Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research.
Publication
, Journal Article
Pasquali, SK; Jacobs, JP; Farber, GK; Bertoch, D; Blume, ED; Burns, KM; Campbell, R; Chang, AC; Chung, WK; Riehle-Colarusso, T; Curtis, LH ...
Published in: Circulation
April 5, 2016
The National Heart, Lung, and Blood Institute convened a working group in January 2015 to explore issues related to an integrated data network for congenital heart disease research. The overall goal was to develop a common vision for how the rapidly increasing volumes of data captured across numerous sources can be managed, integrated, and analyzed to improve care and outcomes. This report summarizes the current landscape of congenital heart disease data, data integration methodologies used across other fields, key considerations for data integration models in congenital heart disease, and the short- and long-term vision and recommendations made by the working group.
Duke Scholars
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Published In
Circulation
DOI
EISSN
1524-4539
Publication Date
April 5, 2016
Volume
133
Issue
14
Start / End Page
1410 / 1418
Location
United States
Related Subject Headings
- United States
- Registries
- National Heart, Lung, and Blood Institute (U.S.)
- Medical Record Linkage
- Medical Informatics
- Humans
- Heart Defects, Congenital
- Health Information Systems
- Electronic Health Records
- Databases, Factual
Citation
APA
Chicago
ICMJE
MLA
NLM
Pasquali, S. K., Jacobs, J. P., Farber, G. K., Bertoch, D., Blume, E. D., Burns, K. M., … Kaltman, J. R. (2016). Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research. Circulation, 133(14), 1410–1418. https://doi.org/10.1161/CIRCULATIONAHA.115.019506
Pasquali, Sara K., Jeffrey P. Jacobs, Gregory K. Farber, David Bertoch, Elizabeth D. Blume, Kristin M. Burns, Robert Campbell, et al. “Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research.” Circulation 133, no. 14 (April 5, 2016): 1410–18. https://doi.org/10.1161/CIRCULATIONAHA.115.019506.
Pasquali SK, Jacobs JP, Farber GK, Bertoch D, Blume ED, Burns KM, et al. Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research. Circulation. 2016 Apr 5;133(14):1410–8.
Pasquali, Sara K., et al. “Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research.” Circulation, vol. 133, no. 14, Apr. 2016, pp. 1410–18. Pubmed, doi:10.1161/CIRCULATIONAHA.115.019506.
Pasquali SK, Jacobs JP, Farber GK, Bertoch D, Blume ED, Burns KM, Campbell R, Chang AC, Chung WK, Riehle-Colarusso T, Curtis LH, Forrest CB, Gaynor WJ, Gaies MG, Go AS, Henchey P, Martin GR, Pearson G, Pemberton VL, Schwartz SM, Vincent R, Kaltman JR. Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research. Circulation. 2016 Apr 5;133(14):1410–1418.
Published In
Circulation
DOI
EISSN
1524-4539
Publication Date
April 5, 2016
Volume
133
Issue
14
Start / End Page
1410 / 1418
Location
United States
Related Subject Headings
- United States
- Registries
- National Heart, Lung, and Blood Institute (U.S.)
- Medical Record Linkage
- Medical Informatics
- Humans
- Heart Defects, Congenital
- Health Information Systems
- Electronic Health Records
- Databases, Factual