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Rehabilitation Management of the Patient With Duchenne Muscular Dystrophy.

Publication ,  Journal Article
Case, LE; Apkon, SD; Eagle, M; Gulyas, A; Juel, L; Matthews, D; Newton, RA; Posselt, HF
Published in: Pediatrics
October 2018

Steadily improving management of Duchenne muscular dystrophy (DMD) continues to lead to improved physical and functional status, allowing increasingly successful transitions to independence and self-actualization in adulthood. Rehabilitation principles remain key to overall management for individuals with DMD with increasing options for ever more successful management, reflecting a changing natural history based on the use of glucocorticoids, more consistent comprehensive care, and the emergence of disease-modifying treatments. Advances and expansion in assessment, cardiorespiratory management, preventive management of contracture and deformity, assistive technology, "smart" technology, and robotics with increased emphasis on function, participation, self-advocacy, and independence in decision-making should allow individuals with DMD to experience childhood and transition to adulthood with support that allows for increasing success in the achievement of individual goals and fulfillment across the life span.

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Published In

Pediatrics

DOI

EISSN

1098-4275

Publication Date

October 2018

Volume

142

Issue

Suppl 2

Start / End Page

S17 / S33

Location

United States

Related Subject Headings

  • Pediatrics
  • Muscular Dystrophy, Duchenne
  • Humans
  • Exercise Therapy
  • Child
  • 52 Psychology
  • 42 Health sciences
  • 32 Biomedical and clinical sciences
  • 17 Psychology and Cognitive Sciences
  • 11 Medical and Health Sciences
 

Citation

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ICMJE
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Case, L. E., Apkon, S. D., Eagle, M., Gulyas, A., Juel, L., Matthews, D., … Posselt, H. F. (2018). Rehabilitation Management of the Patient With Duchenne Muscular Dystrophy. Pediatrics, 142(Suppl 2), S17–S33. https://doi.org/10.1542/peds.2018-0333D
Case, Laura E., Susan D. Apkon, Michelle Eagle, Ann Gulyas, Laura Juel, Dennis Matthews, Robbin A. Newton, and Helen F. Posselt. “Rehabilitation Management of the Patient With Duchenne Muscular Dystrophy.Pediatrics 142, no. Suppl 2 (October 2018): S17–33. https://doi.org/10.1542/peds.2018-0333D.
Case LE, Apkon SD, Eagle M, Gulyas A, Juel L, Matthews D, et al. Rehabilitation Management of the Patient With Duchenne Muscular Dystrophy. Pediatrics. 2018 Oct;142(Suppl 2):S17–33.
Case, Laura E., et al. “Rehabilitation Management of the Patient With Duchenne Muscular Dystrophy.Pediatrics, vol. 142, no. Suppl 2, Oct. 2018, pp. S17–33. Pubmed, doi:10.1542/peds.2018-0333D.
Case LE, Apkon SD, Eagle M, Gulyas A, Juel L, Matthews D, Newton RA, Posselt HF. Rehabilitation Management of the Patient With Duchenne Muscular Dystrophy. Pediatrics. 2018 Oct;142(Suppl 2):S17–S33.

Published In

Pediatrics

DOI

EISSN

1098-4275

Publication Date

October 2018

Volume

142

Issue

Suppl 2

Start / End Page

S17 / S33

Location

United States

Related Subject Headings

  • Pediatrics
  • Muscular Dystrophy, Duchenne
  • Humans
  • Exercise Therapy
  • Child
  • 52 Psychology
  • 42 Health sciences
  • 32 Biomedical and clinical sciences
  • 17 Psychology and Cognitive Sciences
  • 11 Medical and Health Sciences