Scholars@Duke
Kimberly Sherell Johnson

Kimberly Sherell Johnson

Brenda E. Armstrong, M. D. Distinguished Professor
Medicine, Geriatrics and Palliative Care
johns196@mc.duke.edu
Duke Box 3003, Durham, NC 27710
3502 Hosp South, Durham, NC 27710
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Selected Publications

Improving Equity in Shared Decision-Making-Reply.

Journal Article JAMA Intern Med · July 15, 2024 Full text Link to item Cite

Validating a tool to measure spiritual beliefs, needs and resources in serious illness: The I-SPIRIT.

Journal Article J Am Geriatr Soc · July 2024 BACKGROUND: Seriously ill patients rely on spiritual and existential beliefs to support coping and approach crucial treatment and healthcare decisions. Yet, we lack gold standard, validated approaches to gathering information on those spiritual beliefs. Th ... Full text Link to item Cite

Discriminatory and valuing communication behaviors in cardiology encounters.

Journal Article Patient Educ Couns · June 2024 OBJECTIVE: Many have found racial differences in clinician-patient communication using validated codebooks that represent effective communication. No codebooks used for examining racial differences, however, have included patient input. In this paper, we d ... Full text Link to item Cite

BOLD: Blood-gas and Oximetry Linked Dataset.

Journal Article Sci Data · May 24, 2024 Pulse oximeters measure peripheral arterial oxygen saturation (SpO2) noninvasively, while the gold standard (SaO2) involves arterial blood gas measurement. There are known racial and ethnic disparities in their performance. BOLD is a dataset that aims to u ... Full text Link to item Cite

Racial Differences in Shared Decision-Making About Critical Illness.

Journal Article JAMA Intern Med · April 1, 2024 IMPORTANCE: Shared decision-making is the preferred method for evaluating complex tradeoffs in the care of patients with critical illness. However, it remains unknown whether critical care clinicians engage diverse patients and caregivers equitably in shar ... Full text Link to item Cite

Race differences in patient trust and distrust from audio-recorded cardiology encounters.

Journal Article Patient Educ Couns · February 2024 OBJECTIVE: Many have reported racial disparities in self-reported trust in clinicians but have not directly assessed expressions of trust and distrust in physician-patient encounters. We created a codebook to examine racial differences in patient trust and ... Full text Link to item Cite

Mobile Application-Based Communication Facilitation Platform for Family Members of Critically Ill Patients: A Randomized Clinical Trial.

Journal Article JAMA Netw Open · January 2, 2024 IMPORTANCE: Unmet and racially disparate palliative care needs are common in intensive care unit (ICU) settings. OBJECTIVE: To test the effect of a primary palliative care intervention vs usual care control both overall and by family member race. DESIGN, S ... Full text Link to item Cite

Perspectives on Transfusions for Hospice Patients With Blood Cancers: A Survey of Hospice Providers.

Journal Article J Pain Symptom Manage · January 2024 CONTEXT: Patients with blood cancers have low rates of hospice use. While lack of transfusion access in hospice is posited to substantially contribute to these low rates, little is known about the perspectives of hospice providers regarding transfusion acc ... Full text Link to item Cite

Advancing Equity in Cancer Research: Opportunities for Sponsors, Institutions, and Investigators

Journal Article North Carolina Medical Journal · January 1, 2024 Numerous studies have documented patient-level barriers to research participation that are often connected to social determinants of health. As described in this paper, significantly moving the needle toward greater diversity and inclusion in cancer resear ... Full text Cite

Design and pilot test of an implicit bias mitigation curriculum for clinicians.

Journal Article Front Med (Lausanne) · 2024 INTRODUCTION: Clinician implicit racial bias (IB) may lead to lower quality care and adverse health outcomes for Black patients. Educational efforts to train clinicians to mitigate IB vary widely and have insufficient evidence of impact. We developed and p ... Full text Link to item Cite

BOLD: Blood-gas and Oximetry Linked Dataset - Open Source Research.

Journal Article medRxiv · October 3, 2023 Pulse oximeters measure peripheral arterial oxygen saturation (SpO 2 ) noninvasively, while the gold standard (SaO 2 ) involves arterial blood gas measurement. There are known racial and ethnic disparities in their performance. BOLD is a new comprehensive ... Full text Link to item Cite

Acceptability of a Serious Illness Conversation Guide to Black Americans: Results from a focus group and oncology pilot study.

Journal Article Palliat Support Care · October 2023 OBJECTIVES: Serious illness conversations (SICs) can improve the experience and well-being of patients with advanced cancer. A structured Serious Illness Conversation Guide (SICG) has been shown to improve oncology patient outcomes but was developed and te ... Full text Link to item Cite

The Experience of Black Patients With Serious Illness in the United States: A Scoping Review.

Journal Article J Pain Symptom Manage · October 2023 CONTEXT: Black patients experience health disparities in access and quality of care. OBJECTIVE: To identify and characterize the literature on the experiences of Black patients with serious illness across multiple domains - physical, spiritual, emotional, ... Full text Link to item Cite

Dementia and Parkinson's disease diagnoses in electronic health records vs. Medicare claims data: a study of 101,980 linked patients.

