Kathryn E. Gustafson

Journal Article Circulation · October 28, 2025 BACKGROUND: Neurodevelopmental and functional impairments are among the most consequential morbidities for survivors of hypoplastic left heart syndrome after staged single ventricle surgical palliation. The SVRIII trial (Long-Term Outcomes of Children With ... Full text Link to item Cite

Family caregiver observations of pain behaviors in infants and young children less than 3 years of age.

Journal Article J Pain · August 2025 Pain in very young, preverbal children is often inadequately assessed and thus poorly treated, leading to short- and long-term negative consequences. Family caregivers are often the primary observers of young children's pain, but their perspectives are oft ... Full text Link to item Cite

Trends in sex differences in neurodevelopmental outcomes among extremely preterm infants.

Journal Article Arch Dis Child Fetal Neonatal Ed · April 17, 2025 OBJECTIVE: To examine whether changes in survival without moderate or severe neurodevelopmental impairment (NDI) at 18-26 months' corrected age from 1999 to 2018 differed between male and female infants. DESIGN: This retrospective cohort study used data fr ... Full text Link to item Cite

NICHD Magnetic Resonance Brain Imaging Score in Term Infants With Hypoxic-Ischemic Encephalopathy: A Secondary Analysis of a Randomized Clinical Trial.

Journal Article JAMA Pediatr · April 1, 2025 IMPORTANCE: The neonatal brain injury score on magnetic resonance imaging following moderate or severe hypoxic-ischemic encephalopathy developed by the National Institute of Child Health and Human Development Neonatal Research Network has been revised to s ... Full text Link to item Cite

Association of a Count of Inpatient Morbidities with 2-Year Outcomes among Infants Born Extremely Preterm.

Journal Article J Pediatr · March 2025 OBJECTIVE: To determine if number of neonatal morbidities is associated with death or severe neurodevelopmental impairment (sNDI) among infants born extremely preterm who survived to 36 weeks' postmenstrual age (PMA). STUDY DESIGN: This is a retrospective ... Full text Link to item Cite

Surgical Necrotizing Enterocolitis and Spontaneous Intestinal Perforation Lead to Severe Growth Failure in Infants.

Journal Article Ann Surg · September 1, 2024 OBJECTIVE: We aimed to determine the incidence of growth failure in infants with necrotizing enterocolitis (NEC) or spontaneous intestinal perforation (SIP) and whether initial laparotomy versus peritoneal drainage (PD) impacted the likelihood of growth fa ... Full text Link to item Cite

Subventricular zone stem cell niche injury is associated with intestinal perforation in preterm infants and predicts future motor impairment.

Journal Article Cell Stem Cell · April 4, 2024 Brain injury is highly associated with preterm birth. Complications of prematurity, including spontaneous or necrotizing enterocolitis (NEC)-associated intestinal perforations, are linked to lifelong neurologic impairment, yet the mechanisms are poorly und ... Full text Link to item Cite

Neurodevelopmental Outcomes of Extremely Preterm Infants Fed Donor Milk or Preterm Infant Formula: A Randomized Clinical Trial.

Journal Article JAMA · February 20, 2024 IMPORTANCE: Maternal milk feeding of extremely preterm infants during the birth hospitalization has been associated with better neurodevelopmental outcomes compared with preterm formula. For infants receiving no or minimal maternal milk, it is unknown whet ... Full text Link to item Cite

Longitudinal Choroidal Development in Preterm Infants.

Journal Article Ophthalmol Sci · 2024 PURPOSE: To characterize changes in subfoveal choroidal thickness in preterm infants from 30 to 60 weeks' postmenstrual age (PMA). DESIGN: The prospective, observational Study of Eye Imaging in Preterm infantS (BabySTEPS) enrolled infants eligible for reti ... Full text Link to item Cite

Sleeping Safe and Sound: A Multidisciplinary Hospital-wide Infant Safe Sleep Quality Improvement Initiative.

Journal Article J Pediatr Health Care · 2024 INTRODUCTION: Promoting safe sleep to decrease sudden unexpected infant death is challenging in the hospital setting. LOCAL PROBLEM: Concern for adherence to safe sleep practice across inpatient units at a large pediatric hospital. METHODS: Used quality im ... Full text Link to item Cite

Do Bayley-III Composite Scores at 18-22 Months Corrected Age Predict Full-Scale IQ at 6-7 Years in Children Born Extremely Preterm?

