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Enhancing the use of EHR systems for pragmatic embedded research: lessons from the NIH Health Care Systems Research Collaboratory.

Publication ,  Journal Article
Richesson, RL; Marsolo, KS; Douthit, BJ; Staman, K; Ho, PM; Dailey, D; Boyd, AD; McTigue, KM; Ezenwa, MO; Schlaeger, JM; Patil, CL; Faurot, KR ...
Published in: Journal of the American Medical Informatics Association : JAMIA
November 2021

We identified challenges and solutions to using electronic health record (EHR) systems for the design and conduct of pragmatic research.Since 2012, the Health Care Systems Research Collaboratory has served as the resource coordinating center for 21 pragmatic clinical trial demonstration projects. The EHR Core working group invited these demonstration projects to complete a written semistructured survey and used an inductive approach to review responses and identify EHR-related challenges and suggested EHR enhancements.We received survey responses from 20 projects and identified 21 challenges that fell into 6 broad themes: (1) inadequate collection of patient-reported outcome data, (2) lack of structured data collection, (3) data standardization, (4) resources to support customization of EHRs, (5) difficulties aggregating data across sites, and (6) accessing EHR data.Based on these findings, we formulated 6 prerequisites for PCTs that would enable the conduct of pragmatic research: (1) integrate the collection of patient-centered data into EHR systems, (2) facilitate structured research data collection by leveraging standard EHR functions, usable interfaces, and standard workflows, (3) support the creation of high-quality research data by using standards, (4) ensure adequate IT staff to support embedded research, (5) create aggregate, multidata type resources for multisite trials, and (6) create re-usable and automated queries.We are hopeful our collection of specific EHR challenges and research needs will drive health system leaders, policymakers, and EHR designers to support these suggestions to improve our national capacity for generating real-world evidence.

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Published In

Journal of the American Medical Informatics Association : JAMIA

DOI

EISSN

1527-974X

ISSN

1067-5027

Publication Date

November 2021

Volume

28

Issue

12

Start / End Page

2626 / 2640

Related Subject Headings

  • Surveys and Questionnaires
  • Software
  • Research Report
  • Medical Informatics
  • Humans
  • Electronic Health Records
  • Delivery of Health Care
  • 46 Information and computing sciences
  • 42 Health sciences
  • 32 Biomedical and clinical sciences
 

Citation

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Richesson, R. L., Marsolo, K. S., Douthit, B. J., Staman, K., Ho, P. M., Dailey, D., … Fiol, G. D. (2021). Enhancing the use of EHR systems for pragmatic embedded research: lessons from the NIH Health Care Systems Research Collaboratory. Journal of the American Medical Informatics Association : JAMIA, 28(12), 2626–2640. https://doi.org/10.1093/jamia/ocab202
Richesson, Rachel L., Keith S. Marsolo, Brian J. Douthit, Karen Staman, P Michael Ho, Dana Dailey, Andrew D. Boyd, et al. “Enhancing the use of EHR systems for pragmatic embedded research: lessons from the NIH Health Care Systems Research Collaboratory.Journal of the American Medical Informatics Association : JAMIA 28, no. 12 (November 2021): 2626–40. https://doi.org/10.1093/jamia/ocab202.
Richesson RL, Marsolo KS, Douthit BJ, Staman K, Ho PM, Dailey D, et al. Enhancing the use of EHR systems for pragmatic embedded research: lessons from the NIH Health Care Systems Research Collaboratory. Journal of the American Medical Informatics Association : JAMIA. 2021 Nov;28(12):2626–40.
Richesson, Rachel L., et al. “Enhancing the use of EHR systems for pragmatic embedded research: lessons from the NIH Health Care Systems Research Collaboratory.Journal of the American Medical Informatics Association : JAMIA, vol. 28, no. 12, Nov. 2021, pp. 2626–40. Epmc, doi:10.1093/jamia/ocab202.
Richesson RL, Marsolo KS, Douthit BJ, Staman K, Ho PM, Dailey D, Boyd AD, McTigue KM, Ezenwa MO, Schlaeger JM, Patil CL, Faurot KR, Tuzzio L, Larson EB, O’Brien EC, Zigler CK, Lakin JR, Pressman AR, Braciszewski JM, Grudzen C, Fiol GD. Enhancing the use of EHR systems for pragmatic embedded research: lessons from the NIH Health Care Systems Research Collaboratory. Journal of the American Medical Informatics Association : JAMIA. 2021 Nov;28(12):2626–2640.
Journal cover image

Published In

Journal of the American Medical Informatics Association : JAMIA

DOI

EISSN

1527-974X

ISSN

1067-5027

Publication Date

November 2021

Volume

28

Issue

12

Start / End Page

2626 / 2640

Related Subject Headings

  • Surveys and Questionnaires
  • Software
  • Research Report
  • Medical Informatics
  • Humans
  • Electronic Health Records
  • Delivery of Health Care
  • 46 Information and computing sciences
  • 42 Health sciences
  • 32 Biomedical and clinical sciences