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Four health data networks illustrate the potential for a shared national multipurpose big-data network.

Publication ,  Journal Article
Curtis, LH; Brown, J; Platt, R
Published in: Health Aff (Millwood)
July 2014

Information in electronic health data that are drawn from large populations of patients is transforming health care, public health practice, and clinical research. This article describes our experience in developing data networks that repurpose electronic health records and administrative data. The four programs we feature are the Food and Drug Administration's Mini-Sentinel program (which focuses on medical product safety), the National Patient-Centered Clinical Research Network (PCORnet, comparative effectiveness research), the National Institutes of Health's Health Care Systems Research Collaboratory Distributed Research Network (biomedical research), and ESPnet (public health surveillance). Challenges to these uses of electronic health data include understanding the factors driving the collection, coding, and preservation of the data; the extensive customization of different systems that collect similar data; the fragmentation of the US health care delivery system and its records; and privacy and proprietary considerations. We view these four programs as examples of the first stage in the development of a shared national big-data resource that leverages the investments of many agencies and organizations for the benefit of multiple networks and users.

Duke Scholars

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Published In

Health Aff (Millwood)

DOI

EISSN

1544-5208

Publication Date

July 2014

Volume

33

Issue

7

Start / End Page

1178 / 1186

Location

United States

Related Subject Headings

  • United States Food and Drug Administration
  • United States
  • Patient-Centered Care
  • National Institutes of Health (U.S.)
  • Humans
  • Health Policy & Services
  • Electronic Health Records
  • Datasets as Topic
  • Data Mining
  • Confidentiality
 

Citation

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Curtis, L. H., Brown, J., & Platt, R. (2014). Four health data networks illustrate the potential for a shared national multipurpose big-data network. Health Aff (Millwood), 33(7), 1178–1186. https://doi.org/10.1377/hlthaff.2014.0121
Curtis, Lesley H., Jeffrey Brown, and Richard Platt. “Four health data networks illustrate the potential for a shared national multipurpose big-data network.Health Aff (Millwood) 33, no. 7 (July 2014): 1178–86. https://doi.org/10.1377/hlthaff.2014.0121.
Curtis LH, Brown J, Platt R. Four health data networks illustrate the potential for a shared national multipurpose big-data network. Health Aff (Millwood). 2014 Jul;33(7):1178–86.
Curtis, Lesley H., et al. “Four health data networks illustrate the potential for a shared national multipurpose big-data network.Health Aff (Millwood), vol. 33, no. 7, July 2014, pp. 1178–86. Pubmed, doi:10.1377/hlthaff.2014.0121.
Curtis LH, Brown J, Platt R. Four health data networks illustrate the potential for a shared national multipurpose big-data network. Health Aff (Millwood). 2014 Jul;33(7):1178–1186.

Published In

Health Aff (Millwood)

DOI

EISSN

1544-5208

Publication Date

July 2014

Volume

33

Issue

7

Start / End Page

1178 / 1186

Location

United States

Related Subject Headings

  • United States Food and Drug Administration
  • United States
  • Patient-Centered Care
  • National Institutes of Health (U.S.)
  • Humans
  • Health Policy & Services
  • Electronic Health Records
  • Datasets as Topic
  • Data Mining
  • Confidentiality