Skip to main content

Selected Publications


Contraceptive use following gestational trophoblastic disease: A systematic review.

Journal Article Contraception · September 2024 OBJECTIVE: To systematically review the effect of contraceptive methods following gestational trophoblastic disease (GTD) on timing of beta-human chorionic gonadotropin (hCG) remission, risk of post-molar gestational trophoblastic neoplasia (GTN), risk of ... Full text Link to item Cite

The Association of Race and Ethnicity with Mortality in Pediatric Patients with Congenital Heart Disease: a Systematic Review.

Journal Article J Racial Ethn Health Disparities · August 2024 CONTEXT: Congenital heart disease (CHD) is a common condition with high morbidity and mortality and is subject to racial and ethnic health disparities. OBJECTIVE: To conduct a systematic review of the literature to identify differences in mortality in pedi ... Full text Link to item Cite

Gender, Socioeconomic Status, Race, and Ethnic Disparities in Bystander Cardiopulmonary Resuscitation and Education-A Scoping Review.

Journal Article Healthcare (Basel) · February 10, 2024 BACKGROUND: Social determinants are associated with survival from out-of-hospital sudden cardiac arrest (SCA). Because prompt delivery of bystander CPR (B-CPR) doubles survival and B-CPR rates are low, we sought to assess whether gender, socioeconomic stat ... Full text Link to item Cite

Digital Health for Patients Undergoing Spine Surgery: A Systematic Review.

Journal Article World Neurosurg · February 2024 OBJECTIVE: Digital health tools, including smartphone applications (apps), websites, and online search engines, are increasingly being utilized for health data collection and patient education. Studies have shown that these tools can help disseminate infor ... Full text Link to item Cite

Development of a curricular thread to foster medical students' critical reflection and promote action on climate change, health, and equity.

Journal Article PLoS One · 2024 INTRODUCTION: Due to the health consequences arising from climate change, medical students will inevitably interact with affected patients during their training and careers. Accordingly, medical schools must incorporate education on the impacts of climate ... Full text Open Access Link to item Cite

Machine Learning Offers Opportunities to Advance Library Services

Journal Article Evidence Based Library and Information Practice · January 1, 2024 Objective – The study sought to develop a model to predict if library chat questions are reference or non-reference. Design – Supervised machine learning and natural language processing. Setting – College of New Jersey academic library. Subjects – 8, 000 S ... Full text Cite

Prognosis of Acute Low-Tone Hearing Loss Without Vertigo: A Scoping Review.

Journal Article Laryngoscope · October 2023 OBJECTIVE: Despite its relatively high prevalence, our understanding of the natural clinical course of acute low-tone hearing loss (ALHL) without vertigo remains incomplete. The purpose of this study is to summarize the findings of studies that evaluated r ... Full text Link to item Cite

Digital Health for Patients Undergoing Cardiac Surgery: A Systematic Review

Journal Article Healthcare (Switzerland) · September 1, 2023 Digital health interventions have shown promise in improving patient outcomes and experiences in various healthcare settings. However, their effectiveness in the context of cardiac surgery remains uncertain. This systematic review aims to evaluate the exis ... Full text Cite

Prognostic Tools for Older Women with Breast Cancer: A Systematic Review.

Journal Article Medicina (Kaunas) · August 30, 2023 Background: Breast cancer is the most common cancer in women, and older patients comprise an increasing proportion of patients with this disease. The older breast cancer population is heterogenous with unique factors affecting clinical decision making. Whi ... Full text Link to item Cite

Patient-Reported Outcome Measures in Patients with Thrombotic Thrombocytopenic Purpura: A Systematic Review of the Literature.

Journal Article J Clin Med · August 7, 2023 Health-related quality of life (HRQoL) impacts of thrombotic thrombocytopenic purpura (TTP) have been captured in clinical studies using patient-reported outcome (PRO) measures (PROMs) that are validated for other diseases. However, the validity evidence t ... Full text Link to item Cite

PRDM16 Deletion Is Associated With Sex-dependent Cardiomyopathy and Cardiac Mortality: A Translational, Multi-Institutional Cohort Study.

Journal Article Circ Genom Precis Med · August 2023 BACKGROUND: 1p36 deletion syndrome can predispose to pediatric-onset cardiomyopathy. Deletion breakpoints are variable and may delete the transcription factor PRDM16. Early studies suggest that deletion of PRDM16 may underlie cardiomyopathy in patients wit ... Full text Link to item Cite

Association of reproductive risk factors and breast cancer molecular subtypes: a systematic review and meta-analysis.