Journal Article BMC Neurol · September 12, 2023 BACKGROUND: Medicare claims and electronic health record data are both commonly used for research and clinical practice improvement; however, it is not known how concordant diagnoses of neurodegenerative diseases (NDD, comprising dementia and Parkinson's d ... Full text Link to item Cite

Delivering Acupuncture Therapy in an Interdisciplinary Global Health Setting in Guatemala: Pilot Study and Lessons Learned

Journal Article Medical Acupuncture · August 1, 2023 Objective: Pain, stress, and diabetes mellitus (DM) are common complaints for Guatemalans seeking health care. Because acupuncture therapy (AT) is a low-cost, effective treatment for these concerns, it was offered to Guatemalans during a health care missio ... Full text Cite

Racial/ethnic disparities in dementia incidence, outcomes, and health-care utilization.

Journal Article Alzheimers Dement · June 2023 INTRODUCTION: Racial/ethnic disparities exist in many aspects of health care, but data on racial/ethnic disparities for neurodegenerative diseases (NDDs), such as dementia and Parkinson's disease (PD), are limited. METHODS: We used North and South Carolina ... Full text Link to item Cite

Black and white proxy experiences and perceptions that influence advanced dementia care in nursing homes: The ADVANCE study.

Journal Article Journal of the American Geriatrics Society · June 2023 BackgroundRegional, facility, and racial variability in intensity of care provided to nursing home (NH) residents with advanced dementia is poorly understood.Materials and methodsAssessment of Disparities and Variation for Alzheimer's dis ... Full text Cite

Improving Equity in Shared Decision-Making-Reply.

Journal Article JAMA Intern Med · July 15, 2024 Full text Link to item Cite

Validating a tool to measure spiritual beliefs, needs and resources in serious illness: The I-SPIRIT.

Journal Article J Am Geriatr Soc · July 2024 BACKGROUND: Seriously ill patients rely on spiritual and existential beliefs to support coping and approach crucial treatment and healthcare decisions. Yet, we lack gold standard, validated approaches to gathering information on those spiritual beliefs. Th ... Full text Link to item Cite

Discriminatory and valuing communication behaviors in cardiology encounters.

Journal Article Patient Educ Couns · June 2024 OBJECTIVE: Many have found racial differences in clinician-patient communication using validated codebooks that represent effective communication. No codebooks used for examining racial differences, however, have included patient input. In this paper, we d ... Full text Link to item Cite

BOLD: Blood-gas and Oximetry Linked Dataset.

Journal Article Sci Data · May 24, 2024 Pulse oximeters measure peripheral arterial oxygen saturation (SpO2) noninvasively, while the gold standard (SaO2) involves arterial blood gas measurement. There are known racial and ethnic disparities in their performance. BOLD is a dataset that aims to u ... Full text Link to item Cite

Racial Differences in Shared Decision-Making About Critical Illness.

Journal Article JAMA Intern Med · April 1, 2024 IMPORTANCE: Shared decision-making is the preferred method for evaluating complex tradeoffs in the care of patients with critical illness. However, it remains unknown whether critical care clinicians engage diverse patients and caregivers equitably in shar ... Full text Link to item Cite

Race differences in patient trust and distrust from audio-recorded cardiology encounters.

Journal Article Patient Educ Couns · February 2024 OBJECTIVE: Many have reported racial disparities in self-reported trust in clinicians but have not directly assessed expressions of trust and distrust in physician-patient encounters. We created a codebook to examine racial differences in patient trust and ... Full text Link to item Cite

Mobile Application-Based Communication Facilitation Platform for Family Members of Critically Ill Patients: A Randomized Clinical Trial.

Journal Article JAMA Netw Open · January 2, 2024 IMPORTANCE: Unmet and racially disparate palliative care needs are common in intensive care unit (ICU) settings. OBJECTIVE: To test the effect of a primary palliative care intervention vs usual care control both overall and by family member race. DESIGN, S ... Full text Link to item Cite

Perspectives on Transfusions for Hospice Patients With Blood Cancers: A Survey of Hospice Providers.

Journal Article J Pain Symptom Manage · January 2024 CONTEXT: Patients with blood cancers have low rates of hospice use. While lack of transfusion access in hospice is posited to substantially contribute to these low rates, little is known about the perspectives of hospice providers regarding transfusion acc ... Full text Link to item Cite

Advancing Equity in Cancer Research: Opportunities for Sponsors, Institutions, and Investigators

Journal Article North Carolina Medical Journal · January 1, 2024 Numerous studies have documented patient-level barriers to research participation that are often connected to social determinants of health. As described in this paper, significantly moving the needle toward greater diversity and inclusion in cancer resear ... Full text Cite

Design and pilot test of an implicit bias mitigation curriculum for clinicians.

Journal Article Front Med (Lausanne) · 2024 INTRODUCTION: Clinician implicit racial bias (IB) may lead to lower quality care and adverse health outcomes for Black patients. Educational efforts to train clinicians to mitigate IB vary widely and have insufficient evidence of impact. We developed and p ... Full text Link to item Cite

BOLD: Blood-gas and Oximetry Linked Dataset - Open Source Research.

Journal Article medRxiv · October 3, 2023 Pulse oximeters measure peripheral arterial oxygen saturation (SpO 2 ) noninvasively, while the gold standard (SaO 2 ) involves arterial blood gas measurement. There are known racial and ethnic disparities in their performance. BOLD is a new comprehensive ... Full text Link to item Cite

Acceptability of a Serious Illness Conversation Guide to Black Americans: Results from a focus group and oncology pilot study.

