Racially diverse participant registries to facilitate the recruitment of African Americans into presymptomatic Alzheimer's disease studies.
The Alzheimer's Disease Prevention Registry (ADPR) of the Joseph and Kathleen Bryan Alzheimer's Disease Research Center at Duke University has been successful in achieving a racially diverse and "research ready" cohort of cognitively healthy volunteers.The ADPR is based on an infrastructure that includes: (1) an administrative leadership team; (2) a coordinating center; (3) an IT management team; (4) a community engagement team; and (5) collaborations with study partners across disciplines.The ADPR currently has more than 4677 members, 26% of whom are African American. The ADPR has supported 21 studies including 8 biomarker studies, 7 clinical trials, 4 cognitive neuroscience studies, and 2 studies assessing novel computerized measures.We describe our experiences establishing and maintaining a diverse ADPR as well as insights on recruitment strategies to increase the representation of African Americans in Alzheimer's disease studies.
Duke Scholars
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- Registries
- Patient Selection
- Male
- Humans
- Healthy Volunteers
- Geriatrics
- Female
- Black or African American
- Alzheimer Disease
- 5202 Biological psychology
Citation
Published In
DOI
EISSN
ISSN
Publication Date
Volume
Issue
Start / End Page
Related Subject Headings
- Registries
- Patient Selection
- Male
- Humans
- Healthy Volunteers
- Geriatrics
- Female
- Black or African American
- Alzheimer Disease
- 5202 Biological psychology