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Database comparison of the adult-to-adult living donor liver transplantation cohort study (A2ALL) and the SRTR U.S. Transplant Registry.

Publication ,  Journal Article
Gillespie, BW; Merion, RM; Ortiz-Rios, E; Tong, L; Shaked, A; Brown, RS; Ojo, AO; Hayashi, PH; Berg, CL; Abecassis, MM; Ashworth, AS; Hong, JC ...
Published in: Am J Transplant
July 2010

Data submitted by transplant programs to the Organ Procurement and Transplantation Network (OPTN) are used by the Scientific Registry of Transplant Recipients (SRTR) for policy development, performance evaluation and research. This study compared OPTN/SRTR data with data extracted from medical records by research coordinators from the nine-center A2ALL study. A2ALL data were collected independently of OPTN data submission (48 data elements among 785 liver transplant candidates/recipients; 12 data elements among 386 donors). At least 90% agreement occurred between OPTN/SRTR and A2ALL for 11/29 baseline recipient elements, 4/19 recipient transplant or follow-up elements and 6/12 donor elements. For the remaining recipient and donor elements, >10% of values were missing in OPTN/SRTR but present in A2ALL, confirming that missing data were largely avoidable. Other than variables required for allocation, the percentage missing varied widely by center. These findings support an expanded focus on data quality control by OPTN/SRTR for a broader variable set than those used for allocation. Center-specific monitoring of missing values could substantially improve the data.

Duke Scholars

Published In

Am J Transplant

DOI

EISSN

1600-6143

Publication Date

July 2010

Volume

10

Issue

7

Start / End Page

1621 / 1633

Location

United States

Related Subject Headings

  • United States
  • Surgery
  • Research
  • Registries
  • Racial Groups
  • Medical Records
  • Male
  • Living Donors
  • Liver Transplantation
  • International Normalized Ratio
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Gillespie, B. W., Merion, R. M., Ortiz-Rios, E., Tong, L., Shaked, A., Brown, R. S., … A2ALL Study Group, . (2010). Database comparison of the adult-to-adult living donor liver transplantation cohort study (A2ALL) and the SRTR U.S. Transplant Registry. Am J Transplant, 10(7), 1621–1633. https://doi.org/10.1111/j.1600-6143.2010.03039.x
Gillespie, B. W., R. M. Merion, E. Ortiz-Rios, L. Tong, A. Shaked, R. S. Brown, A. O. Ojo, et al. “Database comparison of the adult-to-adult living donor liver transplantation cohort study (A2ALL) and the SRTR U.S. Transplant Registry.Am J Transplant 10, no. 7 (July 2010): 1621–33. https://doi.org/10.1111/j.1600-6143.2010.03039.x.
Gillespie BW, Merion RM, Ortiz-Rios E, Tong L, Shaked A, Brown RS, et al. Database comparison of the adult-to-adult living donor liver transplantation cohort study (A2ALL) and the SRTR U.S. Transplant Registry. Am J Transplant. 2010 Jul;10(7):1621–33.
Gillespie, B. W., et al. “Database comparison of the adult-to-adult living donor liver transplantation cohort study (A2ALL) and the SRTR U.S. Transplant Registry.Am J Transplant, vol. 10, no. 7, July 2010, pp. 1621–33. Pubmed, doi:10.1111/j.1600-6143.2010.03039.x.
Gillespie BW, Merion RM, Ortiz-Rios E, Tong L, Shaked A, Brown RS, Ojo AO, Hayashi PH, Berg CL, Abecassis MM, Ashworth AS, Friese CE, Hong JC, Trotter JF, Everhart JE, A2ALL Study Group. Database comparison of the adult-to-adult living donor liver transplantation cohort study (A2ALL) and the SRTR U.S. Transplant Registry. Am J Transplant. 2010 Jul;10(7):1621–1633.
Journal cover image

Published In

Am J Transplant

DOI

EISSN

1600-6143

Publication Date

July 2010

Volume

10

Issue

7

Start / End Page

1621 / 1633

Location

United States

Related Subject Headings

  • United States
  • Surgery
  • Research
  • Registries
  • Racial Groups
  • Medical Records
  • Male
  • Living Donors
  • Liver Transplantation
  • International Normalized Ratio