Journal Article Palliat Support Care · October 2023 OBJECTIVES: Serious illness conversations (SICs) can improve the experience and well-being of patients with advanced cancer. A structured Serious Illness Conversation Guide (SICG) has been shown to improve oncology patient outcomes but was developed and te ... Full text Link to item Cite

The Experience of Black Patients With Serious Illness in the United States: A Scoping Review.

Journal Article J Pain Symptom Manage · October 2023 CONTEXT: Black patients experience health disparities in access and quality of care. OBJECTIVE: To identify and characterize the literature on the experiences of Black patients with serious illness across multiple domains - physical, spiritual, emotional, ... Full text Link to item Cite

Dementia and Parkinson's disease diagnoses in electronic health records vs. Medicare claims data: a study of 101,980 linked patients.

Journal Article BMC Neurol · September 12, 2023 BACKGROUND: Medicare claims and electronic health record data are both commonly used for research and clinical practice improvement; however, it is not known how concordant diagnoses of neurodegenerative diseases (NDD, comprising dementia and Parkinson's d ... Full text Link to item Cite

Delivering Acupuncture Therapy in an Interdisciplinary Global Health Setting in Guatemala: Pilot Study and Lessons Learned

Journal Article Medical Acupuncture · August 1, 2023 Objective: Pain, stress, and diabetes mellitus (DM) are common complaints for Guatemalans seeking health care. Because acupuncture therapy (AT) is a low-cost, effective treatment for these concerns, it was offered to Guatemalans during a health care missio ... Full text Cite

Racial/ethnic disparities in dementia incidence, outcomes, and health-care utilization.

Journal Article Alzheimers Dement · June 2023 INTRODUCTION: Racial/ethnic disparities exist in many aspects of health care, but data on racial/ethnic disparities for neurodegenerative diseases (NDDs), such as dementia and Parkinson's disease (PD), are limited. METHODS: We used North and South Carolina ... Full text Link to item Cite

Black and white proxy experiences and perceptions that influence advanced dementia care in nursing homes: The ADVANCE study.

Journal Article Journal of the American Geriatrics Society · June 2023 BackgroundRegional, facility, and racial variability in intensity of care provided to nursing home (NH) residents with advanced dementia is poorly understood.Materials and methodsAssessment of Disparities and Variation for Alzheimer's dis ... Full text Cite

Effect of a Coaching Intervention to Improve Cardiologist Communication: A Randomized Clinical Trial.

Journal Article JAMA Intern Med · June 1, 2023 IMPORTANCE: Communication between cardiologists and patients can significantly affect patient comprehension, adherence, and satisfaction. To our knowledge, a coaching intervention to improve cardiologist communication has not been tested. OBJECTIVE: To eva ... Full text Open Access Link to item Cite

Racism in Palliative Care Research: We Still have a Ways to Go.

Journal Article J Pain Symptom Manage · January 2023 This series focuses on addressing the intersection of race and racism in palliative care through roundtable discussions with interdisciplinary clinicians, researchers, educators, and leaders in palliative care. These short discussions are intended to stimu ... Full text Link to item Cite

Trajectories of Palliative Care Needs in the ICU and Long-Term Psychological Distress Symptoms.

Journal Article Crit Care Med · January 1, 2023 OBJECTIVES: While palliative care needs are assumed to improve during ICU care, few empiric data exist on need trajectories or their impact on long-term outcomes. We aimed to describe trajectories of palliative care needs during ICU care and to determine i ... Full text Link to item Cite

Addressing Unmet Needs Among Family Members of Critically Ill Patients: The ICUconnect Randomized Clinical Trial

Conference AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE · 2023 Cite

Examining the relationship between clinician communication and patient participatory behaviors in cardiology encounters.

Journal Article Patient Educ Couns · December 2022 OBJECTIVES: Examine the association of coder ratings of cardiologist behaviors and global scores of cardiologist communication style with patient participation in clinic encounters. METHODS: We coded transcripts of clinic encounters for patient participato ... Full text Link to item Cite

Racial and Ethnic Differences in Communication Quality During Family-Centered Rounds.

Journal Article Pediatrics · December 1, 2022 OBJECTIVES: To evaluate racial and ethnic differences in communication quality during family centered rounds. METHODS: We conducted an observational study of family-centered rounds on hospital day 1. All enrolled caregivers completed a survey following rou ... Full text Link to item Cite

A Review of Race and Ethnicity in Hospice and Palliative Medicine Research: Representation Matters.

Journal Article J Pain Symptom Manage · November 2022 CONTEXT: Despite documented racial and ethnic disparities in care, there is significant variability in representation, reporting, and analysis of race and ethnic groups in the hospice and palliative medicine (HPM) literature. OBJECTIVES: To evaluate the ra ... Full text Link to item Cite

Palliative care phenotypes among critically ill patients and family members: intensive care unit prospective cohort study.

Journal Article BMJ Support Palliat Care · September 27, 2022 OBJECTIVE: Because the heterogeneity of patients in intensive care units (ICUs) and family members represents a challenge to palliative care delivery, we aimed to determine if distinct phenotypes of palliative care needs exist. METHODS: Prospective cohort ... Full text Link to item Cite

Needs of care partners of older Veterans with serious illness.

Journal Article J Am Geriatr Soc · June 2022 BACKGROUND: The quality of life of care partners and care recipients may be improved by programs that address unmet needs. The aim of this qualitative study was to identify care partners' social and practical needs as they care for Veterans (65 yo+) with s ... Full text Link to item Cite

Association of Nursing Home Organizational Culture and Staff Perspectives With Variability in Advanced Dementia Care: The ADVANCE Study.