Journal Article BMC Cancer · July 10, 2023 BACKGROUND: Associations between reproductive factors and breast cancer (BC) risk vary by molecular subtype (i.e., luminal A, luminal B, HER2, and triple negative/basal-like [TNBC]). In this systematic review and meta-analysis, we summarized the associatio ... Full text Link to item Cite

Defining suspected child maltreatment using International Classification of Diseases codes: A scoping literature review

Journal Article Children and Youth Services Review · June 1, 2023 Background: Administrative medical records and claims are increasingly used to study prevalence of and outcomes for children exposed to child maltreatment. However, suspicion of child maltreatment is often under-documented in medical records using Internat ... Full text Cite

International Collaboration Trends in Facial Plastic and Reconstructive Surgery: A Systematic Bibliometric Scoping Review.

Journal Article JAMA Otolaryngol Head Neck Surg · June 1, 2023 IMPORTANCE: Research in facial plastic and reconstructive surgery (FPRS) in the global health setting, especially in low- and middle-income countries (LMICs), is increasing year by year. As this work progresses, it will be crucial to include voices and per ... Full text Open Access Link to item Cite

Systematic review and meta-analysis of the effect of adverse childhood experiences (ACEs) on brain-derived neurotrophic factor (BDNF) levels.

Journal Article Psychoneuroendocrinology · May 2023 There is continued interest in identifying dysregulated biomarkers that mediate associations between adverse childhood experiences (ACEs) and negative long-term health outcomes. However, little is known regarding how ACE exposure modulates neural biomarker ... Full text Link to item Cite

Treatments and outcomes in high-risk gestational trophoblastic neoplasia: A systematic review and meta-analysis.

Journal Article BJOG · April 2023 BACKGROUND: High-risk gestational trophoblastic neoplasia (GTN) is rare and treated with diverse approaches. Limited published institutional data has yet to be systematically reviewed. OBJECTIVES: To compile global high-risk GTN (prognostic score ≥7) cohor ... Full text Link to item Cite

Medical management of neurogenic bladder in patients with spina bifida: A scoping review.

Journal Article J Pediatr Urol · February 2023 INTRODUCTION: Neurogenic bladder is a common source of morbidity in patients with spina bifida and can cause renal damage. Medical management may include imaging, urodynamic studies (UDS), laboratory testing, clean intermittent catheterization (CIC), and m ... Full text Link to item Cite

One gene, two modes of inheritance, four diseases: A systematic review of the cardiac manifestation of pathogenic variants in JPH2-encoded junctophilin-2.

Journal Article Trends Cardiovasc Med · January 2023 Rare variants in JPH2 have been associated with a range of cardiac disease, including hypertrophic cardiomyopathy (HCM), dilated cardiomyopathy (DCM), arrhythmias, and sudden cardiac death (SCD); however, our understanding of how variants in JPH2 correspon ... Full text Link to item Cite

Prepandemic Antivaccination Websites' COVID-19 Vaccine Behavior: Content Analysis of Archived Websites.

Journal Article JMIR formative research · January 2023 BackgroundThe onset of the COVID-19 pandemic and the concurrent development of vaccines offered a rare and somewhat unprecedented opportunity to study antivaccination behavior as it formed over time via the use of archived versions of websites. Full text Cite

Meta-Analysis of Variations in Association between APOE ɛ4 and Alzheimer's Disease and Related Dementias Across Hispanic Regions of Origin.

Journal Article J Alzheimers Dis · 2023 BACKGROUND: Emerging research has shown racial and ethnic variations in the magnitude of association between the apolipoprotein ɛ4 (APOE ɛ4) allele and the risk of developing Alzheimer's disease and related dementias (ADRD). Studies researching this associ ... Full text Link to item Cite

Health Sciences Librarianship's Status as a Profession Is Unclear, According to Its Members

Journal Article Evidence Based Library and Information Practice · January 1, 2023 Objective – To determine health sciences librarians' attitudes toward professionalism and to examine relationships between professionalism attributes and participant characteristics as defined by the Richard H. Hall Professionalism Inventory. Design – Cros ... Full text Cite

Immunotherapy for the treatment of pediatric brain tumors: a narrative review

Journal Article Translational Pediatrics · December 1, 2022 Background and Objective: The goal of this narrative review is to report and summarize the completed pediatric immunotherapy clinical trials for primary CNS tumors. Pediatric central nervous system (CNS) tumors are the most common cause of pediatric solid ... Full text Cite

Long-term morbidities following unintentional dural puncture in obstetric patients: A systematic review and meta-analysis.

