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Educational Resources and Self-Management Support to Engage Patients in Advance Care Planning: An Interpretation of Current Practice in the US.

Publication ,  Journal Article
Gazarian, P; Gupta, A; Reich, A; Perez, S; Semco, R; Prigerson, H; Ashana, D; Dey, T; Carlston, D; Cooper, Z; Weissman, J; Ladin, K
Published in: Am J Hosp Palliat Care
August 2022

BACKGROUND: Educational resources and decision aids help patients, their care partners and health care providers prepare for and confidently engage in Advance Care Planning (ACP). Incorporating ACP resources as part of a self-management approach may lead to fuller engagement with ACP beyond identifying a surrogate decision-maker, towards supporting a person to identify their values and goals and to communicate them with their care partners and health care providers. OBJECTIVE: To examine the use of educational resources and decision aids to support self-management of ACP in 11 health systems across the US. METHODS: This study was a qualitative interview study examining barriers and facilitators to ACP. Guided by interpretative description and the chronic care model, we sought to describe how health care stakeholders (clinicians and administrators) and patients use ACP resources to support engagement with ACP. RESULTS: 274 health care stakeholders were interviewed, and 7 patient focus groups were conducted across 11 health systems. The majority of participants reported using resources to support completion of preference documentation, with fewer participants using resources that promote more engagement in ACP. ACP resources were reported as valuable in preparing for and complementing a complex, interpersonal, and interprofessional process. Barriers to using resources included a lack of a defined workflow and time. CONCLUSION: Our data suggest that ACP resources that promote engagement are valued but under-utilized in practice. The use of ACP resources with an inter-professional team and a self-management approach is a promising strategy to mitigate the barriers of ACP implementation while improving engagement in ACP.

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Published In

Am J Hosp Palliat Care

DOI

EISSN

1938-2715

Publication Date

August 2022

Volume

39

Issue

8

Start / End Page

934 / 944

Location

United States

Related Subject Headings

  • Workflow
  • Self-Management
  • Humans
  • Health Personnel
  • Gerontology
  • Documentation
  • Advance Care Planning
  • 4205 Nursing
  • 4203 Health services and systems
  • 1110 Nursing
 

Citation

APA
Chicago
ICMJE
MLA
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Gazarian, P., Gupta, A., Reich, A., Perez, S., Semco, R., Prigerson, H., … Ladin, K. (2022). Educational Resources and Self-Management Support to Engage Patients in Advance Care Planning: An Interpretation of Current Practice in the US. Am J Hosp Palliat Care, 39(8), 934–944. https://doi.org/10.1177/10499091211064834
Gazarian, Priscilla, Avni Gupta, Amanda Reich, Stephen Perez, Robert Semco, Holly Prigerson, Deepshikha Ashana, et al. “Educational Resources and Self-Management Support to Engage Patients in Advance Care Planning: An Interpretation of Current Practice in the US.Am J Hosp Palliat Care 39, no. 8 (August 2022): 934–44. https://doi.org/10.1177/10499091211064834.
Gazarian P, Gupta A, Reich A, Perez S, Semco R, Prigerson H, et al. Educational Resources and Self-Management Support to Engage Patients in Advance Care Planning: An Interpretation of Current Practice in the US. Am J Hosp Palliat Care. 2022 Aug;39(8):934–44.
Gazarian, Priscilla, et al. “Educational Resources and Self-Management Support to Engage Patients in Advance Care Planning: An Interpretation of Current Practice in the US.Am J Hosp Palliat Care, vol. 39, no. 8, Aug. 2022, pp. 934–44. Pubmed, doi:10.1177/10499091211064834.
Gazarian P, Gupta A, Reich A, Perez S, Semco R, Prigerson H, Ashana D, Dey T, Carlston D, Cooper Z, Weissman J, Ladin K. Educational Resources and Self-Management Support to Engage Patients in Advance Care Planning: An Interpretation of Current Practice in the US. Am J Hosp Palliat Care. 2022 Aug;39(8):934–944.
Journal cover image

Published In

Am J Hosp Palliat Care

DOI

EISSN

1938-2715

Publication Date

August 2022

Volume

39

Issue

8

Start / End Page

934 / 944

Location

United States

Related Subject Headings

  • Workflow
  • Self-Management
  • Humans
  • Health Personnel
  • Gerontology
  • Documentation
  • Advance Care Planning
  • 4205 Nursing
  • 4203 Health services and systems
  • 1110 Nursing