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Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research.

Publication ,  Journal Article
Pasquali, SK; Jacobs, JP; Farber, GK; Bertoch, D; Blume, ED; Burns, KM; Campbell, R; Chang, AC; Chung, WK; Riehle-Colarusso, T; Curtis, LH ...
Published in: Circulation
April 5, 2016

The National Heart, Lung, and Blood Institute convened a working group in January 2015 to explore issues related to an integrated data network for congenital heart disease research. The overall goal was to develop a common vision for how the rapidly increasing volumes of data captured across numerous sources can be managed, integrated, and analyzed to improve care and outcomes. This report summarizes the current landscape of congenital heart disease data, data integration methodologies used across other fields, key considerations for data integration models in congenital heart disease, and the short- and long-term vision and recommendations made by the working group.

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Published In

Circulation

DOI

EISSN

1524-4539

Publication Date

April 5, 2016

Volume

133

Issue

14

Start / End Page

1410 / 1418

Location

United States

Related Subject Headings

  • United States
  • Registries
  • National Heart, Lung, and Blood Institute (U.S.)
  • Medical Record Linkage
  • Medical Informatics
  • Humans
  • Heart Defects, Congenital
  • Health Information Systems
  • Electronic Health Records
  • Databases, Factual
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Pasquali, S. K., Jacobs, J. P., Farber, G. K., Bertoch, D., Blume, E. D., Burns, K. M., … Kaltman, J. R. (2016). Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research. Circulation, 133(14), 1410–1418. https://doi.org/10.1161/CIRCULATIONAHA.115.019506
Pasquali, Sara K., Jeffrey P. Jacobs, Gregory K. Farber, David Bertoch, Elizabeth D. Blume, Kristin M. Burns, Robert Campbell, et al. “Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research.Circulation 133, no. 14 (April 5, 2016): 1410–18. https://doi.org/10.1161/CIRCULATIONAHA.115.019506.
Pasquali SK, Jacobs JP, Farber GK, Bertoch D, Blume ED, Burns KM, et al. Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research. Circulation. 2016 Apr 5;133(14):1410–8.
Pasquali, Sara K., et al. “Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research.Circulation, vol. 133, no. 14, Apr. 2016, pp. 1410–18. Pubmed, doi:10.1161/CIRCULATIONAHA.115.019506.
Pasquali SK, Jacobs JP, Farber GK, Bertoch D, Blume ED, Burns KM, Campbell R, Chang AC, Chung WK, Riehle-Colarusso T, Curtis LH, Forrest CB, Gaynor WJ, Gaies MG, Go AS, Henchey P, Martin GR, Pearson G, Pemberton VL, Schwartz SM, Vincent R, Kaltman JR. Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research. Circulation. 2016 Apr 5;133(14):1410–1418.

Published In

Circulation

DOI

EISSN

1524-4539

Publication Date

April 5, 2016

Volume

133

Issue

14

Start / End Page

1410 / 1418

Location

United States

Related Subject Headings

  • United States
  • Registries
  • National Heart, Lung, and Blood Institute (U.S.)
  • Medical Record Linkage
  • Medical Informatics
  • Humans
  • Heart Defects, Congenital
  • Health Information Systems
  • Electronic Health Records
  • Databases, Factual