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"If you respect me, you are respecting my culture": methods and recommendations for personalizing a TBI transitional care intervention.

Publication ,  Journal Article
Oyesanya, TO; Ibemere, SO; Loflin, C; McReynolds, V; Anaya, B; Huang, M; Gonzalez-Guarda, R; Strauman, TJ; Prvu Bettger, J
Published in: Brain injury
July 2023

Despite research, national legislation, and clinical guidelines supporting transitional care, there is minimal benefit from existing transitional care interventions for racial/ethnic minorities with traumatic brain injury (TBI) discharged home from acute hospital care. Existing TBI transitional care interventions are not tailored to address the needs/preferences of patients from various racial/ethnic minority groups. The purpose of this study was to describe use of personalization to tailor a TBI transitional care intervention for various racial/ethnic groups.Following preliminary intervention manual development, a qualitative descriptive study was conducted using eight focus groups with 40 English-and Spanish-speaking participants (12 patients, 12 caregivers, and 16 providers).Three personalization-related themes emerged: 1) what is important to me, 2) finding someone to deliver the intervention who can adapt to my needs, and 3) respect over culture. Findings informed personalization strategies within our final manual.We recommend researchers who wish to use personalization to tailor interventions to consider: 1) allowing stakeholders to dictate what is most important and 2) implementing an iterative intervention development process with input from diverse stakeholders. Findings have implications for informing the development of transitional care interventions to increase the likelihood that interventions are inclusive of needs and preferences of various races/ethnicities.

Duke Scholars

Published In

Brain injury

DOI

EISSN

1362-301X

ISSN

0269-9052

Publication Date

July 2023

Volume

37

Issue

8

Start / End Page

746 / 757

Related Subject Headings

  • Transitional Care
  • Respect
  • Rehabilitation
  • Minority Groups
  • Humans
  • Ethnicity
  • Brain Injuries, Traumatic
  • 5203 Clinical and health psychology
  • 4201 Allied health and rehabilitation science
  • 3202 Clinical sciences
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Oyesanya, T. O., Ibemere, S. O., Loflin, C., McReynolds, V., Anaya, B., Huang, M., … Prvu Bettger, J. (2023). "If you respect me, you are respecting my culture": methods and recommendations for personalizing a TBI transitional care intervention. Brain Injury, 37(8), 746–757. https://doi.org/10.1080/02699052.2023.2208881
Oyesanya, Tolu O., Stephanie O. Ibemere, Callan Loflin, Victoria McReynolds, Brian Anaya, Michelle Huang, Rosa Gonzalez-Guarda, Timothy J. Strauman, and Janet Prvu Bettger. “"If you respect me, you are respecting my culture": methods and recommendations for personalizing a TBI transitional care intervention.Brain Injury 37, no. 8 (July 2023): 746–57. https://doi.org/10.1080/02699052.2023.2208881.
Oyesanya TO, Ibemere SO, Loflin C, McReynolds V, Anaya B, Huang M, et al. "If you respect me, you are respecting my culture": methods and recommendations for personalizing a TBI transitional care intervention. Brain injury. 2023 Jul;37(8):746–57.
Oyesanya, Tolu O., et al. “"If you respect me, you are respecting my culture": methods and recommendations for personalizing a TBI transitional care intervention.Brain Injury, vol. 37, no. 8, July 2023, pp. 746–57. Epmc, doi:10.1080/02699052.2023.2208881.
Oyesanya TO, Ibemere SO, Loflin C, McReynolds V, Anaya B, Huang M, Gonzalez-Guarda R, Strauman TJ, Prvu Bettger J. "If you respect me, you are respecting my culture": methods and recommendations for personalizing a TBI transitional care intervention. Brain injury. 2023 Jul;37(8):746–757.

Published In

Brain injury

DOI

EISSN

1362-301X

ISSN

0269-9052

Publication Date

July 2023

Volume

37

Issue

8

Start / End Page

746 / 757

Related Subject Headings

  • Transitional Care
  • Respect
  • Rehabilitation
  • Minority Groups
  • Humans
  • Ethnicity
  • Brain Injuries, Traumatic
  • 5203 Clinical and health psychology
  • 4201 Allied health and rehabilitation science
  • 3202 Clinical sciences