Journal Article JAMA Intern Med · March 1, 2022 IMPORTANCE: Regional, facility, and racial and ethnic variability in intensity of care provided to nursing home residents with advanced dementia is well documented but poorly understood. OBJECTIVE: To assess the factors associated with facility and regiona ... Full text Link to item Cite

Evaluating the Findings of the IMPACT-C Randomized Clinical Trial to Improve COVID-19 Vaccine Coverage in Skilled Nursing Facilities.

Journal Article JAMA Intern Med · March 1, 2022 IMPORTANCE: Identifying successful strategies to increase COVID-19 vaccination among skilled nursing facility (SNF) residents and staff is integral to preventing future outbreaks in a continually overwhelmed system. OBJECTIVE: To determine whether a multic ... Full text Link to item Cite

Polypharmacy in Palliative Care for Advanced Heart Failure: The PAL-HF Experience.

Journal Article J Card Fail · February 2022 BACKGROUND: Palliative care (PC) in advanced heart failure (HF) aims to improve symptoms and quality of life (QOL), in part through medication management. The impact of PC on polypharmacy (>5 medications) remains unknown. METHODS AND RESULTS: We explored p ... Full text Link to item Cite

Interventions to promote dementia knowledge among racial/ethnic minority groups: A systematic review.

Journal Article J Am Geriatr Soc · February 2022 BACKGROUND: Certain racial/ethnic minority groups have a higher risk of developing dementia, yet studies have demonstrated that they often have limited knowledge and understanding of this disease. An increasing number of educational and advocacy programs h ... Full text Link to item Cite

Clinician Perspectives Guiding Approach to Comprehensiveness of Palliative Care Assessment.

Journal Article J Palliat Med · February 2022 Background: National Consensus Project for quality palliative care guidelines emphasizes the importance of a comprehensive assessment of all care domains, including physical, psychosocial, and spiritual aspects of care, for seriously ill patients. However, ... Full text Link to item Cite

Race Differences in Quality of Life following a Palliative Care Intervention in Patients with Advanced Heart Failure: Insights from the Palliative Care in Heart Failure Trial.

Journal Article J Palliat Med · February 2022 Introduction: Black patients have a higher incidence of heart failure (HF) and worse outcomes than white patients. Guidelines recommend palliative care for patients with advanced HF, but no studies have examined outcomes in a black patient cohort. Methods: ... Full text Link to item Cite

Assessment of Clinical Palliative Care Trigger Status vs Actual Needs Among Critically Ill Patients and Their Family Members.

Journal Article JAMA Netw Open · January 4, 2022 IMPORTANCE: Palliative care consultations in intensive care units (ICUs) are increasingly prompted by clinical characteristics associated with mortality or resource utilization. However, it is not known whether these triggers reflect actual palliative care ... Full text Link to item Cite

Identifying high-risk surgical patients: A study of older adults whose code status changed to Do-Not-Resuscitate.

Journal Article J Am Geriatr Soc · December 2021 BACKGROUND: There is a paucity of data on older adults (age ≥65 years) undergoing surgery who had an inpatient do-not-resuscitate (DNR) order, and the association between timing of DNR order and outcomes. METHODS: This was a retrospective analysis of 1976 ... Full text Link to item Cite

Perceptions of Hospice and Transfusion Access Among Patients with Advanced Blood Cancers: Results from a Best-Worst Scaling Survey

Conference Blood · November 5, 2021 AbstractBackground: Patients with hematologic malignancies have low rates of hospice use, and when they do enroll, they often do so in the last three days of life. While lack of access to transfusions in hos ... Full text Cite

Hospice Access and Scope of Services for Undocumented Immigrants: A Clinician Survey.

Journal Article J Palliat Med · August 2021 Objectives: To characterize clinician experiences of hospice access and scope of services for undocumented immigrants. Background: The 10.5 million undocumented immigrants in the United States are not covered by Medicare's hospice benefit and are at high r ... Full text Link to item Cite

Racial differences in patient perception of interactions with providers are associated with health outcomes in type II diabetes.

Journal Article Patient Educ Couns · August 2021 OBJECTIVES: Examine the association of patient perceptions of care with hemoglobin A1c (HbA1c), medication adherence, and missed appointments in non-Hispanic Black (NHB) and White (NHW) patients with type 2 diabetes (T2DM). METHODS: We used linear and logi ... Full text Link to item Cite

ADVANCE: Methodology of a qualitative study.

Journal Article J Am Geriatr Soc · August 2021 BACKGROUND/OBJECTIVES: Quantitative studies have documented persistent regional, facility, and racial differences in the intensity of care provided to nursing home (NH) residents with advanced dementia including, greater intensity in the Southeastern Unite ... Full text Link to item Cite

Diversifying the Research Workforce as a Programmatic Priority for a Career Development Award Program at Duke University.

Journal Article Acad Med · June 1, 2021 The National Institutes of Health (NIH) has prioritized efforts to increase diversity in the biomedical research workforce. NIH-funded institutional career development awards may serve as one mechanism to facilitate these efforts. In 2013, the Duke Univers ... Full text Link to item Cite

Lessons learned from frontline skilled nursing facility staff regarding COVID-19 vaccine hesitancy.

