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Social determinants of health data in solid organ transplantation: National data sources and future directions.

Publication ,  Journal Article
Chan, NW; Moya-Mendez, M; Henson, JB; Zaribafzadeh, H; Sendak, MP; Bhavsar, NA; Balu, S; Kirk, AD; McElroy, LM
Published in: Am J Transplant
October 2022

Health equity research in transplantation has largely relied on national data sources, yet the availability of social determinants of health (SDOH) data varies widely among these sources. We sought to characterize the extent to which national data sources contain SDOH data applicable to end-stage organ disease (ESOD) and transplant patients. We reviewed 10 active national data sources based in the United States. For each data source, we examined patient inclusion criteria and explored strengths and limitations regarding SDOH data, using the National Institutes of Health PhenX toolkit of SDOH as a data collection instrument. Of the 28 SDOH variables reviewed, eight-core demographic variables were included in ≥80% of the data sources, and seven variables that described elements of social status ranged between 30 and 60% inclusion. Variables regarding identity, healthcare access, and social need were poorly represented (≤20%) across the data sources, and five of these variables were included in none of the data sources. The results of our review highlight the need for improved SDOH data collection systems in ESOD and transplant patients via: enhanced inter-registry collaboration, incorporation of standardized SDOH variables into existing data sources, and transplant center and consortium-based investigation and innovation.

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Published In

Am J Transplant

DOI

EISSN

1600-6143

Publication Date

October 2022

Volume

22

Issue

10

Start / End Page

2293 / 2301

Location

United States

Related Subject Headings

  • United States
  • Surgery
  • Social Determinants of Health
  • Organ Transplantation
  • Information Storage and Retrieval
  • Humans
  • Health Equity
  • Data Collection
  • 3204 Immunology
  • 3202 Clinical sciences
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Chan, N. W., Moya-Mendez, M., Henson, J. B., Zaribafzadeh, H., Sendak, M. P., Bhavsar, N. A., … McElroy, L. M. (2022). Social determinants of health data in solid organ transplantation: National data sources and future directions. Am J Transplant, 22(10), 2293–2301. https://doi.org/10.1111/ajt.17096
Chan, Norine W., Mary Moya-Mendez, Jacqueline B. Henson, Hamed Zaribafzadeh, Mark P. Sendak, Nrupen A. Bhavsar, Suresh Balu, Allan D. Kirk, and Lisa M. McElroy. “Social determinants of health data in solid organ transplantation: National data sources and future directions.Am J Transplant 22, no. 10 (October 2022): 2293–2301. https://doi.org/10.1111/ajt.17096.
Chan NW, Moya-Mendez M, Henson JB, Zaribafzadeh H, Sendak MP, Bhavsar NA, et al. Social determinants of health data in solid organ transplantation: National data sources and future directions. Am J Transplant. 2022 Oct;22(10):2293–301.
Chan, Norine W., et al. “Social determinants of health data in solid organ transplantation: National data sources and future directions.Am J Transplant, vol. 22, no. 10, Oct. 2022, pp. 2293–301. Pubmed, doi:10.1111/ajt.17096.
Chan NW, Moya-Mendez M, Henson JB, Zaribafzadeh H, Sendak MP, Bhavsar NA, Balu S, Kirk AD, McElroy LM. Social determinants of health data in solid organ transplantation: National data sources and future directions. Am J Transplant. 2022 Oct;22(10):2293–2301.
Journal cover image

Published In

Am J Transplant

DOI

EISSN

1600-6143

Publication Date

October 2022

Volume

22

Issue

10

Start / End Page

2293 / 2301

Location

United States

Related Subject Headings

  • United States
  • Surgery
  • Social Determinants of Health
  • Organ Transplantation
  • Information Storage and Retrieval
  • Humans
  • Health Equity
  • Data Collection
  • 3204 Immunology
  • 3202 Clinical sciences