Journal Article J Pediatr · December 2023 OBJECTIVE: To determine the ability of the Bayley-III cognitive and language composite scores at 18-22 months corrected age to predict WISC-IV Full Scale IQ (FSIQ) at 6-7 years in infants born extremely preterm. STUDY DESIGN: Children in this study were pa ... Full text Link to item Cite

Use of term reference infants in assessing the developmental outcome of extremely preterm infants: lessons learned in a multicenter study.

Journal Article J Perinatol · November 2023 OBJECTIVE: Extremely preterm (EP) impairment rates are likely underestimated using the Bayley III norm-based thresholds scores and may be better assessed relative to concurrent healthy term reference (TR) infants born in the same hospital. STUDY DESIGN: Bl ... Full text Link to item Cite

Early-Life Outcomes in Relation to Social Determinants of Health for Children Born Extremely Preterm.

Journal Article J Pediatr · August 2023 OBJECTIVE: To characterize the relationships between social determinants of health (SDOH) and outcomes for children born extremely preterm. STUDY DESIGN: This is a cohort study of infants born at 22-26 weeks of gestation in National Institute of Child Heal ... Full text Link to item Cite

A Pilot Phase I Trial of Allogeneic Umbilical Cord Tissue-Derived Mesenchymal Stromal Cells in Neonates With Hypoxic-Ischemic Encephalopathy.

Journal Article Stem Cells Transl Med · June 15, 2023 Hypoxic ischemic encephalopathy (HIE) in neonates causes increased mortality and long-term morbidity in surviving babies. Hypothermia (HT) has improved outcomes, however, mortality remains high with ~half of surviving babies developing neurological impairm ... Full text Link to item Cite

Cortisol awakening response and developmental outcomes at 6-7 years in children born extremely preterm.

Journal Article Pediatr Res · February 2023 BACKGROUND: Extremely preterm (EPT) birth has been related to dysregulation of stress responses and behavioral/learning problems at school age. Early adverse experiences can blunt HPA axis reactivity. We hypothesized that an attenuated cortisol awakening r ... Full text Link to item Cite

The care of the premature infant

Chapter · January 1, 2023 All primary care pediatric providers will encounter patients who were born prematurely and be faced with the unique challenges this patient population holds. Medical advances in the Neonatal Intensive Care Unit (NICU) steadily increase survival rates of pr ... Full text Cite

Integrated Visualization Highlighting Retinal Changes in Retinopathy of Prematurity From 3-Dimensional Optical Coherence Tomography Data.

Journal Article JAMA Ophthalmol · July 1, 2022 IMPORTANCE: Early diagnosis of plus disease is critical in the management of retinopathy of prematurity (ROP). However, there is substantial interexpert disagreement in the diagnosis of plus disease based on vascular changes alone. Information derived from ... Full text Link to item Cite

Benefits of newborn screening and hematopoietic cell transplant in infantile Krabbe disease.

Journal Article Blood Adv · May 10, 2022 Infantile Krabbe disease (IKD) can be treated with hematopoietic cell transplantation (HCT) if done during the first weeks of life before symptoms develop. To facilitate this, newborn screening (NBS) has been instituted in 8 US states. An application to ad ... Full text Open Access Link to item Cite

Survival, Morbidities, and Developmental Outcomes among Low Birth Weight Infants with Congenital Heart Defects.

Journal Article Am J Perinatol · November 2021 OBJECTIVE: Prematurity and low birth weight (LBW) are risk factors for increased morbidity and mortality in infants with congenital heart defects (CHDs). We sought to describe survival, inhospital morbidities, and 2-year neurodevelopmental follow-up in LBW ... Full text Link to item Cite

Growth Rates of Infants Randomized to Continuous Positive Airway Pressure or Intubation After Extremely Preterm Birth.

Journal Article J Pediatr · October 2021 OBJECTIVE: To evaluate the effects of early treatment with continuous positive airway pressure (CPAP) on nutritional intake and in-hospital growth rates of extremely preterm (EPT) infants. STUDY DESIGN: EPT infants (240/7-276/7 weeks of gestation) enrolled ... Full text Link to item Cite

Preterm Infant Stress During Handheld Optical Coherence Tomography vs Binocular Indirect Ophthalmoscopy Examination for Retinopathy of Prematurity.

Journal Article JAMA Ophthalmol · May 1, 2021 IMPORTANCE: Binocular indirect ophthalmoscopy (BIO) examination for retinopathy of prematurity (ROP) is a well-known cause of repeated preterm infant stress. OBJECTIVE: To compare stress during investigational optical coherence tomography (OCT) imaging to ... Full text Link to item Cite

Limitations of Conventional Magnetic Resonance Imaging as a Predictor of Death or Disability Following Neonatal Hypoxic-Ischemic Encephalopathy in the Late Hypothermia Trial.

