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Influence of Caretakers' Health Literacy on Delays to Traumatic Brain Injury Care in Uganda.

Publication ,  Journal Article
Nwosu, C; Spears, CA; Pate, C; Gold, DT; Bennett, G; Haglund, M; Fuller, A
Published in: Ann Glob Health
October 6, 2020

BACKGROUND: Traumatic brain injury (TBI) is a life-altering condition, and delays to care can significantly impact outcomes. In Uganda, where nurse shortages are prevalent, patients' family members are the primary caretakers of these patients and play an important role in ensuring patients' access to timely care. However, caretakers often have little or no knowledge of appropriate patient care. Caretakers' ability to navigate the healthcare system and find and use health information to support their patients can impact delays in seeking, reaching, and receiving care. OBJECTIVES: This study seeks to determine the factors that impact TBI patient caretakers' health literacy and examine how these factors influence delays in care. METHODS: This study was carried out in the Mulago National Referral Hospital neurosurgical ward, where 27 adult caretakers were interviewed using semi-structured, in-depth, qualitative interviews. "The Three Delay Framework" was utilized to understand participants' experiences in seeking, reaching, and receiving care for TBI patients. Thematic content analysis and manual coding was used to analyze interview transcripts and identify overarching themes in participant responses. FINDINGS: The main health literacy themes identified were Extrinsic, Intrinsic and Health System Factors. Nine sub-themes were identified: Government Support, Community Support, Financial Burdens, Lack of Medical Resources, Access to Health Information, Physician Support, Emotional Challenges, Navigational Skills, and Understanding of Health Information. These components were found to influence the delays to care to varying degrees. Financial Burdens, Government Support, Emotional Challenges, Physician Support and Lack of Medical Resources were recurring factors across the three delays. CONCLUSION: The health literacy factors identified in this study influence caretakers' functional health literacy and delays to care in a co-dependent manner. A better understanding of how these factors impact patient outcomes is necessary for the development of interventions targeted at improving a caretaker's ability to maneuver the healthcare system and support patients in resource-poor settings.

Duke Scholars

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Published In

Ann Glob Health

DOI

EISSN

2214-9996

Publication Date

October 6, 2020

Volume

86

Issue

1

Start / End Page

127

Location

United States

Related Subject Headings

  • Uganda
  • Humans
  • Health Literacy
  • Caregivers
  • Brain Injuries, Traumatic
  • Adult
  • 4206 Public health
  • 1117 Public Health and Health Services
  • 1103 Clinical Sciences
 

Citation

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Nwosu, C., Spears, C. A., Pate, C., Gold, D. T., Bennett, G., Haglund, M., & Fuller, A. (2020). Influence of Caretakers' Health Literacy on Delays to Traumatic Brain Injury Care in Uganda. Ann Glob Health, 86(1), 127. https://doi.org/10.5334/aogh.2978
Nwosu, Chinemerem, Charis A. Spears, Charles Pate, Deborah T. Gold, Gary Bennett, Michael Haglund, and Anthony Fuller. “Influence of Caretakers' Health Literacy on Delays to Traumatic Brain Injury Care in Uganda.Ann Glob Health 86, no. 1 (October 6, 2020): 127. https://doi.org/10.5334/aogh.2978.
Nwosu C, Spears CA, Pate C, Gold DT, Bennett G, Haglund M, et al. Influence of Caretakers' Health Literacy on Delays to Traumatic Brain Injury Care in Uganda. Ann Glob Health. 2020 Oct 6;86(1):127.
Nwosu, Chinemerem, et al. “Influence of Caretakers' Health Literacy on Delays to Traumatic Brain Injury Care in Uganda.Ann Glob Health, vol. 86, no. 1, Oct. 2020, p. 127. Pubmed, doi:10.5334/aogh.2978.
Nwosu C, Spears CA, Pate C, Gold DT, Bennett G, Haglund M, Fuller A. Influence of Caretakers' Health Literacy on Delays to Traumatic Brain Injury Care in Uganda. Ann Glob Health. 2020 Oct 6;86(1):127.
Journal cover image

Published In

Ann Glob Health

DOI

EISSN

2214-9996

Publication Date

October 6, 2020

Volume

86

Issue

1

Start / End Page

127

Location

United States

Related Subject Headings

  • Uganda
  • Humans
  • Health Literacy
  • Caregivers
  • Brain Injuries, Traumatic
  • Adult
  • 4206 Public health
  • 1117 Public Health and Health Services
  • 1103 Clinical Sciences