Journal Article J Am Geriatr Soc · May 2021 BACKGROUND: Presently a median of 37.5% of the U.S. skilled nursing facility (SNF) workforce has been vaccinated for COVID-19. It is essential to understand vaccine hesitancy among SNF workers to inform vaccine campaigns going forward. OBJECTIVE: To descri ... Full text Link to item Cite

Improving racial disparities in unmet palliative care needs among intensive care unit family members with a needs-targeted app intervention: The ICUconnect randomized clinical trial.

Journal Article Contemp Clin Trials · April 2021 INTRODUCTION: The technologies used to treat the millions who receive care in intensive care unit (ICUs) each year have steadily advanced. However, the quality of ICU-based communication has remained suboptimal, particularly concerning for Black patients a ... Full text Link to item Cite

Cultivating Cultural Competence: How Are Hospice Staff Being Educated to Engage Racially and Ethnically Diverse Patients?

Journal Article Am J Hosp Palliat Care · February 2021 BACKGROUND: Compared to Whites, racial/ethnic minorities are less likely to enroll in hospice and if they enroll, more likely to experience poor quality care. Building cultural competence (CC) among hospice staff is a strategy that may reduce disparities. ... Full text Link to item Cite

Actualizing Better Health And Health Care For Older Adults.

Journal Article Health Aff (Millwood) · February 2021 By 2030 more people in the United States will be older than age sixty-five than younger than age five. Our health care system is unprepared for the complexity of caring for a heterogenous population of older adults-a problem that has been magnified by the ... Full text Link to item Cite

The Patient's Point of View: Characterizing Patient-Level Factors Associated with Perceptions of Health Care.

Journal Article Health equity · January 2021 Purpose: We explored the association between perception of care, as measured by the Interpersonal Processes of Care (IPC) survey, and patient-level factors, including (1) Trust in physicians; (2) Perceived empathy; (3) Stereotype threat; (4) Perceiv ... Full text Cite

Association of Provider Perspectives on Race and Racial Health Care Disparities with Patient Perceptions of Care and Health Outcomes.

Journal Article Health Equity · 2021 Purpose: Research suggests that providers contribute to racial disparities in health outcomes. Identifying modifiable provider perspectives that are associated with decreased racial disparities will help in the design of effective educational interventions ... Full text Link to item Cite

Characteristics and Outcomes of Dementia Patients Who Receive Inpatient Palliative Care Consultation.

Conference J Am Geriatr Soc · September 2020 BACKGROUND/OBJECTIVES: Acute hospitalization may be an ideal opportunity to introduce palliative care to dementia patients, who may benefit from symptom management and goals of care discussions. We know little about patients who receive inpatient palliativ ... Full text Link to item Cite

The Fierce Urgency of Now: Addressing Racial and Ethnic Disparities in Serious Illness Care.

Journal Article N C Med J · 2020 Racial and ethnic disparities in serious illness care are profound and require an urgent response. We present actionable recommendations for health care organizations, providers, and policymakers to address disparities and advance equity. ... Full text Link to item Cite

Reducing Disparities in the Quality of Palliative Care for Older African Americans through Improved Advance Care Planning: Study Design and Protocol.

Journal Article J Palliat Med · September 2019 Advance care planning (ACP) improves end-of-life care for patients and their caregivers. However, only one-third of adults have participated in ACP and rates are substantially lower among African Americans than among whites. Importantly, ACP improves many ... Full text Link to item Cite

Factors That Impact Family Perception of Goal-Concordant Care at the End of Life.

Journal Article J Palliat Med · August 2019 Background: Goal-concordant care (GCC)-care aligned with a patient's known goals and values-is a measure of the quality of end-of-life (EOL) care that can be assessed by surveying family members after a patient's death. It is unknown whether patient charac ... Full text Link to item Cite

From Barriers to Assets: Rethinking factors impacting advance care planning for African Americans.

Journal Article Palliat Support Care · June 2019 OBJECTIVE: We aimed to explore multiple perspectives regarding barriers to and facilitators of advance care planning (ACP) among African Americans to identify similarities or differences that might have clinical implications. METHOD: Qualitative study with ... Full text Link to item Cite

Design and Evaluation of an Interdisciplinary Health Disparities Research Curriculum.

Journal Article J Natl Med Assoc · August 2018 BACKGROUND: Disparities in health and healthcare are widely documented for underrepresented racial and ethnic populations across a spectrum of diseases and care settings. An evidence base for addressing racial and ethnic disparities in health and healthcar ... Full text Link to item Cite

Older, Seriously Ill Veterans' Views on the Role of Religion and Spirituality in Health-Care Delivery.

Journal Article Am J Hosp Palliat Care · July 2018 OBJECTIVES: To describe older Veteran's perspectives on the current delivery of religious or spiritual (R/S) care. METHODS: Semi-structured interviews with older veterans with advanced stage cancer, heart failure, or pulmonary disease to elicit views on wh ... Full text Link to item Cite

Acute Leukemia Patients' Needs: Qualitative Findings and Opportunities for Early Palliative Care.

Journal Article J Pain Symptom Manage · February 2018 CONTEXT: Patients with acute leukemias likely have needs that palliative care can respond to, yet little is known about specific challenges they face, particularly during active treatment. We examined acute myeloid leukemia (AML) patients' expressed challe ... Full text Link to item Cite

Measuring Sarcopenia Severity in Older Adults and the Value of Effective Interventions.

