Skip to main content
release_alert
Welcome to the new Scholars 3.0! Read about new features and let us know what you think.
cancel
Journal cover image

Customization of the TRU-PBMT App (Technology Recordings to better Understand Pediatric Blood and Marrow Transplant).

Publication ,  Journal Article
Vaughn, J; Jonassaint, J; Summers-Goeckerman, E; Shaw, RJ; Shah, N
Published in: J Pediatr Nurs
2018

PURPOSE: Our investigative team is integrating mobile health technologies into pediatric blood and marrow transplant (PBMT) care. We aim to evaluate whether patient-generated health data can be used to monitor health status and enhance symptom management. While there are numerous health-related apps, none address the symptoms or care needs specific to PBMT patients. This article describes development of the Technology Recording to better Understand Pediatric Blood and Marrow Transplant (TRU-PBMT) mobile application. DESIGN AND METHODS: A one-time survey was distributed to PBMT clinicians, caregivers, and outpatients to elicit feedback and suggestions for the app's design. RESULTS: Feedback from clinicians (n = 23), caregivers (n = 5), and PBMT outpatients (n = 4) indicated the app would be acceptable and useable with this group of patients between eight and eighteen years of age. Suggestions from respondents included: making the app language and graphics more child-friendly; adding symptoms such as fatigue, mucositis, bleeding; and a visual stool chart. CONCLUSION: Patient, caregiver, and clinician feedback was valuable in creation of the TRU-PBMT app. We designed a pediatric friendly, PBMT-symptom-specific app, which we will test in future studies. IMPLICATIONS FOR PRACTICE: This app facilitates patient-generated health data collection and informs health care plans.

Duke Scholars

Published In

J Pediatr Nurs

DOI

EISSN

1532-8449

Publication Date

2018

Volume

42

Start / End Page

86 / 91

Location

United States

Related Subject Headings

  • Telemedicine
  • Patient Reported Outcome Measures
  • Patient Portals
  • Nursing
  • Male
  • Humans
  • Health Knowledge, Attitudes, Practice
  • Female
  • Child
  • Bone Marrow Transplantation
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Vaughn, J., Jonassaint, J., Summers-Goeckerman, E., Shaw, R. J., & Shah, N. (2018). Customization of the TRU-PBMT App (Technology Recordings to better Understand Pediatric Blood and Marrow Transplant). J Pediatr Nurs, 42, 86–91. https://doi.org/10.1016/j.pedn.2018.07.007
Vaughn, Jacqueline, Jude Jonassaint, Erika Summers-Goeckerman, Ryan J. Shaw, and Nirmish Shah. “Customization of the TRU-PBMT App (Technology Recordings to better Understand Pediatric Blood and Marrow Transplant).J Pediatr Nurs 42 (2018): 86–91. https://doi.org/10.1016/j.pedn.2018.07.007.
Vaughn J, Jonassaint J, Summers-Goeckerman E, Shaw RJ, Shah N. Customization of the TRU-PBMT App (Technology Recordings to better Understand Pediatric Blood and Marrow Transplant). J Pediatr Nurs. 2018;42:86–91.
Vaughn, Jacqueline, et al. “Customization of the TRU-PBMT App (Technology Recordings to better Understand Pediatric Blood and Marrow Transplant).J Pediatr Nurs, vol. 42, 2018, pp. 86–91. Pubmed, doi:10.1016/j.pedn.2018.07.007.
Vaughn J, Jonassaint J, Summers-Goeckerman E, Shaw RJ, Shah N. Customization of the TRU-PBMT App (Technology Recordings to better Understand Pediatric Blood and Marrow Transplant). J Pediatr Nurs. 2018;42:86–91.
Journal cover image

Published In

J Pediatr Nurs

DOI

EISSN

1532-8449

Publication Date

2018

Volume

42

Start / End Page

86 / 91

Location

United States

Related Subject Headings

  • Telemedicine
  • Patient Reported Outcome Measures
  • Patient Portals
  • Nursing
  • Male
  • Humans
  • Health Knowledge, Attitudes, Practice
  • Female
  • Child
  • Bone Marrow Transplantation