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Research ethics. Certificates of confidentiality and compelled disclosure of data.

Publication ,  Journal Article
Beskow, LM; Dame, L; Costello, EJ
Published in: Science
November 14, 2008

Certificates of Confidentiality have gained prominence in the context of efforts to build large-scale research platforms and new requirements for an unprecedented degree of data sharing. There is, however, a remarkable paucity of evidence upon which to base conclusions about the strength, applicability, and durability of the legal protections a Certificate affords. Here we describe a recent legal challenge in which a research participant’s data, collected under a Certificate, were subpoenaed as part of a criminal case that reached the North Carolina Court of Appeals. We show how, despite the legal protections ostensibly afforded by the Certificate and the vigorous objections of the Principal Investigator and institutional counsel, the research subject’s confidentiality was ultimately compromised in the course of the legal proceedings; further, we discuss the broader implications of this case for the research enterprise as a whole.

Duke Scholars

Published In

Science

DOI

EISSN

1095-9203

Publication Date

November 14, 2008

Volume

322

Issue

5904

Start / End Page

1054 / 1055

Location

United States

Related Subject Headings

  • Universities
  • United States
  • Research Subjects
  • Jurisprudence
  • Humans
  • General Science & Technology
  • Disclosure
  • Confidentiality
  • Biomedical Research
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Beskow, L. M., Dame, L., & Costello, E. J. (2008). Research ethics. Certificates of confidentiality and compelled disclosure of data. Science, 322(5904), 1054–1055. https://doi.org/10.1126/science.1164100
Beskow, Laura M., Lauren Dame, and E Jane Costello. “Research ethics. Certificates of confidentiality and compelled disclosure of data.Science 322, no. 5904 (November 14, 2008): 1054–55. https://doi.org/10.1126/science.1164100.
Beskow LM, Dame L, Costello EJ. Research ethics. Certificates of confidentiality and compelled disclosure of data. Science. 2008 Nov 14;322(5904):1054–5.
Beskow, Laura M., et al. “Research ethics. Certificates of confidentiality and compelled disclosure of data.Science, vol. 322, no. 5904, Nov. 2008, pp. 1054–55. Pubmed, doi:10.1126/science.1164100.
Beskow LM, Dame L, Costello EJ. Research ethics. Certificates of confidentiality and compelled disclosure of data. Science. 2008 Nov 14;322(5904):1054–1055.
Journal cover image

Published In

Science

DOI

EISSN

1095-9203

Publication Date

November 14, 2008

Volume

322

Issue

5904

Start / End Page

1054 / 1055

Location

United States

Related Subject Headings

  • Universities
  • United States
  • Research Subjects
  • Jurisprudence
  • Humans
  • General Science & Technology
  • Disclosure
  • Confidentiality
  • Biomedical Research