Journal Article J Clin Anesth · August 2022 STUDY OBJECTIVE: To investigate the association of unintentional dural puncture (UDP) and postdural puncture headache (PDPH) with the risk of chronic headache, backache, neckache and depression. We also investigated if epidural blood patch (EBP) is associa ... Full text Link to item Cite

eHealth-Generated Patient Data in an Outpatient Setting after Hematopoietic Stem Cell Transplantation: A Scoping Review.

Journal Article Transplant Cell Ther · August 2022 Hematopoietic stem cell transplantation (HCT) has the potential to cure malignant and nonmalignant diseases but remains associated with a wide range of complications, necessitating dedicated lifelong follow-up. While patients are monitored closely during t ... Full text Link to item Cite

Electronic Health Record Tools to Identify Child Maltreatment: Scoping Literature Review and Key Informant Interviews.

Journal Article Acad Pediatr · July 2022 OBJECTIVE: To prevent missed cases and standardize care, health systems are beginning to implement EHR-based screens (EHR-CA-S) and clinical decision supports systems (EHR-CA-CDSS) for the identification and management of child maltreatment. This study aim ... Full text Link to item Cite

Behavioral Economics in Urology: A Scoping Review.

Journal Article J Urol · June 2022 PURPOSE: Behavioral economics is the study of human behavior in the context of irrationality, self-control and self-interest. It has been leveraged in a variety of ways in health care, including efforts to decrease smoking, encourage weight loss and promot ... Full text Link to item Cite

A scoping review of inequities in access to organ transplant in the United States.

Journal Article Int J Equity Health · February 12, 2022 BACKGROUND: Organ transplant is the preferred treatment for end-stage organ disease, yet the majority of patients with end-stage organ disease are never placed on the transplant waiting list. Limited access to the transplant waiting list combined with the ... Full text Link to item Cite

Alternative Payment Models and Associations With Stroke Outcomes, Spending, and Service Utilization: A Systematic Review.

Journal Article Stroke · January 2022 Stroke contributes an estimated $28 billion to US health care costs annually, and alternative payment models aim to improve outcomes and lower spending over fee-for-service by aligning economic incentives with high value care. This systematic review evalua ... Full text Link to item Cite

Iranian Public Libraries Can Improve Self-Efficacy in Information Literacy, Especially When School Library Instruction Is Not Preparing Students for Lifelong Learning Readiness

Journal Article Evidence Based Library and Information Practice · January 1, 2022 Objective – To examine the efficacy of information literacy skills instruction on the lifelong learning readiness skills of Iranian public library users. Design – Pre and post-test experiment. Setting – Two public libraries in Iran. Subjects – Thirty (30) ... Full text Cite

A novel approach to characterize phenotypic variation in GSD IV: Reconceptualizing the clinical continuum.

Journal Article Front Genet · 2022 Purpose: Glycogen storage disease type IV (GSD IV) has historically been divided into discrete hepatic (classic hepatic, non-progressive hepatic) and neuromuscular (perinatal-congenital neuromuscular, juvenile neuromuscular) subtypes. However, the extent t ... Full text Link to item Cite

Flexible Work Agreements: Here to Stay but Uneven in Equity and Promoting Success

Journal Article Evidence Based Library and Information Practice · January 1, 2022 Objective – The article seeks to assess the current state and the future of flexible work agreements (FWAs) in research libraries. Design – The authors held semi-structured interviews with 31 individuals in library leadership roles. Setting – Large America ... Full text Cite

A Systematic Review of Cognitive Function in Adults with Spina Bifida.

Journal Article Dev Neurorehabil · November 2021 Background: Though much research has been done on the cognitive profiles of children, the abilities of patients with SBM as they age into adulthood are not well understood.Objective: Determine if adults with SBM have impairments in overall cognition, atten ... Full text Link to item Cite

Sexual health after vaginoplasty: A systematic review.