Journal Article J Pediatr · March 2021 OBJECTIVE: To investigate if magnetic resonance imaging (MRI) is an accurate predictor for death or moderate-severe disability at 18-22 months of age among infants with neonatal encephalopathy in a trial of cooling initiated at 6-24 hours. STUDY DESIGN: Su ... Full text Link to item Cite

Genetic variation in dopamine neurotransmission and motor development of infants born extremely-low-birthweight.

Journal Article Dev Med Child Neurol · June 2020 AIM: To determine if genetic variation associated with decreased dopamine neurotransmission predicts a decrease in motor development in a convenience cohort study of infants born extremely-low-birthweight (ELBW). METHOD: Four hundred and ninety-eight infan ... Full text Link to item Cite

Behavior Profiles at 2 Years for Children Born Extremely Preterm with Bronchopulmonary Dysplasia.

Journal Article J Pediatr · April 2020 OBJECTIVE: To characterize behavior of 2-year-old children based on the severity of bronchopulmonary dysplasia (BPD). STUDY DESIGN: We studied children born at 22-26 weeks of gestation and assessed at 22-26 months of corrected age with the Child Behavior C ... Full text Link to item Cite

Timing of postnatal steroids for bronchopulmonary dysplasia: association with pulmonary and neurodevelopmental outcomes.

Journal Article J Perinatol · April 2020 OBJECTIVE: To determine the associations between age at first postnatal corticosteroids (PNS) exposure and risk for severe bronchopulmonary dysplasia (BPD) and neurodevelopmental impairment (NDI). STUDY DESIGN: Cohort study of 951 infants born <27 weeks ge ... Full text Link to item Cite

Developmental Outcomes of Extremely Preterm Infants with a Need for Child Protective Services Supervision.

Journal Article J Pediatr · December 2019 OBJECTIVE: To evaluate neurodevelopmental outcomes of preterm infants with need for Child Protective Services (CPS) supervision at hospital discharge compared with those discharged without CPS supervision. STUDY DESIGN: For infants born at <27 weeks of ges ... Full text Link to item Cite

Developmental Outcomes of Extremely Preterm Infants with a Need for Child Protective Services Supervision

Journal Article JOURNAL OF PEDIATRICS · December 1, 2019 Full text Link to item Cite

Gastrostomy Tube Feeding in Extremely Low Birthweight Infants: Frequency, Associated Comorbidities, and Long-term Outcomes.

Journal Article J Pediatr · November 2019 OBJECTIVE: To assess the frequency of gastrostomy tube (GT) placement in extremely low birth weight (ELBW) infants, associated comorbidities, and long-term outcomes. STUDY DESIGN: Analysis of ELBW infants from 25 centers enrolled in the National Institute ... Full text Link to item Cite

Adrenal function links to early postnatal growth and blood pressure at age 6 in children born extremely preterm.

Journal Article Pediatr Res · September 2019 BACKGROUND: Low birth weight in term-born individuals correlates with adverse cardiometabolic outcomes; excess glucocorticoid exposure has been linked to these relationships. We hypothesized that cortisol and adrenal androgens would correlate inversely wit ... Full text Link to item Cite

Discordance in Antenatal Corticosteroid Use and Resuscitation Following Extremely Preterm Birth.

Journal Article J Pediatr · May 2019 OBJECTIVE: To describe discordance in antenatal corticosteroid use and resuscitation following extremely preterm birth and its relationship with infant survival and neurodevelopment. STUDY DESIGN: A multicenter cohort study of 4858 infants 22-26 weeks of g ... Full text Link to item Cite

Outcomes of Extremely Preterm Infants With Birth Weight Less Than 400 g.

Journal Article JAMA Pediatr · May 1, 2019 IMPORTANCE: Birth weight (BW) is an important predictor of mortality and morbidity. At extremely early gestational ages (GAs), BW may influence decisions regarding initiation of resuscitation. OBJECTIVE: To characterize outcomes of liveborn infants with a ... Full text Link to item Cite

Neurodevelopmental outcomes among extremely premature infants with linear growth restriction.

Journal Article J Perinatol · February 2019 OBJECTIVE: To compare neurodevelopmental outcomes in linear growth-restricted (LGR) infants born <29 weeks with and without weight gain out of proportion to linear growth. STUDY DESIGN: We compared 2-year neurodevelopmental outcomes between infants with an ... Full text Open Access Link to item Cite

Behavioral Deficits at 18-22 Months of Age Are Associated with Early Cerebellar Injury and Cognitive and Language Performance in Children Born Extremely Preterm.

