships between positive and negative adaptation to cancer on quality of life among non-Hodgkin lymphoma survivors.

Journal Article Journal of psychosocial oncology · May 2015 Adaptation is an ongoing, cognitive process with continuous appraisal of the cancer experience by the survivor. This exploratory study tested a path model examining the personal (demographic, disease, and psychosocial) characteristics associated with quali ... Full text Cite

Patient Engagement Practices in Clinical Research among Patient Groups, Industry, and Academia in the United States: A Survey.

Journal Article PloS one · January 2015 ObjectivePatient-centered clinical trial design and execution is becoming increasingly important. No best practice guidelines exist despite a key stakeholder declaration to create more effective engagement models. This study aims to gain a better ... Full text Cite

Bridging the gap between financial distress and available resources for patients with cancer: a qualitative study.

Journal Article J Oncol Pract · September 2014 PURPOSE: Cancer treatment-related out-of-pocket costs create substantial financial distress for many patients. However, little work has been done to describe available financial resources and barriers to connecting those resources to patients. METHODS: Thi ... Full text Link to item Cite

Is there a relationship between posttraumatic stress and growth after a lymphoma diagnosis?

Journal Article Psychooncology · March 2014 OBJECTIVE: There are conflicting empirical data regarding the relationship between posttraumatic stress (PTS) and growth (PTG) observed in cancer survivors. Clarification of this association could inform evidence-based therapeutic recommendations to promot ... Full text Link to item Cite

Use of an electronic patient-reported outcome measurement system to improve distress management in oncology.

Journal Article Palliative & supportive care · February 2014 ObjectiveManagement of patient distress is a critical task in cancer nursing and cancer practice. Here we describe two examples of how an electronic patient-reported outcome (ePRO) measurement system implemented into routine oncology care can prac ... Full text Cite

Assessing the impact of cancer among Dutch non-Hodgkin lymphoma survivors compared with their American counterparts: a cross-national study.

Journal Article Psycho-oncology · June 2013 PurposeTo understand cultural differences in the impact of cancer (IOC) by (i) performing an independent psychometric evaluation of the Dutch version of the Impact of Cancer Scale version 2 (IOCv2) in a non-Hodgkin lymphoma (NHL) sample and (ii) e ... Full text Cite

Demographic and disease characteristics associated with non-hodgkin lymphoma survivors' quality of life: does age matter?

Journal Article Oncology nursing forum · March 2013 Purpose/objectivesTo examine demographic and disease characteristics by age and the moderating effect of age on quality of life (QOL) among non-Hodgkin lymphoma (NHL) survivors.DesignA cross-sectional, secondary analysis study of NHL surv ... Full text Cite

A procedure for obtaining impact of cancer version 2 scores using version 1 responses.

Journal Article Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · February 2013 PurposePsychometric scales often change over time, complicating comparison of scores across different versions. The Impact of Cancer (IOC) scale was developed to measure quality of life of long-term cancer survivors. We sought to develop a method ... Full text Cite

Quality of life among long-term survivors of non-Hodgkin lymphoma: a follow-up study.

Journal Article Journal of clinical oncology : official journal of the American Society of Clinical Oncology · January 2013 PurposeLittle is known about change in quality of life (QOL) among long-term cancer survivors. We examined change over time in QOL among long-term survivors of non-Hodgkin lymphoma and identified demographic, clinical, and psychosocial risk factor ... Full text Cite

Patient and provider preferences for survivorship care plans.

Journal Article Journal of oncology practice · July 2012 PurposeSurvivorship care plans (SCPs) are tools used to assist in the transition from treatment to surveillance cancer care. However, few studies have investigated survivor and provider preferences regarding SCPs. Our purpose was to explore surviv ... Full text Cite

Post-traumatic stress symptoms in long-term non-Hodgkin's lymphoma survivors: does time heal?

Journal Article Journal of clinical oncology : official journal of the American Society of Clinical Oncology · December 2011 PurposeLittle is known about the trajectory of post-traumatic stress disorder (PTSD) symptoms in cancer survivors, despite the fact that such knowledge can guide treatment. Therefore, this study examined changes in PTSD symptoms among long-term su ... Full text Cite

Quality of life domains among non-Hodgkin lymphoma survivors: an integrative literature review.

Journal Article Leukemia & lymphoma · June 2011 Survival rates of individuals with non-Hodgkin lymphoma (NHL) have increased in the past several years, as has the prevalence of older adults who are managing late and long-term effects of the disease and its treatment. In this integrative review, the stat ... Full text Cite

Correlates of quality of life-related outcomes in breast cancer patients participating in the Pathfinders pilot study.

Journal Article Psychooncology · May 2011 OBJECTIVE: In a pilot study, participation in the Pathfinders program was associated with reductions in distress and despair and improvements in quality of life (QOL) among advanced breast cancer patients. This study explores the relationship between psych ... Full text Link to item Cite

An exploratory model of the relationships between cancer-related trauma outcomes on quality of life in non-Hodgkin lymphoma survivors.

Journal Article Journal of psychosocial oncology · January 2011 Given that more than one third of some cohorts of cancer survivors exhibit post-traumatic stress disorder (PTSD) symptomatology, this study examines how trauma outcomes might relate to quality of life (QOL). Eight hundred thirty survivors of adult lymphoma ... Full text Cite

The impact of cancer and quality of life for post-treatment non-Hodgkin lymphoma survivors.

Journal Article Psycho-oncology · December 2010 ObjectiveRecent work suggests that perceptions of the impact of cancer on survivors' lives are associated with physical and mental health and quality of life (QOL) outcomes. This study examines the association between the Impact of Cancer Version ... Full text Cite

Phase 2 pilot study of Pathfinders: a psychosocial intervention for cancer patients.

Journal Article Support Care Cancer · July 2010 PURPOSE: Pathfinders is a multi-faceted psychosocial care program for cancer patients; it was developed in community oncology and adapted to the academic oncology setting. This prospective, single-arm, phase 2 pilot study examined the acceptability and fea ... Full text Link to item Cite

Measuring the impact of cancer: a comparison of non-Hodgkin lymphoma and breast cancer survivors.

Journal Article Journal of cancer survivorship : research and practice · March 2010 IntroductionSelf-report instruments such as the Impact of Cancer (IOC) are designed to measure quality of life (QOL) impacts that cancer survivors attribute to their cancer experience. Generalizability of QOL findings across distinct diagnostic ca ... Full text Cite

Health status and quality of life among non-Hodgkin lymphoma survivors.

Journal Article Cancer · July 2009 Background: A growing body of evidence suggests that long-term survivors with 1 of the more common forms of adult cancer report a quality of life (QOL) similar to that in the general population. However, specific concerns have been identified (sex ... Full text Cite

Post-traumatic stress outcomes in non-Hodgkin's lymphoma survivors.

Journal Article Journal of clinical oncology : official journal of the American Society of Clinical Oncology · February 2008 PurposeA large body of evidence suggests that being diagnosed with and treated for cancer adversely affects functioning and quality of life, yet less is known about longer term outcomes. Therefore, this study aims to estimate the prevalence of pos ... Full text Cite