Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center.
Publication
, Journal Article
Hulbert, ML; Manwani, D; Meier, ER; Alvarez, OA; Brown, RC; Callaghan, MU; Campbell, AD; Coates, TD; Frei-Jones, MJ; Hankins, JS; Heeney, MM ...
Published in: Pediatr Blood Cancer
January 2023
Sickle cell disease (SCD) requires coordinated, specialized medical care for optimal outcomes. There are no United States (US) guidelines that define a pediatric comprehensive SCD program. We report a modified Delphi consensus-seeking process to determine essential, optimal, and suggested elements of a comprehensive pediatric SCD center. Nineteen pediatric SCD specialists participated from the US. Consensus was predefined as 2/3 agreement on each element's categorization. Twenty-six elements were considered essential (required for guideline-based SCD care), 10 were optimal (recommended but not required), and five were suggested. This work lays the foundation for a formal recognition process of pediatric comprehensive SCD centers.
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Published In
Pediatr Blood Cancer
DOI
EISSN
1545-5017
Publication Date
January 2023
Volume
70
Issue
1
Start / End Page
e29961
Location
United States
Related Subject Headings
- Oncology & Carcinogenesis
- Humans
- Consensus
- Child
- Anemia, Sickle Cell
- 3213 Paediatrics
- 3211 Oncology and carcinogenesis
- 1114 Paediatrics and Reproductive Medicine
- 1112 Oncology and Carcinogenesis
- 1103 Clinical Sciences
Citation
APA
Chicago
ICMJE
MLA
NLM
Hulbert, M. L., Manwani, D., Meier, E. R., Alvarez, O. A., Brown, R. C., Callaghan, M. U., … Kanter, J. (2023). Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center. Pediatr Blood Cancer, 70(1), e29961. https://doi.org/10.1002/pbc.29961
Hulbert, Monica L., Deepa Manwani, Emily Riehm Meier, Ofelia A. Alvarez, R Clark Brown, Michael U. Callaghan, Andrew D. Campbell, et al. “Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center.” Pediatr Blood Cancer 70, no. 1 (January 2023): e29961. https://doi.org/10.1002/pbc.29961.
Hulbert ML, Manwani D, Meier ER, Alvarez OA, Brown RC, Callaghan MU, et al. Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center. Pediatr Blood Cancer. 2023 Jan;70(1):e29961.
Hulbert, Monica L., et al. “Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center.” Pediatr Blood Cancer, vol. 70, no. 1, Jan. 2023, p. e29961. Pubmed, doi:10.1002/pbc.29961.
Hulbert ML, Manwani D, Meier ER, Alvarez OA, Brown RC, Callaghan MU, Campbell AD, Coates TD, Frei-Jones MJ, Hankins JS, Heeney MM, Hsu LL, Lebensburger JD, Quinn CT, Shah N, Smith-Whitley K, Thornburg C, Kanter J. Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center. Pediatr Blood Cancer. 2023 Jan;70(1):e29961.
Published In
Pediatr Blood Cancer
DOI
EISSN
1545-5017
Publication Date
January 2023
Volume
70
Issue
1
Start / End Page
e29961
Location
United States
Related Subject Headings
- Oncology & Carcinogenesis
- Humans
- Consensus
- Child
- Anemia, Sickle Cell
- 3213 Paediatrics
- 3211 Oncology and carcinogenesis
- 1114 Paediatrics and Reproductive Medicine
- 1112 Oncology and Carcinogenesis
- 1103 Clinical Sciences