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Racially diverse participant registries to facilitate the recruitment of African Americans into presymptomatic Alzheimer's disease studies.

Publication ,  Journal Article
Cocroft, S; Welsh-Bohmer, KA; Plassman, BL; Chanti-Ketterl, M; Edmonds, H; Gwyther, L; McCart, M; MacDonald, H; Potter, G; Burke, JR
Published in: Alzheimers Dement
August 2020

INTRODUCTION: The Alzheimer's Disease Prevention Registry (ADPR) of the Joseph and Kathleen Bryan Alzheimer's Disease Research Center at Duke University has been successful in achieving a racially diverse and "research ready" cohort of cognitively healthy volunteers. METHODS: The ADPR is based on an infrastructure that includes: (1) an administrative leadership team; (2) a coordinating center; (3) an IT management team; (4) a community engagement team; and (5) collaborations with study partners across disciplines. RESULTS: The ADPR currently has more than 4677 members, 26% of whom are African American. The ADPR has supported 21 studies including 8 biomarker studies, 7 clinical trials, 4 cognitive neuroscience studies, and 2 studies assessing novel computerized measures. DISCUSSION: We describe our experiences establishing and maintaining a diverse ADPR as well as insights on recruitment strategies to increase the representation of African Americans in Alzheimer's disease studies.

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Published In

Alzheimers Dement

DOI

EISSN

1552-5279

Publication Date

August 2020

Volume

16

Issue

8

Start / End Page

1107 / 1114

Location

United States

Related Subject Headings

  • Registries
  • Patient Selection
  • Male
  • Humans
  • Healthy Volunteers
  • Geriatrics
  • Female
  • Black or African American
  • Alzheimer Disease
  • 5202 Biological psychology
 

Citation

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ICMJE
MLA
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Cocroft, S., Welsh-Bohmer, K. A., Plassman, B. L., Chanti-Ketterl, M., Edmonds, H., Gwyther, L., … Burke, J. R. (2020). Racially diverse participant registries to facilitate the recruitment of African Americans into presymptomatic Alzheimer's disease studies. Alzheimers Dement, 16(8), 1107–1114. https://doi.org/10.1002/alz.12048
Cocroft, Shelytia, Kathleen A. Welsh-Bohmer, Brenda L. Plassman, Marianne Chanti-Ketterl, Henry Edmonds, Lisa Gwyther, Michelle McCart, Heather MacDonald, Guy Potter, and James R. Burke. “Racially diverse participant registries to facilitate the recruitment of African Americans into presymptomatic Alzheimer's disease studies.Alzheimers Dement 16, no. 8 (August 2020): 1107–14. https://doi.org/10.1002/alz.12048.
Cocroft S, Welsh-Bohmer KA, Plassman BL, Chanti-Ketterl M, Edmonds H, Gwyther L, et al. Racially diverse participant registries to facilitate the recruitment of African Americans into presymptomatic Alzheimer's disease studies. Alzheimers Dement. 2020 Aug;16(8):1107–14.
Cocroft, Shelytia, et al. “Racially diverse participant registries to facilitate the recruitment of African Americans into presymptomatic Alzheimer's disease studies.Alzheimers Dement, vol. 16, no. 8, Aug. 2020, pp. 1107–14. Pubmed, doi:10.1002/alz.12048.
Cocroft S, Welsh-Bohmer KA, Plassman BL, Chanti-Ketterl M, Edmonds H, Gwyther L, McCart M, MacDonald H, Potter G, Burke JR. Racially diverse participant registries to facilitate the recruitment of African Americans into presymptomatic Alzheimer's disease studies. Alzheimers Dement. 2020 Aug;16(8):1107–1114.
Journal cover image

Published In

Alzheimers Dement

DOI

EISSN

1552-5279

Publication Date

August 2020

Volume

16

Issue

8

Start / End Page

1107 / 1114

Location

United States

Related Subject Headings

  • Registries
  • Patient Selection
  • Male
  • Humans
  • Healthy Volunteers
  • Geriatrics
  • Female
  • Black or African American
  • Alzheimer Disease
  • 5202 Biological psychology