Journal Article J Pediatr · January 2019 OBJECTIVE: To investigate associations in toddlers born extremely preterm (<28 weeks) between neonatal neuroimaging and 18- to 22-month developmental and behavioral outcomes. STUDY DESIGN: Cohort analysis from the Eunice Kennedy Shriver National Institute ... Full text Link to item Cite

Behavioral problems are associated with cognitive and language scores in toddlers born extremely preterm.

Journal Article Early Hum Dev · January 2019 OBJECTIVE: To evaluate the relationship of parent-reported child behaviors on the Child Behavior Checklist (CBCL) to cognition, language, and motor skills on the Bayley Scales of Infant and Toddler Development - III (Bayley-III) in toddlers born extremely ... Full text Link to item Cite

Outcomes of preterm infants treated with hypothermia for hypoxic-ischemic encephalopathy.

Journal Article Early Hum Dev · October 2018 BACKGROUND: Therapeutic hypothermia reduces the risk of death, or moderate to severe neurodevelopmental impairment (NDI) in term infants with hypoxic-ischemic encephalopathy (HIE). Reports of its safety and efficacy in preterm infants are scarce. OBJECTIVE ... Full text Link to item Cite

Extreme Preterm Infant Rates of Overweight and Obesity at School Age in the SUPPORT Neuroimaging and Neurodevelopmental Outcomes Cohort.

Journal Article J Pediatr · September 2018 OBJECTIVE: To identify rates of overweight (body mass index [BMI] ≥85th percentile) and obesity (BMI ≥95th percentile) at 6-7 years of age and associated risk factors among extremely preterm infants born at <28 weeks of gestation. STUDY DESIGN: Anthropomet ... Full text Link to item Cite

Preterm Neuroimaging and School-Age Cognitive Outcomes.

Journal Article Pediatrics · July 2018 BACKGROUND AND OBJECTIVES: Children born extremely preterm are at risk for cognitive difficulties and disability. The relative prognostic value of neonatal brain MRI and cranial ultrasound (CUS) for school-age outcomes remains unclear. Our objectives were ... Full text Link to item Cite

Neurodevelopmental Impairment Among Extremely Preterm Infants in the Neonatal Research Network.

Journal Article Pediatrics · May 2018 OBJECTIVES: Evaluate the spectrum of neurodevelopmental outcome in a contemporary cohort of extremely preterm infants. We hypothesize that the rate of severe neurodevelopmental impairment (NDI) decreases over time. METHODS: Retrospective analysis of neurod ... Full text Link to item Cite

Outcome of Preterm Infants with Transient Cystic Periventricular Leukomalacia on Serial Cranial Imaging Up to Term Equivalent Age.

Journal Article J Pediatr · April 2018 OBJECTIVE: To determine the outcome of preterm infants whose cystic periventricular leukomalacia "disappeared" on serial screening cranial imaging studies. STUDY DESIGN: Infants ≤26 weeks of gestation born between 2002 and 2012 who had cranial imaging stud ... Full text Link to item Cite

Neurodevelopmental and Behavioral Outcomes in Extremely Premature Neonates With Ventriculomegaly in the Absence of Periventricular-Intraventricular Hemorrhage.

Journal Article JAMA Pediatr · January 1, 2018 IMPORTANCE: Studies of cranial ultrasonography and early childhood outcomes among cohorts of extremely preterm neonates have linked periventricular-intraventricular hemorrhage and cystic periventricular leukomalacia with adverse neurodevelopmental outcomes ... Full text Link to item Cite

First-year engineering students' perceptions of engineering disciplines: A qualitative investigation

Journal Article International Journal of Engineering Education · January 1, 2018 In understanding undergraduate students' success in college, their choice of career path must be fully understood. Different paths are appropriate for different students, and even a student may not fully grasp what will work best for them. Understanding th ... Cite

Effect of Autologous Cord Blood Infusion on Motor Function and Brain Connectivity in Young Children with Cerebral Palsy: A Randomized, Placebo-Controlled Trial.

Journal Article Stem Cells Transl Med · December 2017 Cerebral palsy (CP) is a condition affecting young children that causes lifelong disabilities. Umbilical cord blood cells improve motor function in experimental systems via paracrine signaling. After demonstrating safety, we conducted a phase II trial of a ... Full text Open Access Link to item Cite

Systematic Changes to Help Parentsof Medically Complex Infants Manage Medical Expenses.