Journal Article J Nutr Health Aging · 2018 OBJECTIVES: Little is known about the severity and long-term health and economic consequences of sarcopenia. We developed a sarcopenia index to measure severity in older Americans and estimated the long-term societal benefits generated by effective interve ... Full text Link to item Cite

State of the Science of Spirituality and Palliative Care Research Part II: Screening, Assessment, and Interventions.

Journal Article J Pain Symptom Manage · September 2017 The State of the Science in Spirituality and Palliative Care was convened to address the current landscape of research at the intersection of spirituality and palliative care and to identify critical next steps to advance this field of inquiry. Part II of ... Full text Link to item Cite

State of the Science of Spirituality and Palliative Care Research Part I: Definitions, Measurement, and Outcomes.

Journal Article J Pain Symptom Manage · September 2017 The State of the Science in Spirituality and Palliative Care was convened to address the current landscape of research at the intersection of spirituality and palliative care and to identify critical next steps to advance this field of inquiry. Part I of t ... Full text Link to item Cite

Palliative Care in Heart Failure: The PAL-HF Randomized, Controlled Clinical Trial.

Journal Article J Am Coll Cardiol · July 18, 2017 BACKGROUND: Advanced heart failure (HF) is characterized by high morbidity and mortality. Conventional therapy may not sufficiently reduce patient suffering and maximize quality of life. OBJECTIVES: The authors investigated whether an interdisciplinary pal ... Full text Link to item Cite

Palliative Care in Heart Failure The PAL-HF Randomized, Controlled Clinical Trial

Journal Article JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY · July 18, 2017 Link to item Cite

Unmet Needs of African Americans and Whites at the Time of Palliative Care Consultation.

Journal Article Am J Hosp Palliat Care · June 2017 CONTEXT: Differences among patient populations that present to consultative palliative care are not known. Such an appreciation would inform health-care delivery tailored to unique populations. OBJECTIVES: We aimed to compare characteristics and palliative ... Full text Link to item Cite

Meeting Basic Needs: Social Supports and Services Provided by Hospice.

Journal Article J Palliat Med · June 2017 OBJECTIVE: Describe social goods and services for which hospices assist patients and families and the resources hospices use to do so. BACKGROUND: Basic social supports and services not routinely covered by insurers may be needed by terminally ill patients ... Full text Link to item Cite

Comparing the Palliative Care Needs of Those With Cancer to Those With Common Non-Cancer Serious Illness.

Journal Article J Pain Symptom Manage · June 2017 BACKGROUND: Historically, palliative care has been focused on those with cancer. Although these ties persist, palliative care is rapidly integrating into the care of patients with common, non-cancer serious illnesses. Despite this, the bulk of literature i ... Full text Link to item Cite

Hospice Access for Undocumented Immigrants.

Journal Article JAMA Intern Med · April 1, 2017 Full text Link to item Cite

Adherence to Measuring What Matters Items When Caring for Patients With Hematologic Malignancies Versus Solid Tumors.

Journal Article J Pain Symptom Manage · December 2016 CONTEXT: Measuring What Matters (MWM) prioritizes quality measures in palliative care practice. Hematologic malignancy patients are less likely to access palliative care, yet little is known about their unique needs. Differences in MWM adherence may highli ... Full text Link to item Cite

The feasibility and acceptability of a chaplain-led intervention for caregivers of seriously ill patients: A Caregiver Outlook pilot study.

Journal Article Palliat Support Care · October 2016 OBJECTIVE: When caring for a loved one with a life-limiting illness, a caregiver's own physical, emotional, and spiritual suffering can be profound. While many interventions focus on physical and emotional well-being, few caregiver interventions address ex ... Full text Link to item Cite

Identifying Patterns of Multimorbidity in Older Americans: Application of Latent Class Analysis.

Journal Article J Am Geriatr Soc · August 2016 OBJECTIVES: To define multimorbidity "classes" empirically based on patterns of disease co-occurrence in older Americans and to examine how class membership predicts healthcare use. DESIGN: Retrospective cohort study. SETTING: Nationally representative sam ... Full text Link to item Cite

Update in Hospice and Palliative Care.

Journal Article J Palliat Med · May 2016 BACKGROUND/OBJECTIVE: The goal of this update in hospice and palliative care is to summarize and critique research published between January 1 and December 31, 2014 that has a high potential for impact on clinical practice. DESIGN: To identify articles we ... Full text Link to item Cite

Are Hospice Admission Practices Associated With Hospice Enrollment for Older African Americans and Whites?

Journal Article J Pain Symptom Manage · April 2016 CONTEXT: Hospices that enroll patients receiving expensive palliative therapies may serve more African Americans because of their greater preferences for aggressive end-of-life care. OBJECTIVES: Examine the association between hospices' admission practices ... Full text Link to item Cite

Church-Based Health Promotion Focused on Advance Care Planning and End-of-Life Care at Black Baptist Churches: A Cross-Sectional Survey.

Journal Article J Palliat Med · February 2016 BACKGROUND: African Americans with serious illnesses receive substandard palliative care (PC) and end-of-life care (EOLC) with a disproportionate number having worse symptom-related suffering, poorer health-related communication and knowledge of advance ca ... Full text Link to item Cite

What are Hospice Providers in the Carolinas Doing to Reach African Americans in Their Service Area?

