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Community engagement and informed consent in the International HapMap project.

Publication ,  Journal Article
Rotimi, C; Leppert, M; Matsuda, I; Zeng, C; Zhang, H; Adebamowo, C; Ajayi, I; Aniagwu, T; Dixon, M; Fukushima, Y; Macer, D; Marshall, P ...
Published in: Community Genetics
January 2007

The International HapMap Consortium has developed the HapMap, a resource that describes the common patterns of human genetic variation (haplotypes). Processes of community/public consultation and individual informed consent were implemented in each locality where samples were collected to understand and attempt to address both individual and group concerns. Perceptions about the research varied, but we detected no critical opposition to the research. Incorporating community input and responding to concerns raised was challenging. However, the experience suggests that approaching genetic variation research in a spirit of openness can help investigators better appreciate the views of the communities whose samples they seek to study and help communities become more engaged in the science.

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Published In

Community Genetics

DOI

EISSN

1422-2833

ISSN

1422-2795

Publication Date

January 2007

Volume

10

Issue

3

Start / End Page

186 / 198

Related Subject Headings

  • Parents
  • Male
  • International Cooperation
  • Informed Consent
  • Humans
  • Human Genome Project
  • Genetics, Population
  • Genetics & Heredity
  • Genetic Variation
  • Female
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Rotimi, C., Leppert, M., Matsuda, I., Zeng, C., Zhang, H., Adebamowo, C., … International HapMap Consortium, . (2007). Community engagement and informed consent in the International HapMap project. Community Genetics, 10(3), 186–198. https://doi.org/10.1159/000101761
Rotimi, Charles, Mark Leppert, Ichiro Matsuda, Changqing Zeng, Houcan Zhang, Clement Adebamowo, Ike Ajayi, et al. “Community engagement and informed consent in the International HapMap project.Community Genetics 10, no. 3 (January 2007): 186–98. https://doi.org/10.1159/000101761.
Rotimi C, Leppert M, Matsuda I, Zeng C, Zhang H, Adebamowo C, et al. Community engagement and informed consent in the International HapMap project. Community Genetics. 2007 Jan;10(3):186–98.
Rotimi, Charles, et al. “Community engagement and informed consent in the International HapMap project.Community Genetics, vol. 10, no. 3, Jan. 2007, pp. 186–98. Epmc, doi:10.1159/000101761.
Rotimi C, Leppert M, Matsuda I, Zeng C, Zhang H, Adebamowo C, Ajayi I, Aniagwu T, Dixon M, Fukushima Y, Macer D, Marshall P, Nkwodimmah C, Peiffer A, Royal C, Suda E, Zhao H, Wang VO, McEwen J, International HapMap Consortium. Community engagement and informed consent in the International HapMap project. Community Genetics. 2007 Jan;10(3):186–198.

Published In

Community Genetics

DOI

EISSN

1422-2833

ISSN

1422-2795

Publication Date

January 2007

Volume

10

Issue

3

Start / End Page

186 / 198

Related Subject Headings

  • Parents
  • Male
  • International Cooperation
  • Informed Consent
  • Humans
  • Human Genome Project
  • Genetics, Population
  • Genetics & Heredity
  • Genetic Variation
  • Female