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The importance of development standards for anchoring vignettes: an illustrative example from pediatric localized scleroderma quality of life.

Publication ,  Journal Article
Zigler, CK; Jacobe, H; Ardalan, K; Coles, TM; Lane, S; Schollaert, KL; Torok, KS
Published in: Qual Life Res
December 2020

PURPOSE: Anchoring vignettes (AVs) are a promising measurement technique to reduce bias in patient-reported outcome (PRO) measures by helping researchers understand differences in how individuals and groups interpret response options. However, little attention has been paid to ensure quality development of AVs, and their performance has not been well assessed in pediatric populations. In this study, we explore the application of a rigorous development process for AVs based upon current standards for PROs, as well as feasibility of AVs when administered to children and adolescents. METHODS: We developed AVs using a rigorous, patient-centered mixed methods process including three phases: (1) development, (2) a pilot study, and (3) a field test. Our proposed process included the generation of a conceptual framework based on the PRO, the Localized Scleroderma Quality of Life Instrument, and numerous vignette-specific considerations. We qualitatively explored readability and comprehension of the AVs (pilot study) and then analyzed ranking patterns within vignette sets (field test). RESULTS: Four sets of four vignettes were developed. Revisions were suggested at each phase of development. The pilot study demonstrated that children ≥ 10 years had no trouble indicating understanding of the AVs. In the field test, although appropriate rankings of vignettes were generally demonstrated by participants, the percentage of tied rankings was higher than expected in this pediatric group. CONCLUSIONS: This work supports the need for rigorous developmental standards for AVs, as each stage of development suggested revisions. Additionally, AVs showed initial promise for use with pediatric populations; general feasibility and understanding were supported.

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Published In

Qual Life Res

DOI

EISSN

1573-2649

Publication Date

December 2020

Volume

29

Issue

12

Start / End Page

3263 / 3272

Location

Netherlands

Related Subject Headings

  • Young Adult
  • Scleroderma, Localized
  • Reference Standards
  • Quality of Life
  • Psychometrics
  • Pilot Projects
  • Patient Reported Outcome Measures
  • Male
  • Humans
  • Health Policy & Services
 

Citation

APA
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ICMJE
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Zigler, C. K., Jacobe, H., Ardalan, K., Coles, T. M., Lane, S., Schollaert, K. L., & Torok, K. S. (2020). The importance of development standards for anchoring vignettes: an illustrative example from pediatric localized scleroderma quality of life. Qual Life Res, 29(12), 3263–3272. https://doi.org/10.1007/s11136-020-02575-6
Zigler, Christina K., Heidi Jacobe, Kaveh Ardalan, Theresa M. Coles, Suzane Lane, Kaila L. Schollaert, and Kathryn S. Torok. “The importance of development standards for anchoring vignettes: an illustrative example from pediatric localized scleroderma quality of life.Qual Life Res 29, no. 12 (December 2020): 3263–72. https://doi.org/10.1007/s11136-020-02575-6.
Zigler CK, Jacobe H, Ardalan K, Coles TM, Lane S, Schollaert KL, et al. The importance of development standards for anchoring vignettes: an illustrative example from pediatric localized scleroderma quality of life. Qual Life Res. 2020 Dec;29(12):3263–72.
Zigler, Christina K., et al. “The importance of development standards for anchoring vignettes: an illustrative example from pediatric localized scleroderma quality of life.Qual Life Res, vol. 29, no. 12, Dec. 2020, pp. 3263–72. Pubmed, doi:10.1007/s11136-020-02575-6.
Zigler CK, Jacobe H, Ardalan K, Coles TM, Lane S, Schollaert KL, Torok KS. The importance of development standards for anchoring vignettes: an illustrative example from pediatric localized scleroderma quality of life. Qual Life Res. 2020 Dec;29(12):3263–3272.
Journal cover image

Published In

Qual Life Res

DOI

EISSN

1573-2649

Publication Date

December 2020

Volume

29

Issue

12

Start / End Page

3263 / 3272

Location

Netherlands

Related Subject Headings

  • Young Adult
  • Scleroderma, Localized
  • Reference Standards
  • Quality of Life
  • Psychometrics
  • Pilot Projects
  • Patient Reported Outcome Measures
  • Male
  • Humans
  • Health Policy & Services