Journal Article Andrology · November 2021 BackgroundVaginoplasty is a gender-affirming procedure for transgender and gender diverse (TGD) patients who experience gender incongruence. This procedure reduces mental health concerns and enhances patients' quality of life. A systematic review ... Full text Cite

Social determinants of health are associated with physical therapy use: a systematic review.

Journal Article British journal of sports medicine · November 2021 ObjectiveThe purpose of this systematic review is to identify and summarise the social determinants of health (SDH) cited in the literature and evaluate their association with individuals using physical therapy services.DesignA systematic ... Full text Cite

Primary cytoreductive surgery for advanced stage endometrial cancer: a systematic review and meta-analysis.

Journal Article Am J Obstet Gynecol · September 2021 OBJECTIVE: Endometrial cancer uncommonly presents at an advanced stage and little prospective evidence exists to guide the management thereof. We aimed to summarize the evidence about primary cytoreductive surgery in the treatment of advanced stage endomet ... Full text Link to item Cite

Head and neck cancer research collaborations between the United States and low- and middle-income countries: 10-year publication analysis.

Journal Article Head Neck · August 2021 BACKGROUND: Disparities exist for head and neck cancer (HNC) patients between those in developed countries and low- and middle-income countries (LMICs). To improve HNC care globally, collaborations between the United States and LMICs have been established. ... Full text Link to item Cite

Intraoperative Rupture of the Ovarian Capsule in Early-Stage Ovarian Cancer: A Meta-analysis.

Journal Article Obstetrics and gynecology · August 2021 ObjectiveTo examine the effects of intraoperative ovarian capsule rupture on progression-free survival and overall survival in women who are undergoing surgery for early-stage ovarian cancer.Data sourcesMEDLINE using PubMed, EMBASE (Elsev ... Full text Cite

Healthcare Providers' Vaccine Perceptions, Hesitancy, and Recommendation to Patients: A Systematic Review.

Journal Article Vaccines · July 2021 Despite vaccines' effectiveness in reducing the rate of preventable diseases, vaccine hesitancy has threatened public health and economies worldwide. Healthcare providers' (HCP) communications and behavior strongly influence patient receptivity and uptake. ... Full text Cite

Less radical surgery for early-stage cervical cancer: a systematic review.

Journal Article American journal of obstetrics and gynecology · April 2021 ObjectiveA systematic review was performed to examine the outcomes of simple hysterectomy for women with low-risk, early-stage cervical cancer.Data sourcesMEDLINE, Embase, Web of Science, and ClinicalTrials.gov were searched from inceptio ... Full text Cite

Improvement Science and Implementation Science in Cancer Care: Identifying Areas of Synergy and Opportunities for Further Integration.

Journal Article J Gen Intern Med · January 2021 Efforts to improve cancer care primarily come from two fields: improvement science and implementation science. The two fields have developed independently, yet they have potential for synergy. Leveraging that synergy to enhance alignment could both reduce ... Full text Link to item Cite

Systematic Review of Tissue Expansion: Utilization in Non-breast Applications.

Journal Article Plast Reconstr Surg Glob Open · January 2021 BACKGROUND: Tissue expansion is a versatile reconstructive technique providing well-vascularized local tissue. The current literature focuses largely on tissue expansion for breast reconstruction and in the context of burn and pediatric skin/soft tissue re ... Full text Open Access Link to item Cite

Libraries Assist Disaster Survivors with Information Needs and Refuge but Need to Amplify Their Role and What They Offer

Journal Article Evidence Based Library and Information Practice · January 1, 2021 Objective – Describe the experiences and library usage of patrons displaced by Hurricane Katrina and the New Orleans Flood. Design – A qualitative study with interview components and a questionnaire with open and closed-end questions Setting – New Orleans, ... Full text Cite

Coronavirus Spectrum Infections (COVID-19, MERS, SARS) in Cancer Patients: A Systematic Review of the Literature.

Journal Article Cancer investigation · September 2020 BackgroundCoronavirus 2019 (COVID-19) has spread rapidly around the world to become a global pandemic. There is limited data on the impact of COVID-19 among patients with cancer.MethodsA systematic review was performed to determine outcom ... Full text Cite

The Affordable Care Act's Medicaid Expansion and Impact Along the Cancer-Care Continuum: A Systematic Review.