Journal Article Adv Neonatal Care · December 2017 BACKGROUND: Financial obligations serve as an added source of stress and burden for parents of medically complex infants that have extended hospitalizations in the neonatal intensive care unit. Financial resources and support personnel are available to ass ... Full text Link to item Cite

Outcomes of Preterm Infants following Discussions about Withdrawal or Withholding of Life Support.

Journal Article J Pediatr · November 2017 OBJECTIVES: To describe the frequency of postnatal discussions about withdrawal or withholding of life-sustaining therapy (WWLST), ensuing WWLST, and outcomes of infants surviving such discussions. We hypothesized that such survivors have poor outcomes. ST ... Full text Link to item Cite

The importance of managing the patient and not the gene: expanded phenotype of GLE1-associated arthrogryposis.

Journal Article Cold Spring Harb Mol Case Stud · November 2017 GLE1 encodes a protein important for mRNA export and appears to play roles in translation initiation and termination as well. Pathogenic variants in GLE1 mutations have been associated with lethal contracture syndrome and lethal arthrogryposis with anterio ... Full text Link to item Cite

Behavioral Problems and Socioemotional Competence at 18 to 22 Months of Extremely Premature Children.

Journal Article Pediatrics · June 2017 BACKGROUND: Behavior and socioemotional development are crucial aspects of child development . METHODS: A total of 2505 children born at <27 weeks' gestation was evaluated at 18 to 22 months' corrected age between January 1, 2008 and December 12, 2012 (86% ... Full text Link to item Cite

Survival and Neurodevelopmental Outcomes among Periviable Infants.

Journal Article N Engl J Med · February 16, 2017 BACKGROUND: Data reported during the past 5 years indicate that rates of survival have increased among infants born at the borderline of viability, but less is known about how increased rates of survival among these infants relate to early childhood neurod ... Full text Link to item Cite

Growth Outcomes of Preterm Infants Exposed to Different Oxygen Saturation Target Ranges from Birth.

Journal Article J Pediatr · September 2016 OBJECTIVE: To test whether infants randomized to a lower oxygen saturation (peripheral capillary oxygen saturation [SpO2]) target range while on supplemental oxygen from birth will have better growth velocity from birth to 36 weeks postmenstrual age (PMA) ... Full text Link to item Cite

Improved survival and neurodevelopmental outcomes among extremely premature infants born near the limit of viability.

Journal Article Early Hum Dev · April 2016 BACKGROUND: Infants born near the limit of viability are at high risk for death or adverse neurodevelopmental outcomes. It is unclear whether these outcomes have improved over the past 15 years. AIM: To determine if death and neurodevelopmental impairment ... Full text Link to item Cite

Thinner Retinal Nerve Fiber Layer in Very Preterm Versus Term Infants and Relationship to Brain Anatomy and Neurodevelopment.

Journal Article Am J Ophthalmol · December 2015 PURPOSE: To assess retinal nerve fiber layer (RNFL) thickness at term-equivalent age in very preterm (<32 weeks gestational age) vs term-born infant cohorts, and compare very preterm infant RNFL thickness with brain anatomy and neurodevelopment. DESIGN: Co ... Full text Link to item Cite

FUNCTIONAL OUTCOMES OF YOUNG INFANTS WITH AND WITHOUT MACULAR EDEMA.

Journal Article Retina · October 2015 PURPOSE: The authors relate posterior segment microanatomy from perinatal spectral domain optical coherence tomography to visual acuity, brain abnormalities, and neurodevelopment. METHODS: Thirteen infants (11 preterm and 2 term birth), imaged in the nurse ... Full text Link to item Cite

Developmental outcomes of extremely preterm infants born to adolescent mothers.

Journal Article Pediatrics · June 2015 BACKGROUND AND OBJECTIVES: Extremely preterm infants and infants born to adolescent mothers are at risk for adverse developmental. The objectives were to evaluate development and behavior outcomes of extremely low birth weight (ELBW) infants born to adoles ... Full text Link to item Cite

Poorer neurodevelopmental outcomes associated with cystoid macular edema identified in preterm infants in the intensive care nursery.

Journal Article Ophthalmology · March 2015 PURPOSE: To evaluate the association between cystoid macular edema (CME) observed in very preterm infants and developmental outcomes at 18 to 24 months corrected age. DESIGN: Cohort study. PARTICIPANTS: Infants born at or less than 1500 g or at or less tha ... Full text Link to item Cite

PaCO2 in surfactant, positive pressure, and oxygenation randomised trial (SUPPORT).