Journal Article J Palliat Med · February 2016 BACKGROUND: Experts and national organizations recommend that hospices work to increase service to African Americans, a group historically underrepresented in hospice. OBJECTIVE: The study objective was to describe strategies among hospices in North and So ... Full text Link to item Cite

Update in hospice and palliative care.

Journal Article J Palliat Med · June 2015 Full text Link to item Cite

State of the Science: Update in Hospice and Palliative Care (103)

Conference Journal of Pain and Symptom Management · February 2015 Full text Cite

The palliative care in heart failure trial: rationale and design.

Journal Article Am Heart J · November 2014 BACKGROUND: The progressive nature of heart failure (HF) coupled with high mortality and poor quality of life mandates greater attention to palliative care as a routine component of advanced HF management. Limited evidence exists from randomized, controlle ... Full text Link to item Cite

Caregiver experience during advanced chronic illness and last year of life.

Journal Article J Am Geriatr Soc · June 2014 OBJECTIVES: To compare the prevalence and predictors of caregiver esteem and burden during two different stages of care recipients' illnesses-advanced chronic illness and the last year of life. DESIGN: Longitudinal, observational cohort study. SETTING: Com ... Full text Link to item Cite

Using the past to predict the future: latent class analysis of patterns of health service use of older adults in the emergency department.

Journal Article J Am Geriatr Soc · April 2014 OBJECTIVES: To classify older adults in the emergency department (ED) according to healthcare use and to examine associations between group membership and future ED visits and hospital admissions. DESIGN: Secondary analysis. SETTING: Medicare Current Benef ... Full text Link to item Cite

Update in hospice and palliative care.

Journal Article J Palliat Med · March 2014 Full text Link to item Cite

State of the Science: Update in Hospice and Palliative Care (103)

Conference Journal of Pain and Symptom Management · February 2014 Full text Cite

Update in hospital palliative care.

Journal Article J Hosp Med · December 2013 BACKGROUND: Seriously ill patients frequently receive care in hospitals, and palliative care is a core competency for hospitalists. We aimed to summarize and critique recent research that has the potential to impact the clinical practice of palliative care ... Full text Link to item Cite

Race and residence: intercounty variation in black-white differences in hospice use.

Journal Article J Pain Symptom Manage · November 2013 CONTEXT: Although blacks use hospice at lower rates than whites in the U.S., racial differences in hospice use vary by geographic area. OBJECTIVES: To describe intercounty variability in black-white differences in hospice use and the association with the s ... Full text Link to item Cite

Racial and ethnic disparities in palliative care.

Journal Article J Palliat Med · November 2013 Racial and ethnic disparities in health care access and quality are well documented for some minority groups. However, compared to other areas of health care, such as disease prevention, early detection, and curative care, research in disparities in pallia ... Full text Link to item Cite

Association of hospice patients' income and care level with place of death.

Journal Article JAMA Intern Med · March 25, 2013 IMPORTANCE: Terminally ill patients with lower incomes are less likely to die at home, even with hospice care. OBJECTIVES: To examine the relationship between income and transfer from home before death and the interaction between income and level of hospic ... Full text Link to item Cite

Update in hospice and palliative care

Journal Article Journal of Palliative Medicine · March 1, 2013 Full text Cite

State of the Science: Update in Hospice and Palliative Care (103)

Conference Journal of Pain and Symptom Management · February 2013 Full text Cite

What is your understanding of your illness? A communication tool to explore patients' perspectives of living with advanced illness.

Journal Article J Gen Intern Med · November 2012 BACKGROUND: Provider communication courses and guidelines stress the use of open-ended questions, such as "what is your understanding of your illness?," to explore patients' perceptions of their illness severity, yet descriptions of patients' responses are ... Full text Link to item Cite

Characteristics and outcomes of hospice enrollees with dementia discharged alive.

Journal Article J Am Geriatr Soc · September 2012 OBJECTIVES: To examine the characteristics of hospice enrollees with dementia who were discharged alive because their condition stabilized or improved and predictors of death in the year after discharge. DESIGN: Cross-sectional analysis of clinical and adm ... Full text Link to item Cite

Racial differences in hospice use and patterns of care after enrollment in hospice among Medicare beneficiaries with heart failure.

Journal Article Am Heart J · June 2012 BACKGROUND: We examined racial differences in patterns of care and resource use among Medicare beneficiaries with heart failure after enrollment in hospice. METHODS: We conducted a retrospective cohort study of a 5% nationally representative sample of Medi ... Full text Link to item Cite

What are Hospice Providers Doing to Reach African Americans ... and what works?

Conference JOURNAL OF THE AMERICAN GERIATRICS SOCIETY · April 1, 2012 Link to item Cite

The Junior Faculty Laboratory: an innovative model of peer mentoring.

Journal Article Acad Med · December 2011 Mentoring in academic medicine has been shown to contribute to the success of junior faculty, resulting in increased productivity, career satisfaction, and opportunities for networking. Although traditional dyadic mentoring, involving one senior faculty me ... Full text Link to item Cite

Which domains of spirituality are associated with anxiety and depression in patients with advanced illness?

Journal Article J Gen Intern Med · July 2011 BACKGROUND: Anxiety and depression are common in seriously ill patients and may be associated with spiritual concerns. Little research has examined how concerns in different domains of spirituality are related to anxiety and depression. OBJECTIVE: To exami ... Full text Link to item Cite

Black-white disparity in disability: the role of medical conditions.

