Skip to main content
Journal cover image

Community Health Workers as Support for Sickle Cell Care.

Publication ,  Journal Article
Hsu, LL; Green, NS; Donnell Ivy, E; Neunert, CE; Smaldone, A; Johnson, S; Castillo, S; Castillo, A; Thompson, T; Hampton, K; Strouse, JJ ...
Published in: American journal of preventive medicine
July 2016

Community health workers are increasingly recognized as useful for improving health care and health outcomes for a variety of chronic conditions. Community health workers can provide social support, navigation of health systems and resources, and lay counseling. Social and cultural alignment of community health workers with the population they serve is an important aspect of community health worker intervention. Although community health worker interventions have been shown to improve patient-centered outcomes in underserved communities, these interventions have not been evaluated with sickle cell disease. Evidence from other disease areas suggests that community health worker intervention also would be effective for these patients. Sickle cell disease is complex, with a range of barriers to multifaceted care needs at the individual, family/friend, clinical organization, and community levels. Care delivery is complicated by disparities in health care: access, delivery, services, and cultural mismatches between providers and families. Current practices inadequately address or provide incomplete control of symptoms, especially pain, resulting in decreased quality of life and high medical expense. The authors propose that care and care outcomes for people with sickle cell disease could be improved through community health worker case management, social support, and health system navigation. This paper outlines implementation strategies in current use to test community health workers for sickle cell disease management in a variety of settings. National medical and advocacy efforts to develop the community health workforce for sickle cell disease management may enhance the progress and development of "best practices" for this area of community-based care.

Duke Scholars

Altmetric Attention Stats
Dimensions Citation Stats

Published In

American journal of preventive medicine

DOI

EISSN

1873-2607

ISSN

0749-3797

Publication Date

July 2016

Volume

51

Issue

1 Suppl 1

Start / End Page

S87 / S98

Related Subject Headings

  • Quality of Life
  • Public Health
  • Humans
  • Disease Management
  • Delivery of Health Care
  • Community Health Workers
  • Chronic Disease
  • Anemia, Sickle Cell
  • 42 Health sciences
  • 39 Education
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Hsu, L. L., Green, N. S., Donnell Ivy, E., Neunert, C. E., Smaldone, A., Johnson, S., … Martin, M. (2016). Community Health Workers as Support for Sickle Cell Care. American Journal of Preventive Medicine, 51(1 Suppl 1), S87–S98. https://doi.org/10.1016/j.amepre.2016.01.016
Hsu, Lewis L., Nancy S. Green, E. Donnell Ivy, Cindy E. Neunert, Arlene Smaldone, Shirley Johnson, Sheila Castillo, et al. “Community Health Workers as Support for Sickle Cell Care.American Journal of Preventive Medicine 51, no. 1 Suppl 1 (July 2016): S87–98. https://doi.org/10.1016/j.amepre.2016.01.016.
Hsu LL, Green NS, Donnell Ivy E, Neunert CE, Smaldone A, Johnson S, et al. Community Health Workers as Support for Sickle Cell Care. American journal of preventive medicine. 2016 Jul;51(1 Suppl 1):S87–98.
Hsu, Lewis L., et al. “Community Health Workers as Support for Sickle Cell Care.American Journal of Preventive Medicine, vol. 51, no. 1 Suppl 1, July 2016, pp. S87–98. Epmc, doi:10.1016/j.amepre.2016.01.016.
Hsu LL, Green NS, Donnell Ivy E, Neunert CE, Smaldone A, Johnson S, Castillo S, Castillo A, Thompson T, Hampton K, Strouse JJ, Stewart R, Hughes T, Banks S, Smith-Whitley K, King A, Brown M, Ohene-Frempong K, Smith WR, Martin M. Community Health Workers as Support for Sickle Cell Care. American journal of preventive medicine. 2016 Jul;51(1 Suppl 1):S87–S98.
Journal cover image

Published In

American journal of preventive medicine

DOI

EISSN

1873-2607

ISSN

0749-3797

Publication Date

July 2016

Volume

51

Issue

1 Suppl 1

Start / End Page

S87 / S98

Related Subject Headings

  • Quality of Life
  • Public Health
  • Humans
  • Disease Management
  • Delivery of Health Care
  • Community Health Workers
  • Chronic Disease
  • Anemia, Sickle Cell
  • 42 Health sciences
  • 39 Education