Journal Article Arch Dis Child Fetal Neonatal Ed · March 2015 OBJECTIVE: To determine the association of arterial partial pressure of carbon dioxide PaCO2 with severe intraventricular haemorrhage (sIVH), bronchopulmonary dysplasia (BPD), and neurodevelopmental impairment (NDI) at 18-22 months in premature infants. DE ... Full text Link to item Cite

Umbilical cord blood transplantation to treat Pelizaeus-Merzbacher Disease in 2 young boys.

Journal Article Pediatrics · November 2014 Pelizaeus-Merzbacher Disease (PMD) is a rare X-linked recessive leukodystrophy caused by mutations in the proteolipid protein 1 gene on the Xq22 chromosome. PMD is a dysmyelinating disorder characterized by variable clinical presentation and course. Sympto ... Full text Open Access Link to item Cite

Evaluation of optic nerve development in preterm and term infants using handheld spectral-domain optical coherence tomography.

Journal Article Ophthalmology · September 2014 PURPOSE: To evaluate effects of prematurity on early optic nerve (ON) development and the usefulness of ON parameters as indicators of central nervous system (CNS) development and pathology. DESIGN: Prospective, cross-sectional, longitudinal study. PARTICI ... Full text Link to item Cite

Feasibility of autologous cord blood cells for infants with hypoxic-ischemic encephalopathy.

Journal Article J Pediatr · May 2014 OBJECTIVE: To assess feasibility and safety of providing autologous umbilical cord blood (UCB) cells to neonates with hypoxic-ischemic encephalopathy (HIE). STUDY DESIGN: We enrolled infants in the intensive care nursery who were cooled for HIE and had ava ... Full text Open Access Link to item Cite

Perinatal factors associated with poor neurocognitive outcome in early school age congenital diaphragmatic hernia survivors.

Journal Article J Pediatr Surg · April 2013 OBJECTIVE: Determine predictors of neurocognitive outcome in early school age congenital diaphragmatic hernia (CDH) survivors. STUDY DESIGN: Prospective study of infants with CDH at Duke University Medical Center. Neurocognitive delay (NCD) at school age ( ... Full text Link to item Cite

Effect of antenatal treatment of maternal periodontitis on early childhood neurodevelopment.

Journal Article Am J Perinatol · November 2012 OBJECTIVE: To determine if antenatal treatment of maternal periodontitis affects early childhood neurodevelopment. STUDY DESIGN: We evaluated neurodevelopment of 331 24-month-old children born to women who participated in a randomized trial of antenatal (1 ... Full text Link to item Cite

Childhood outcomes after hypothermia for neonatal encephalopathy

Journal Article Obstetrical and Gynecological Survey · October 1, 2012 Full text Cite

Childhood outcomes after hypothermia for neonatal encephalopathy.

Journal Article N Engl J Med · May 31, 2012 BACKGROUND: We previously reported early results of a randomized trial of whole-body hypothermia for neonatal hypoxic-ischemic encephalopathy showing a significant reduction in the rate of death or moderate or severe disability at 18 to 22 months of age. L ... Full text Link to item Cite

Early developmental outcome in children with hypoplastic left heart syndrome and related anomalies: the single ventricle reconstruction trial.

Journal Article Circulation · May 1, 2012 BACKGROUND: Survivors of the Norwood procedure may experience neurodevelopmental impairment. Clinical trials to improve outcomes have focused primarily on methods of vital organ support during cardiopulmonary bypass. METHODS AND RESULTS: In the Single Vent ... Full text Link to item Cite

Early Neurodevelopmental Outcome in Hypoplastic Left Heart Syndrome and Related Anomalies: The Single Ventricle Reconstruction Trial

Conference CIRCULATION · November 22, 2011 Link to item Cite

Neurocognitive development of young children with sickle cell disease through three years of age.

Journal Article J Pediatr Psychol · 2002 OBJECTIVE: To determine (1) the neurocognitive development of children with sickle cell disease (SCD) from 6 months through 36 months of age, (2) the independent and combined contributions of biomedical risk and parenting risk to child neurocognitive funct ... Full text Link to item Cite

The impact of sickle cell disease on cognitive functioning and learning

Journal Article School Psychology Review · December 1, 1999 Sickle Cell Disease (SCD) refers to a complex group of hereditary hematologic disorders that are most common in people of African descent (Sickle Cell Disease Guideline Panel, 1993). Although most children with SCD demonstrate adequate academic functioning ... Cite

Change in the Psychological Adjustment of Children with Cystic Fibrosis or Sickle Cell Disease and Their Mothers