Journal Article J Am Geriatr Soc · May 2011 OBJECTIVES: To describe the independent contributions of selected medical conditions to the disparity between black and white people in disability rates, controlling for demographic and socioeconomic factors. DESIGN: Cross-sectional analysis of a community ... Full text Link to item Cite

Racial differences in location before hospice enrollment and association with hospice length of stay.

Journal Article J Am Geriatr Soc · April 2011 African Americans are less likely than Whites to enroll in hospice. In addition, patients are often referred to hospice very close to death, when they may not have time to take advantage of the full range of hospice services. Understanding how race and loc ... Full text Link to item Cite

Intercounty Variability in Hospice Use: Does Race Matter?

Conference JOURNAL OF THE AMERICAN GERIATRICS SOCIETY · April 1, 2010 Link to item Cite

Racial differences in self-reported exposure to information about hospice care.

Journal Article J Palliat Med · October 2009 BACKGROUND: Previous research suggests that lack of knowledge of hospice is a barrier to the use of hospice care by African Americans. However, there is little data examining racial differences in exposure to hospice information. OBJECTIVES: Examine racial ... Full text Link to item Cite

Emergency department discharge diagnosis and adverse health outcomes in older adults.

Journal Article J Am Geriatr Soc · October 2009 OBJECTIVES: To determine the relationship between the reason for an emergency department (ED) visit and subsequent risk of adverse health outcomes in older adults discharged from the ED. DESIGN: Secondary analysis of data from the Medicare Current Benefici ... Full text Link to item Cite

Variability in Adverse Outcomes According to Emergency Department Discharge Diagnosis

Conference JOURNAL OF THE AMERICAN GERIATRICS SOCIETY · March 1, 2009 Link to item Cite

Racial Differences in Self-Reported Exposure to Hospice Information

Journal Article JOURNAL OF THE AMERICAN GERIATRICS SOCIETY · March 1, 2009 Link to item Cite

What explains racial differences in the use of advance directives and attitudes toward hospice care?

Journal Article J Am Geriatr Soc · October 2008 Cultural beliefs and values are thought to account for differences between African Americans and whites in the use of advance directives and beliefs about hospice care, but few data clarify which beliefs and values explain these differences. Two hundred fi ... Full text Link to item Cite

Frailty predicts some but not all adverse outcomes in older adults discharged from the emergency department.

Journal Article J Am Geriatr Soc · September 2008 OBJECTIVES: To determine whether frail older adults, based on a deficit accumulation index (DAI), are at greater risk of adverse outcomes after discharge from the emergency department (ED). DESIGN AND SETTING: Secondary analysis of data from the Medicare C ... Full text Link to item Cite

What explains racial differences in the completion of advance directives?

Conference JOURNAL OF THE AMERICAN GERIATRICS SOCIETY · April 1, 2008 Link to item Cite

Racial differences in hospice revocation to pursue aggressive care.

Journal Article Arch Intern Med · January 28, 2008 BACKGROUND: Hospice provides supportive care to terminally ill patients at the end of life. However, some enrollees leave hospice before death in search of therapies that may prolong survival. Because of a greater preference for life-sustaining therapies a ... Full text Link to item Cite

Racial differences in the growth of noncancer diagnoses among hospice enrollees.

Journal Article J Pain Symptom Manage · September 2007 Patients with noncancer life-limiting illnesses now represent over half of all hospice enrollees, compared to only one-quarter of enrollees in 1992. Whether this growth in enrollees with noncancer diagnoses has been similar for Caucasians and African Ameri ... Full text Link to item Cite

Racial differences in next-of-kin participation in an ongoing survey of satisfaction with end-of-life care: a study of a study.

Journal Article J Palliat Med · October 2006 Despite disparities in health care access and quality, African Americans are underrepresented in many areas of clinical investigation, including research in end-of-life care. Because of the importance of surrogate reports in assessing the quality of end-of ... Full text Link to item Cite

Racial differences in survival after hospice revocation to pursue aggressive care.

Conference JOURNAL OF THE AMERICAN GERIATRICS SOCIETY · April 1, 2006 Link to item Cite

Ethnic differences in the place of death of elderly hospice enrollees.

Journal Article J Am Geriatr Soc · December 2005 Elderly minorities are more likely to die in inpatient settings than their Caucasian counterparts. It is not known whether this difference is due to cultural preferences for place of death or decreased access to hospice. This analysis examines ethnic diffe ... Full text Link to item Cite

The influence of spiritual beliefs and practices on the treatment preferences of African Americans: a review of the literature.

Journal Article J Am Geriatr Soc · April 2005 Spirituality is an important part of African-American culture and is often cited as an explanation for the more-aggressive treatment preferences of some African Americans at the end of life. This paper reviews the literature on spiritual beliefs that may i ... Full text Link to item Cite

How do dementia and cancer patients enrolled in hospice differ?

Conference JOURNAL OF THE AMERICAN GERIATRICS SOCIETY · April 1, 2005 Link to item Cite

Predictors of extended prognosis in hospice patients with dementia.

Conference JOURNAL OF THE AMERICAN GERIATRICS SOCIETY · April 1, 2005 Link to item Cite

Who revokes hospice? Differences by race.

Conference JOURNAL OF THE AMERICAN GERIATRICS SOCIETY · April 1, 2005 Link to item Cite

Place of death among elderly hospice users: Differences by race.

Conference JOURNAL OF THE AMERICAN GERIATRICS SOCIETY · April 1, 2004 Link to item Cite