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PCORnet® 2020: current state, accomplishments, and future directions.

Publication ,  Journal Article
Forrest, CB; McTigue, KM; Hernandez, AF; Cohen, LW; Cruz, H; Haynes, K; Kaushal, R; Kho, AN; Marsolo, KA; Nair, VP; Platt, R; Puro, JE ...
Published in: J Clin Epidemiol
January 2021

OBJECTIVE: To describe PCORnet, a clinical research network developed for patient-centered outcomes research on a national scale. STUDY DESIGN AND SETTING: Descriptive study of the current state and future directions for PCORnet. We conducted cross-sectional analyses of the health systems and patient populations of the 9 Clinical Research Networks and 2 Health Plan Research Networks that are part of PCORnet. RESULTS: Within the Clinical Research Networks, electronic health data are currently collected from 337 hospitals, 169,695 physicians, 3,564 primary care practices, 338 emergency departments, and 1,024 community clinics. Patients can be recruited for prospective studies from any of these clinical sites. The Clinical Research Networks have accumulated data from 80 million patients with at least one visit from 2009 to 2018. The PCORnet Health Plan Research Network population of individuals with a valid enrollment segment from 2009 to 2019 exceeds 60 million individuals, who on average have 2.63 years of follow-up. CONCLUSION: PCORnet's infrastructure comprises clinical data from a diverse cohort of patients and has the capacity to rapidly access these patient populations for pragmatic clinical trials, epidemiological research, and patient-centered research on rare diseases.

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Published In

J Clin Epidemiol

DOI

EISSN

1878-5921

Publication Date

January 2021

Volume

129

Start / End Page

60 / 67

Location

United States

Related Subject Headings

  • Treatment Outcome
  • Prospective Studies
  • Pragmatic Clinical Trials as Topic
  • Patient Selection
  • Information Services
  • Information Dissemination
  • Humans
  • Epidemiology
  • Electronic Health Records
  • Biomedical Research
 

Citation

APA
Chicago
ICMJE
MLA
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Forrest, C. B., McTigue, K. M., Hernandez, A. F., Cohen, L. W., Cruz, H., Haynes, K., … Carton, T. W. (2021). PCORnet® 2020: current state, accomplishments, and future directions. J Clin Epidemiol, 129, 60–67. https://doi.org/10.1016/j.jclinepi.2020.09.036
Forrest, Christopher B., Kathleen M. McTigue, Adrian F. Hernandez, Lauren W. Cohen, Henry Cruz, Kevin Haynes, Rainu Kaushal, et al. “PCORnet® 2020: current state, accomplishments, and future directions.J Clin Epidemiol 129 (January 2021): 60–67. https://doi.org/10.1016/j.jclinepi.2020.09.036.
Forrest CB, McTigue KM, Hernandez AF, Cohen LW, Cruz H, Haynes K, et al. PCORnet® 2020: current state, accomplishments, and future directions. J Clin Epidemiol. 2021 Jan;129:60–7.
Forrest, Christopher B., et al. “PCORnet® 2020: current state, accomplishments, and future directions.J Clin Epidemiol, vol. 129, Jan. 2021, pp. 60–67. Pubmed, doi:10.1016/j.jclinepi.2020.09.036.
Forrest CB, McTigue KM, Hernandez AF, Cohen LW, Cruz H, Haynes K, Kaushal R, Kho AN, Marsolo KA, Nair VP, Platt R, Puro JE, Rothman RL, Shenkman EA, Waitman LR, Williams NA, Carton TW. PCORnet® 2020: current state, accomplishments, and future directions. J Clin Epidemiol. 2021 Jan;129:60–67.
Journal cover image

Published In

J Clin Epidemiol

DOI

EISSN

1878-5921

Publication Date

January 2021

Volume

129

Start / End Page

60 / 67

Location

United States

Related Subject Headings

  • Treatment Outcome
  • Prospective Studies
  • Pragmatic Clinical Trials as Topic
  • Patient Selection
  • Information Services
  • Information Dissemination
  • Humans
  • Epidemiology
  • Electronic Health Records
  • Biomedical Research