Journal Article Journal of Clinical Psychology in Medical Settings · January 1, 1999 Objectives: This study has three interrelated objectives: (1) to track the adjustment of children and adolescents with sickle cell disease (SCD) or cystic fibrosis (CF) and their mothers through a third assessment point 2 years after the initial assessment ... Full text Cite

Home Environment and Developmental Outcome of African American and White Infants with Very Low Birthweight

Journal Article Children S Health Care · January 1, 1998 The independent and additive contribution of psychosocial and biological risk factors to developmental outcome of very low birthweight infants (< 1,500 g) were examined through 24 months corrected age as a function of race. Psychosocial risk was assessed i ... Full text Cite

Illness specific patterns of psychological adjustment and cognitive adaptational processes in children with cystic fibrosis and sickle cell disease.

Journal Article J Clin Psychol · January 1998 Illness-specific patterns of adjustment and cognitive adaptational process were identified in children (7-12 years of age) with cystic fibrosis (CF, n = 40) or sickle cell disease (SCD, n = 40). Anxiety diagnoses were most frequent for both illness subgrou ... Full text Link to item Cite

Developmental outcome of very low birth weight infants at four years of age as a function of biological risk and psychosocial risk.

Journal Article J Dev Behav Pediatr · April 1997 The continuing contribution of early biological and psychosocial risk factors to developmental outcome of 55 very low birth weight infants (< or = 1500 g) was assessed at 4 years of age. Biological risk, assessed by the Neurobiologic Risk Score, accounted ... Full text Link to item Cite

adaptation to chronic childhood illness

Book · 1996 Cite

Behavioral characteristics of very-low-birth-weight infants of varying biologic risk at 6, 15, and 24 months of age.

Journal Article J Obstet Gynecol Neonatal Nurs · 1996 OBJECTIVE: To explore the relationship between developmental outcome and behavior of very-low-birth-weight (VLBW) infants (< or = 1500 g) at high and low biologic risk. DESIGN: Descriptive, ex post facto. SETTING: Clinic for follow-up of infants at high ri ... Full text Link to item Cite

Screening for child-reported behavioral and emotional problems in primary care pediatrics.

Journal Article Percept Mot Skills · February 1995 In light of the findings that mother-completed checklists do not adequately reflect children's perceptions of their own adjustment, two child-completed questionnaires were assessed as screening measures for behavioral or emotional problems with 50 children ... Full text Link to item Cite

Book Reviews

Journal Article Journal of Pediatric Psychology · 1995 Full text Cite

Psychological adjustment of children with sickle cell disease: stability and change over a 10-month period.

Journal Article J Consult Clin Psychol · August 1994 Rates of poor psychological adjustment of children with sickle cell disease remained relatively constant over initial and follow-up assessment points. However, there was relatively little stability in the classification of the adjustment of individuals, lo ... Full text Link to item Cite

Developmental outcome of very low birth weight infants as a function of biological risk and psychosocial risk.

Journal Article J Dev Behav Pediatr · August 1994 The relative contribution of biological and psychosocial risk factors to developmental outcome of 102 very low birth weight infants (< 1500 g) was delineated through 24 months corrected age. Biological risk, assessed by the Neurobiologic Risk Score (NBRS), ... Link to item Cite

Change over a 12-month period in the psychological adjustment of children and adolescents with cystic fibrosis.

Journal Article J Pediatr Psychol · April 1994 Found that group rates of mother-reported and child-reported adjustment problems remained relatively constant over initial and 12-month follow-up assessment points. However, there was less stability in the classification of the adjustment of individuals, i ... Full text Link to item Cite

Stability and change in the psychological adjustment of mothers of children and adolescents with cystic fibrosis and sickle cell disease.

Journal Article J Pediatr Psychol · April 1994 Found moderate stability in the classification of maternal adjustment in two longitudinal studies of mothers of children and adolescents with cystic fibrosis and sickle cell disease. In terms of the transactional stress and coping model, stable poor matern ... Full text Link to item Cite

Parents' informed consent decisions regarding psychotherapy for their children: consideration of therapeutic risks and benefits.

Journal Article Prof Psychol Res Pr · February 1994 Full text Link to item Cite

Nursery neurobiologic risk score: levels of risk and relationships with nonmedical factors.

