Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease.
Publication
, Journal Article
Smith, GM; Lewis, VR; Whitworth, E; Gold, DT; Thornburg, CD
Published in: J Pediatr Hematol Oncol
July 2011
We implemented the Duke Sickle Cell Disease (SCD) Transition Program for adolescents with SCD and investigated the knowledge about SCD; concerns and emotions about transitioning; and the initial impact of the Transition Program. Thirty-three adolescents participated in the initial study. Gaps in knowledge included ethnicities affected by SCD and inheritance of SCD. Adolescents were primarily concerned about transferring to a new medical team. There was a mix of both positive and negative emotions that varied over time. Overall, we have identified educational gaps and concerns and emotions about transitioning, which we will address through the Duke SCD Transition Program.
Duke Scholars
Published In
J Pediatr Hematol Oncol
DOI
EISSN
1536-3678
Publication Date
July 2011
Volume
33
Issue
5
Start / End Page
379 / 382
Location
United States
Related Subject Headings
- Surveys and Questionnaires
- Psychology, Adolescent
- Program Evaluation
- Pilot Projects
- Pediatrics
- Oncology & Carcinogenesis
- Male
- Humans
- Female
- Emotions
Citation
APA
Chicago
ICMJE
MLA
NLM
Smith, G. M., Lewis, V. R., Whitworth, E., Gold, D. T., & Thornburg, C. D. (2011). Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease. J Pediatr Hematol Oncol, 33(5), 379–382. https://doi.org/10.1097/MPH.0b013e318211bb2e
Smith, Grant M., Vivian R. Lewis, Elaine Whitworth, Deborah T. Gold, and Courtney D. Thornburg. “Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease.” J Pediatr Hematol Oncol 33, no. 5 (July 2011): 379–82. https://doi.org/10.1097/MPH.0b013e318211bb2e.
Smith GM, Lewis VR, Whitworth E, Gold DT, Thornburg CD. Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease. J Pediatr Hematol Oncol. 2011 Jul;33(5):379–82.
Smith, Grant M., et al. “Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease.” J Pediatr Hematol Oncol, vol. 33, no. 5, July 2011, pp. 379–82. Pubmed, doi:10.1097/MPH.0b013e318211bb2e.
Smith GM, Lewis VR, Whitworth E, Gold DT, Thornburg CD. Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease. J Pediatr Hematol Oncol. 2011 Jul;33(5):379–382.
Published In
J Pediatr Hematol Oncol
DOI
EISSN
1536-3678
Publication Date
July 2011
Volume
33
Issue
5
Start / End Page
379 / 382
Location
United States
Related Subject Headings
- Surveys and Questionnaires
- Psychology, Adolescent
- Program Evaluation
- Pilot Projects
- Pediatrics
- Oncology & Carcinogenesis
- Male
- Humans
- Female
- Emotions