Journal Article Journal of the National Cancer Institute · August 2020 BackgroundHealth reform and the merits of Medicaid expansion remain at the top of the legislative agenda, with growing evidence suggesting an impact on cancer care and outcomes. A systematic review was undertaken to assess the association between ... Full text Cite

Homeless Patrons Utilize the Library for More than Shelter but Public Library Services Are Not Designed with Them in Mind

Journal Article Evidence Based Library and Information Practice · January 1, 2020 Objective – The study sought to examine the information seeking behavior of homeless patrons and how public libraries meet the needs of homeless patrons. ... Full text Cite

Implications for LIS from an embedded chronological case study of a vaccine avoidant mommy blogger

Journal Article Proceedings of the Association for Information Science and Technology · January 1, 2018 In this poster, I review vaccine avoidance and how it is typically studied. I then describe how I conducted my dissertation research and present some implications for library and information science. This research, an embedded chronological case study of a ... Full text Cite

A constant conversation: tuning into and harmonizing the needs and priorities of the body and mind.

Journal Article International journal of qualitative studies on health and well-being · December 2017 PurposeIndividuals rely upon many types of information to manage an illness, including information provided by their own bodies. This study investigated how people tune into and manage the flow of information from their bodies to manage their heal ... Full text Cite

Diagnosis of Life-Threatening Alpha-Gal Food Allergy Appears to Be Patient Driven.

Journal Article Journal of primary care & community health · October 2017 ObjectivePatients exhibiting life-threatening symptoms associated with the alpha-gal food allergy (delayed urticaria or anaphylaxis due to mammalian meat) are frequently undiagnosed, causing unnecessary emergency department (ED) and health care vi ... Full text Cite

The User Knows What to Call It: Incorporating Patient Voice Through User-Contributed Tags on a Participatory Platform About Health Management.

Journal Article Journal of medical Internet research · September 2017 BackgroundBody listening, described as the act of paying attention to the body's signals and cues, can be an important component of long-term health management.ObjectiveThe aim of this study was to introduce and evaluate the Body Listenin ... Full text Cite

A Survey of Information Source Preferences of Parents of Individuals with Autism Spectrum Disorder.

Journal Article Journal of autism and developmental disorders · July 2017 For parents of children with an Autism spectrum disorder (ASD), high quality, easily accessible information and a strong peer network can be the key to raising a happy, healthy child, and maintaining family well-being and emotional resilience. This article ... Full text Cite

Place, community and information behavior: Spatially oriented information seeking zones and information source preferences

Journal Article Library and Information Science Research · April 1, 2017 Even in a digitally advanced society, much of our daily lives is based in place, but information behavior research has largely ignored place as theoretically relevant to information behavior. This study explores the implications of a place-based approach t ... Full text Cite

De-constructing the co-construction: Researcher stance, the nature of data and community building in an online participatory platform to create a knowledge repository

Journal Article Proceedings of the Association for Information Science and Technology · January 1, 2017 In this article, we provide a reflexive account of the design of the Body Listening Project, a participatory platform in which participants were invited to engage collectively in the building of a public repository. The Body Listening Project was an online ... Full text Cite

Incorporating Values Sensitive Design into Crowdsourcing Methodologies for Knowledge Collaboration

Journal Article Proceedings of the Association for Information Science and Technology · January 1, 2017 In recent years, we have seen a dramatic increase in crowdsourcing approaches to solve problems and engage in other types of knowledge work in many domains, including genetics, health, cultural heritage, digital preservation and design. Crowdsourcing initi ... Full text Cite

Health information: print materials assessment in public libraries

Journal Article Reference Services Review · June 13, 2016 PurposeThe purpose this study was to determine currency of print health materials readily available in North Carolina public libraries, through a statewide assessment. Two subject areas were examined: health reference and diabetes. Design/methodology/appro ... Full text Cite

Exploring collective tagging as a mechanism to elicit language about health management

Journal Article Proceedings of the Association for Information Science and Technology · January 1, 2016 This paper describes an innovative effort to invite the public to participate in the creation of a public resource – to leverage collective wisdom in the health domain. This project involved building a website where people could contribute their experience ... Full text Cite

“A family like ours”: Demographic variations in information seeking behavior and community participation among parents of individuals with autism spectrum disorder (ASD)

Journal Article Proceedings of the Association for Information Science and Technology · January 1, 2015 We surveyed 906 parents of individuals with Autism/Autism Spectrum Disorder (ASD) about their information seeking experiences and preferred information sources. Our findings suggest that the most popular information sources are local doctors, therapists, n ... Full text Cite