Journal Article J Dev Behav Pediatr · December 1993 This study compares the Neurobiologic Risk Score (NBRS) with developmental outcome in 199 infants < or = 1500 g birth weight to determine levels of risk and to investigate the relative contributions of the NBRS and nonmedical factors to developmental outco ... Link to item Cite

Book Reviews

Journal Article Journal of Developmental and Behavioral Pediatrics · January 1, 1993 This section provides brief reviews of articles from many journals that relate to the interests of individuals seeking information on research and teaching in Developmental and Behavioral Pediatrics. The reviews will not provide critical comments, but the ... Full text Cite

Psychological adjustment of children with cystic fibrosis: the role of child cognitive processes and maternal adjustment.

Journal Article J Pediatr Psychol · December 1992 Found 60% of children 7-12 years old with cystic fibrosis to have a parent-reported behavior problem and 62% met the criteria for a DSM-III diagnosis based on a structured clinical interview with the child. Mixed internal and external behavior problem patt ... Full text Link to item Cite

Informed consent: Risk and benefit disclosure practices of child clinicians

Journal Article Psychotherapy in Private Practice · November 5, 1992 The informed consent practices of clinical child psychologists, regarding specific therapeutic risk and benefit disclosure) were explored through a survey sent to 725 members of the American Psychological Association’s Division 12, Section 1. A factor anal ... Full text Cite

Stress, coping, and family functioning in the psychological adjustment of mothers of children and adolescents with cystic fibrosis.

Journal Article J Pediatr Psychol · October 1992 Assessed the role of illness parameters, demographic parameters, and hypothesized psychosocial/mediational processes in the psychological adjustment of 68 mothers of children and adolescents (7-17 years of age) with cystic fibrosis. Together the illness an ... Full text Link to item Cite

Methylphenidate in neuropsychological sequelae of radiotherapy and chemotherapy of childhood brain tumors and leukemia.

Journal Article J Child Neurol · October 1992 Full text Link to item Cite

Journal article reviews

Journal Article Journal of Developmental and Behavioral Pediatrics · January 1, 1992 This section provides brief reviews of articles from many journals that relate to the interests of individuals seeking information on research and teaching in Developmental and Behavioral Pediatrics. The reviews will not provide critical comments, but the ... Full text Cite

The role of biomedical and psychosocial processes in the intellectual and academic functioning of children and adolescents with cystic fibrosis.

Journal Article J Clin Psychol · January 1992 This study found intellectual and academic functioning of 76 children and adolescents with cystic fibrosis to be normally distributed. Intellectual functioning was related inversely to age, and both intellectual and academic functioning were related direct ... Full text Link to item Cite

Parents' and clinicians' attitudes toward the risks and benefits of child psychotherapy: a study of informed-consent content.

Journal Article Prof Psychol Res Pr · April 1991 Full text Link to item Cite

Journal article reviews

Journal Article Journal of Developmental and Behavioral Pediatrics · January 1, 1991 Full text Cite

Journal article reviews

Journal Article Journal of Developmental and Behavioral Pediatrics · January 1, 1991 Full text Cite

Psychological problems associated with drug therapy in childhood asthma.

Journal Article J Pediatr · November 1989 Ten studies designed to evaluate the psychological and behavioral effects of the antiasthma agent theophylline in children have been carried out to date. In this review, we evaluate the strengths and weaknesses of those investigations and discuss whether t ... Full text Link to item Cite

Psychological problems associated with drug therapy in childhood asthma

Journal Article The Journal of Pediatrics · 1989 Ten studies designed to evaluate the psychological and behavioral effects of the antiasthma agent theophylline in children have been carried out to date. In this review, we evaluate the strengths and weaknesses of those investigations and discuss whether t ... Cite

A Critique of Studies Investigating the Association of Theophylline to Psychologic or Behavioral Performance

Journal Article Pediatric Asthma Allergy and Immunology · January 1, 1988 A number of recent studies have investigated the relationship between theophylline and behavior or psychologic performance. The result has been the widespread notion that theophylline is associated with behavioral or psychologic problems. This review criti ... Full text Cite

Home-Based Behavioral-Systems family therapy with disadvantaged juvenile delinquents

Journal Article American Journal of Family Therapy · January 1, 1988 A replication of Alexander's behavioral-systems family therapy model was attempted for lower socioeconomic status juvenile offenders, most of whom had multiple offenses, including misdemeanors and felonies. Twenty-seven male and female delinquents who had ... Full text Cite

Confidentiality With Minor Clients: Issues and Guidelines for Therapists

Journal Article Professional Psychology Research and Practice · October 1, 1987 Confidentiality is fundamental to the therapeutic relationship; however, minors' rights regarding confidentiality are not clear. Legal issues in minors' voluntary consent to treatment are discussed, and a review of the clinical and developmental literature ... Full text Cite